Stuck, struggling, & what to do? What to eat?

May 11, 2012

I am stuck and struggling! I have been struggling since after surgery & getting on solids. The surgery went awesome on Aug 17, 2011. Better than the Dr's anticipated. Since getting on solid food it has been a nightmare!! I have had to have 8 endoscopies. They found ulcers on 2 occasions and we finally have those under control. I was given some karafate (sp?) and some other meds for my stomach and we have won the battle of the ulcers. However, I am still having trouble swallowing, keeping food down, pain in my stomach, and overall increase in body muscle and bone pain?

Everytime I try to eat I cannot. It starts to get stuck, or it does get stuck or after eating a few minutes later I am running to bathroom to vomit?! They have stretched me a few times and initially things are better. Then after a few weeks were back to square one?! I have been basically living on cream of wheat, oatmeal, isopures, protein shakes, yogurt reg & greek, and on occasion I can do a little hamburger meat but, has to be pulverized pretty much. I know I am not getting enough protein and I am very afraid that there is damage happening to my body!!!!

My concern is that I am getting major & increased pain to what I normally have. ( I have severe ostroporosis, fibro, and compression fractures throughout my back, & in body, also neuropathies) I am now having cramping, swelling, and severe pain in joints, arms, legs, feet, back, hips,.... actually all over my body. It is like the fibro and other pain issues are magnified 3 times more!? My fingers are like sticking? Hard to explain... when I close my fingers to make a fist and try to open back up my fingers hurt and then stick won't open?! I cannot fully grasp like a pen without pain and having to fight hard? Is this a sign that I have destroyed muscles? I kept hearing before surgery .. "If you don't get protein in your good muscles will go/" I just don't know what to do? I increased potassium and vitamins but, even my medication and some vitamins are hard to get down or won't stay down? come back up?! I am to a point where I don't know what to eat? The weight is not moving up or down?

I keep telling myself you cannot eat this or that?! My husband is worried and keeps begging me to eat anything because he thinks I am going to die from starvation?! I doubt that very much! I just don't know what to eat these days? Does anyone have any suggestions? Or sites for recipes? I chew chew chew my food! I follow the rules on when to drink and eat. Lately I can go days without eating?! I fear I will start just eating anything like my husband says and the weight will come back? I am still on steroids and not sure if that is causing problems? Low doses though?

The other frusteration because of the pain issues I am not able to excercise much?! I move around the house but, I have not been able to go to the pool or gym? I am still on oxygen but, the breathing is getting some better. My A!C is the best ever I was at 15% now I am at 4.9% that is another issue I cannot keep my blood sugars or blood pressure in the good range. I am TOO LOW now? I passed out in the kitchen a couple weeks ago cause BS was too low. Thank god hubby was home to feed my sugar but, then I got so sick from the mass doses of sugar that I dumped for what seemed like a lifetime?! 

Sorry for the rambling. I am just concerned primarily about: Protein... What to eat? What to do about trouble eating?! Getting exercise in and pain issues, how to treat low bs and bp? I have a wonderful surgeon I just am afraid I go back and they are going to want to do another endoscopy so, I just hold off calling. There have been a lot of positives since surgery. I know I was very very very sick prior to surgery and I am grateful for the positive changes so far. I just want and need more positive changes and would like more of the weigt off?! The other thing is all these rashes and the extra skin?! I want to get that removed because I know the extra stuff if removed would help my back and hips from hurting so bad?! Not sure how to get help there?

I would appreciate anyone's thoughts or ideas on any of the things I have rambled about here. I am just so so stuck! I need out! I want to feel better and live my life!!! Thanks for your ears, time, and consideration! hugs,

Always,

Dawn

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