March 24, 2005

Mar 23, 2005

Some of you have voiced an interest in knowing what's up with me and I am here to tell you. Consider this a warning … It’s not too late to stop reading.

I went for my 3 month check-up with my surgeon yesterday. It’s now more than 4 months but they canceled last month. I am down 81 lbs … (Much more on this later.) He was very happy with everything … Glad to see I was less depressed (I’m less weak, hence less depressed – a no-brainer).

I asked Dr Roslin about the “starvation mode” theory because I’m actually eating less than I was a month ago (was up to almost 850 cals, now down to around 600). He confirmed something I already knew in theory and rationale – and this is why so many surgeons have started doing the DS in two parts – the sleeve gastrectomy in most cases is enough to cause significant weight loss. As a matter-of-fact, he says he does the top part of the sleeve tighter than the top of an RNY pouch to make sure intake is slow and well-chewed. Hence, why I still get sick from time to time if I eat too fast or am not completely focused on my eating.

Dr R also said that the malabsorption part of the DS is largely about helping to maintain weight loss rather than helping to lose because the malabsorption rarely kicks in when you eat so little. Fine, great … since I’m an expert dieter and a lousy maintainer, this was one of my principal reasons for having WLS. He did say the presence of floaters and frequency of BMs is indicative of malabsorption in action and I’m eliminating and floating when my fat content is high.

Nonetheless, my head has been spinning since the appointment and this is where I can’t quite stop the voices in my head that border on my getting obsessed with the whole deal.

1) Don’t shoot me for this. I KNOW 81 lbs is great in just over 4 months. But don’t say “When was the last time you lost …?” because I HAVE lost huge amounts of weight in short periods of time (like 210 lbs in a year) and I had this surgery to end the extreme gain and loss cycles once and for all … BUT …

At 6-1/2 weeks out I had already lost 54 lbs … So that would mean that in 2-1/2 months, I have “only” lost 27 lbs … As a matter-of-fact, I was down 75 lbs at slightly over 3 months out according to my house scale (the one time I used it because of the delayed surgeon check-up) … So that means I “only” lost 6 lbs in a month (3rd to 4th month – awful soon to lose that little) … That freaks me out.

I have seen a number of people who stop losing when they’re at the 50% EWL point and it’s hard not to worry that I will be a surgeon’s success story but a total WLS failure in my own mind. I counted on this surgery for a lot … to get strong again, to lose weight … to find my way back into the world of the living. Success is the only option but the fears are there and VERY LOUD.

Am I losing inches, etc? It sure seems like it. The 3x stretch pants I wore on my surgery date look like clown pants (low carb makes me lose in the legs big time, which is very interesting because I usually carry most of my weight from the waist down) … But we took some pictures yesterday and maybe it’s because my clothes are too big (even though I’ve ditched the stretch pants and am back in jeans) … but when I put the new pix side by side with my “fattest picture” I don’t see much difference. I wish I would have taken sideways pix of the before because I know that’s where the difference would be most obvious. My ass shelf is long gone and everything has slimmed down with that view but face-front, anyone would be hard-pressed to believe I’ve lost 81 lbs so far.

2) About the calorie thing … Most of you know I’m a carb Nazi and too diet minded overall. I think this is becoming a problem. Point of reference I believe would be the fact that my comparatively piddling weight loss over the past month has coincided with a reduced caloric intake (which is honestly somewhat non-intentional; I simply started eating more veggies and fill up faster). So I figure I’m not eating enough. Would love others’ views on this. Dr R is largely of the mind that if I went on a liquid diet I would be eating 600-800 calories a day and that would be standard intake for weight loss, so I’m eating just right … HOWEVER I believe the often mystical malabsorptive component in play could easily bring my lately 600-calories-a-day intake quite a bit lower because I don’t skimp much on fats (makes sense, right?).

This lends to the most back-and-forth in this Libra mind of mine. Anyone who stops eating loses weight. It’s so hard to believe that I will lose more weight if I eat more. But then this adds to the rationale of the “Krispy Kreme plateau breakers” (those who swear they broke their plateau by eating a couple of KKs). Do the higher fat content foods help “wash away” other calories and clear out the system? There are times I have had to fight constipation and for a while my face felt like sandpaper, so this is where the checks and balances are trying to help me make sense of this conundrum.

And finally … I’m experiencing a one day on, two days off energy level. I have been out of the house three times in less than ten days (and will be out again on Saturday) … Before March 3rd I hadn’t been out of the house since January 5th. I’m not running circles around anywhere but shades of a more energetic me are emerging … As I’ve also heard others mention, being outside on a sunny day does seem to recharge my batteries and once this snowy Spring beginning has passed, I will make a point of sitting in the sun for a while each day. I also attribute these “leaps and bounds” to a delicate balance of increased navigability due to reduced weight, taking megadoses of B12 (which I needed pre-surgery and didn’t take much post … stupid me), and returning to a fairly large dose of iron (same story as the B12).

BTW … I have been around less frequently but it’s not because I’ve forgotten where I belong. I have become a volunteer for OH so I’m actually more involved than ever but have less time to “play” on the boards … I’m ALWAYS here if you need me … Don’t doubt that for a second. I like being strong and knowing as much as I can about everything but I shared this diatribe with you all because I really AM human and I know we all have these questions and doubts and fears and I’m not immune!

February 2, 2005

Feb 01, 2005

I've been having a lot of difficulty breaking the diet mentality. Although I'd been averaging 750 calories a day, one day I ate 1200 calories and got so paranoid I was eating too much that the next day I ate a mere 160 calories!

Helpful and wise switch sister Brenda Z said to stop getting so paranoid about eating and if I'm really worried whether or not I'm losing weight/burning fat, get myself a bottle of Ketostix to make sure my body is burning fat.

Within a week, I got my bottle of Ketostix and said to DH "Look what I got ... I'm gonna go pee on it!" The second the first stick made contact with my urine, it went up to the highest level (160). I waited an additional 15 seconds and the color never changed one way or another. I couldn't believe my eyes (even checked the expiration date on the bottle), so I repeated the exercise. The results were the same. So I guess I'm burning fat at a ridiculously high rate.

Only this isn't necessarily a good thing. There is such a thing as "Deep Ketosis" (something I found out from another OH member who had been diagnosed with same). Deep Ketosis means the toxic ketones are brewing around inside me and if they're not sufficiently washed away by lots of liquid (and I'm barely getting my 64 oz at this point), it could be damaging in the long-term (affecting kidney and liver especially). Also, it can lead to my body going into starvation mode and I'll stop losing weight.

Very noteworthy is the fact that symptoms of "deep ketosis" include weakness, nausea, loss of appetite, and diarrhea. Well my struggle with nausea is historical at this point; the only symptom I don't have is diarrhea (so much for DSers having chronic diarrhea, huh?) ... But it also occurred to me that the nausea started setting in about a month post-op ... Just in time for me to go into deep ketosis. So finding out about this now is a godsend.

So I contacted my surgeon to see if I was in any kind of danger. He had his nutritionist call me back. She said: "Eat a sweet potato ... eat some fruit ... have a slice of multigrain bread" I still can't believe I heard this ... "Well I had been eyeing oranges like they were Godiva chocolates" ... So she said: "Then eat one by all means." It was the essence of what I've heard some surgeons say via their patients: "You don't get fat by eating fruit!"

So I'm gonna integrate a little starchy carb into my daily food plan ... good healthy ones, besides the veggies I had been eating for about a week now. In the meantime I'll pee on my stick a couple of times a week and hope that I'll be in happy lavendar (instead of deep dark grape) before long. But I do have a blood orange sitting in the kitchen calling my name ...

January 12, 2005

Jan 11, 2005

Well, things are definitely looking up. The nausea has been gone for nearly a week and my liquids are up to about 64 oz (although I'm still kind of living off the deflated diet ginger ale). What a blessing and what a difference in the way I'm feeling. So many of my experienced DSers said it would happen at about the 8 week point (I'll be there in two days)!

My appetite is picking up although its manageable but my calories are up to about 700/day -- instead of hovering around 500. I really need the 4 oz ramekins to help control my portions because I love my own cooking! ... Yesterday I made a coconut chicken soup and the chicken itself was so flavorful that I almost ended up going into "overflow." It's so important to eat really slowly and not let your tastebuds get the better of you because I'm full quite easily but you don't feel it if you're shoveling it in!

January 5, 2005

Jan 04, 2005

As mentioned previously, I have been dealing with nausea and lots of problems eating and drinking because of it. But things got really bad on Monday: I tried a new powdered vitamin and (I believe) I overdid the dosage. Within hours I started getting a humongous pain in my kidneys and I was super duper extremely nauseas. Nausea led to the inevitable and I was miserable. Couldn't drink a flipping thing (much less eat), so I couldn't flush the offending vitamins out of my system and nothing was staying down -- no way, no how.

Tuesday wasn't any better and I only managed to get in about 10oz of liquid. Somehow that was enough to flush the vitamins out of my kidneys, so at least the pain went away. But I still felt like crap. Started sucking on Pepto Bismol tabs ... that helped somewhat. No nausea but I still couldn't eat or drink.

Wednesday was surgeon visit day. He was concerned and orderd bloods stat looking for signs of toxicity and dehydration. Neither turned out to be the case (not enough dehydration to warrant their medical intervention) but I talked him into prescribing some Zofran (which I still haven't taken because they had to order it). I made it through the rest of the day drinking "deflated" diet ginger ale -- my new miracle elixir.

So today I'm a bit better. With Diana's success in mind (she combatted nausea by having Japanese food), we ordered out and I got miso soup, salmn salad, and a large side order of sushi ginger. Along with my miracle elixir (I actually hugged the bottle and only let it go to pour more), all is staying down and working okay.

On some level, we think it's possible DH (who never gets sick -- thank God -- but has been known to be a carrier) brought home a virus that has been rampant in his office. Still not sure and don't really know if I ever will but I haven't been running any kind of a fever -- which is a positive no matter what the heck is up.

So it hasn't been a fun week, to say the least. I have, however, once again been handed the tradeoff. Upon being weighed at the surgeon's office, at 6-1/2 weeks out, I have LOST 54 FREAKIN' POUNDS!!!

It seems like all the attention I paid to my weight and watching my meals pre-op (never losing a pound) is having some kind of karmic effect post-op. Now if we get a handle on the nausea thing, as Jamie Oliver on the Food Network says: "We'll all be smiling and Bob's your uncle!"

January 2, 2005

Jan 01, 2005

Happy New Year, everyone ... May all your hopes, dreams and goals for 2005 be realized!

As for me, I'm pretty frustrated these days. Still having trouble with getting in enough liquids and not reallly enjoying food as much as I thought I would be at this point. Only eating a couple of times a day, portions not even a hair over 4 oz but I swear I've got a pouch (I know I don't) because of the way my stomach acts ... No matter how slowly or how little I eat, I have been getting increasingly more uncomfortable and can't even imagine how difficult it would be if I had been pouched. When I eat, I can't even think about food for at least another six hours.

I loved water before surgery; it's all I would drink. Now, water, Crystal Light, Propel, Snapple ... you name it, I've tried it all and NOTHING tastes good or sits right. Everything is vile! What really stinks is I'm truly thirsty. At this point I'm getting about 40 oz a day -- which I know isn't too bad but I want and need more and it's affecting my already-compromised stamina. It's all such an effort and is shocking the hell out of me because I never saw it coming.

The nausea that started about two weeks ago is really aggravating ... I know I've heard more than one person say that they eat so they don't get nauseas but ... When I wake up, I'm okay but the last thought on my mind is food. Within an hour of being awake, the nausea starts and it's often about 2pm before I can make myself eat or drink anything.

I have an appointment with my surgeon on Wednesday. In the meantime, all advice welcome!

My Surgery Experience -- A Review

Nov 30, 2004

11/19/04: Day of Surgery

It’s the morning of surgery.  I still don’t believe it’s actually going to happen.  So many false starts.  I’ll just put one foot in front of the other and keep going like I really am having my DS today.

I fell asleep about 11:30 last night and slept soundly until I had to go to the bathroom at about 3:30am.  Then it wasn’t so easy to stay asleep.  DH (Ken) and I snuggle and drift in and out of sleep until the alarm goes off at 5:45am.

I get up, brush my teeth and mouthwash furiously, per surgeon’s instructions.  Then I “refresh myself” instead of repeating the shower I took last night and get dressed.

Everything’s cool.  We’re moving along like clockwork.  As I make sure I have everything I need, I look around the apartment, wondering in the back of my head if it’s the last time I will see any of it.

At 6:03am, my sister Angie calls to let me know she’s on the way; she is driving to us and then riding into the city in our car.  Shortly thereafter, my daughter Stacey calls to say she and her fiancé are leaving their apartment and will meet us at the hospital.

By 6:30am, we’re out the door.  It all feels a bit surreal but Angie and I chat about TV shows and generic stuff in the car as Ken heads for the hospital.

We’re supposed to be there at 8:00am but we get into the city so early (7:05am), that Ken decides to drop his stuff off at the apartment in the city where he’ll be staying while I’m in the hospital.

It’s just shy of 7:30am.  Ken drops Angie and I off at the corner near the hospital where Stacey and her fiancé are waiting.  Ken has to go drop the car off at the garage, so Stacey’s fiancé goes along with him for the ride.

Less than 5 minutes after we get up to the same day surgery desk, my name is called.  I say my first goodbyes to Angie and Stacey and go “to the back.”  I take off all my clothes, including shoes, and put them in a plastic bag.  I slip into a bariatric gown and slipper socks and go to a seating area for a quick set of pre-surgical tests.

First, time to weigh me.  Since this is the first time in ages I’m being weighed practically naked (except for the hospital gown), I’m 312.5 pounds … That’s 8.5 lbs less than what I weighed at my surgeon’s office a week ago!  But that was at 5pm, I was wearing full street clothes and boots.  It’s now first thing in the morning, I’m “emptied out,” and the boots are in the bag.

I still don’t believe it’s really going to happen.  Another nurse comes and takes some blood and my blood pressure.  He is slow and methodical but keeps looking at my smiling, anticipating face.  “You’re gonna do fine,” he says.  “You have just the right attitude.  Good luck.”

To my surprise, the first nurse returns and she gives me a shot of Heparin.  That I was not expecting … not pre-surgery.  I didn’t think the Heparin came until I am post-op.

It’s now about 9:30am.  It’s time to let me reunite with my family.  We are in a waiting area with a TV and it’s just the five of us.  I model my hospital ensemble.  We chat and try to keep conversation light.  I spend a little special time with each of my family members and give each of them an extra hug.

Then, as I suspected -- because of course, this isn’t really going to happen anyway, is it? -- we’re told that my surgeon is behind schedule and I probably won’t be in surgery until around noon.  We make the best of our time.  I start rearranging the seats in the room, making sure that everyone’s belongings are confined to a corner and safe.  

I sit in a comfy recliner, find a blanket to keep me warm, and we watch some television, continue chatting.  I sit in between my husband and my daughter, holding their hands.

I start to feel guilty because it’s all taking so long.  I start thinking about the timeline and how so many of my OH friends are going to be unnerved by the delay.  I trust my Snookums (Val Stalker) to make sure everyone stays informed.  My sister and son-in-law-to-be get in a catnap as the delay continues.

The pain management doctor stops by and we go over my medical and surgical history and what would be the best way to go for pain management post-op.  We decide to go with dilaudid.

It’s about 1pm and I’m told it’s time to head back to the operating room area.  It means that I’m about an hour away from surgery.  Yeah, sure.  It didn’t take much convincing to have them let Ken come with me.

But first I have to say my goodbyes to the rest of my family.  My sister has been behind me with this every step of the way and – like me – believes it’s the surest way to get healthy again.  Our goodbyes are sweet and simple.  My son-in-law-to-be is fighting sleep but hugs me tightly and tells me he loves me.  My daughter Stacey starts crying immediately and I do my best to let her know it’s all going to be alright.  Is it?  “Act as if.”

Ken and I start going through the halls into the bank of operating suites.  First we have to go to a “holding area.”  There’s hardly anyone there initially and all is good.  We see at least five different medical personnel: My surgeon (ever so briefly), three nurses (one male) who introduce themselves as part of the team, and the anesthesiologist.  Somehow I am very comfortable with these people; they all seem somehow familiar to me, even though I’ve only met my surgeon previously.  The male nurse reassures Ken that they are a positive bunch and “there’s no negativity allowed.”

It’s just about 1:45pm.  The holding area is now packed … four beds, 3-4 patients waiting in seats … I’m really fortunate because I’m the only one there whose spouse was allowed to accompany me.  Even the surgeon is getting anxious.  I really wanted to say: “How does it feel to wait?” But decide against it.

Then it’s time for Ken & I to part; they’re ready for me in the operating suite.  The rest of this experience I must face on my own.   Ken and I look into each other’s eyes, share a warm and semi-passionate kiss.  I hand him my glasses (they’re not allowed in the operating room), and head for the operating room on foot.  Ken tells the nurse to take good care of me.  

I get into the operating room and the anesthesiologist is there, along with his colleague.  Two of the nurses are sort of in the background – arranging medical instruments, doing their thing.  They tell me to hop up on the table (which looks oddly crucifix-like … a long table with two half-length leaves in a semi-cross shape, one extending from each side).

There’s a loud construction-like noise in the room.  I thought it was part of the room’s logistics until the anesthesiologist told the nurse that no anesthesia goes in until the noise goes out.  She makes a few calls and within minutes, the room is almost silent.

The anesthesiologist chats with me, very lighthearted, kidding around.  Heck, maybe it is going to happen after all.  He warns me that I am about to get a shot in my wrist and it will feel very warm … 

“Melissa!  Melissa!  Time to get up…Are you with us?”

Whoosh! … I’m sucked out of a dark tunnel and hearing voices … I feel a mask on my mouth and it’s uncomfortable.  I need to spit up.  Not vomit.  But spit up.  I start yanking on the mask.  

“What’s the matter…Is the mask bothering you?…Wait a second…”

I spit out whatever is in my mouth.  I thought it was saliva.  Evidently, it was blood.  No one seems to be overly concerned.

I start to open my eyes and see the warm orange glow of the surgical lights above me. 

First thought: “Son of a bitch, I made it.  I’m alive.”

Second thought: “They’re moving me.  My body is numb but there’s a pain and tightness right in the center of my body.   Ouch!!!” (My procedure was an open DS.)

Third thought…and pretty much the only thing I could say for the next 12-24 hours: “Whoa!”

I’m quite out of it as I lay in the recovery room.  Surgeon said it was an even two hours in surgery, no surprises, and I’m “pretty skinny on the inside.”  I have no idea what’s happening to my family as they continue to wait.  I eventually find out that they were not being informed as to what specifically was going on and while they knew I was out of surgery, they were not being allowed access to me.

The pain is astounding to me … all about the stomach … I don’t feel it anywhere else.  But it is much more severe, somehow, than I’d realized was possible.  All’s I can think is “wow” and feel bad that my family has had to endure this agonizing wait.

The perception one usually has of the recovery room is nothing like the reality I experienced.  At Lenox Hill, the recovery room consisted of four banks of six beds each.  There sure were a lot of surgeries going on in the hospital that day!

They plug me in to some oxygen (also unexpected).  And I’m not quite sure why the delay was but I think it was almost 7pm before I got to have visitors.  

By the time I saw Ken and Stacey, they were pretty strung out.  All I could say besides “Wow/whoa!” was “I’m sorry” for having put them through the stress of the experience.  I get my glasses back from Ken and don’t have the chance to say much else because they were spirited away quickly.  

My eyes sort of periodically float in the back of my head and I am so thirsty.  I’m told no liquids, no ice chips.  But one nurse mistakenly gives me ice chips.  I don’t abuse the privilege and don’t swallow but at least my mouth isn’t so awfully dry.

Surgery was over by 4:45pm and it is now after 8pm.  I ask the nurse if I will be assigned a room tonight and she said yes but I won’t be going there until after the shift change.

I’m so out of it … In and out … I’m not much of a napper so I don’t sleep at all and I’m relatively conscious of all that is going on around me.  Don’t have much to say.  I know that the pain I’m feeling is temporary.  I don’t sweat it or complain.  I miss my family and pray they have an idea of everything that’s going on but no assurances of this.  I also know that if they were with me the whole time, I couldn’t say very much to them.

It’s just after 9pm and they’re ready to move me.  What an experience.  Two female nurses/aides.  No one says a word to me but they chat the whole way there.

I get to my room and the nurses set me up with everything (IV, monitors/telemetry, etc), before my family comes into the room.  When the poor zonked out trio (my future son-in-law was “sent home” by my daughter) arrive, all I can do is apologize for having them go through this stress.  Otherwise “wow/whoa” are still #1 on my dialogue list.

Once they see I’m settled in, visiting hours are over, they depart, and I am on my own.  Nurses and aides come in several times throughout the night to give me heparin shots, take my blood pressure, take my temperature, empty the drain “bulbs.”  I have Zofran injected into my IV for nausea and a dilaudid drip (for pain).  

That first night I first met the night nurse Bella.  She was so extraordinary, in every way.  A little bit of a thing, she was completely compassionate, competent, and responsive to my needs.  What an incredible professional!

I have a roommate but am in no condition to be very social.  She is an RNYer who is 3 months out and was hospitalized for an ulcer.  She’s going home tomorrow.  Nice lady; too bad I can’t chat much.

Another unexpected: When I tried to move, my stomach still was so sore/pained that it would go into spasms.  They lasted maybe a minute or so and occurred about 10x the first three days.  In plain English, they sucked!  

11/20/04: Saturday… Day After Surgery

About 7am, Bella herself came in and gave me a sponge bath.  It hurt so much to move but she extended her hand and told me to lean on her arm and she lifted me up to my feet.  She gave me a lovely and thorough sponge bath, made sure the bed was made and fresh, and convinced me to sit up in the recliner for a while.  What a doll!

The interns make their way on rounds and decide to check my incision.  They open the binder and it feels like a dam had burst.  Man it hurt so badly!  I get a look at the drains and the “set-up” … surprised that my staples aren’t flush with the incision but are more like “little bridges” spaced about a ¼” inch apart, all the way down to my belly button.  The interns realize that my binder was on too tight and when they Velcro it together again, the pain is a little lessened.  

But am I bummed to find out I can’t have anything to drink UNTIL MONDAY!!  First I’m told that it’s because they can’t do a leak test until Monday.  I could care less about food but man … Nothing to drink????  That blows.

It’s 10am.  Ken and Stacey come in.  Both had to get special dispensation since visiting hours don’t begin until 11am.  That’s not what I was told by my surgeon’s assistant.  She said 10am.  Well, in any case, they’re here.

But I’m of little use to them.  I hate not being up to entertaining my company but I’m pretty much out of it.  We chat when I’m lucid enough to do so, we watch TV, we get through the day.

My roommate gets to go home and says her goodbyes.  She is so kind and leaves me some magazines.  No other patients take over the spare bed.  It’s like having my own private room.

I want to cough so badly but it hurts 1000x worse to do so.  I don’t think anyone gets over the fear that if they cough, they’ll pop open their incision.  I know there’s phlegm in the back of my throat, I can’t get it up and I can’t get anything to drink.  Stacey even tried patting me on the back to get me to bring something up to no good result. This now becomes quite the nuisance.

A long time ago I learned that when I have the urge to sneeze and it doesn't want to emerge, I look up and focus on the ceiling and/or a light on the ceiling and the sneeze magically happens.  Well a couple of times while laying in my hospital bed I thought I needed/wanted to sneeze and instead of following my now-natural instinct to look up at the light to make it happen, I refocused my attention because if I can't cough without major discomfort, I know I absolutely can't SNEEZE!!! 

The day nurse on duty starts freaking me out.  My blood pressure (which was 126/68 the day of surgery) starts giving wacky readings … 198/98, 172/89 … I start thinking I’m the first one to have the DS and GET high blood pressure.  My surgeon isn’t on call that weekend but the surgeon on call (his partner Marina Kurian) says she wouldn’t worry about it.  She said if the systolic (top number) starts hitting the 200s, she’ll consider taking action.

Well for whatever reason, the nurse remains adamant about doing something.  She gives me a Lopressor paste and smacks that underneath the right side of my collar bone.  About an hour later my BP reads like 172/40.  Son of a bitch, they’re gonna kill me.   Why won’t this broad leave well enough alone?  Even my family is concerned.

Finally the rocket scientist figures out that the wall blood pressure meter is out of whack.  They bring in a manual unit and continue taking my blood pressures with that through the remainder of my stay (although I still need to remind nurses from time to time not to use the wall unit).  From that point on, my BP was OK.

Although I tried to let them off the hook several times because I was hardly the life of the party, visiting hours end and my family is once again on their way.

It seems like everyone that comes near me either reeks of perfume or has extreme body odor.  How weird.

Ahhh… Another night with the wonderful Nurse Bella.  I am lucky to see her again as I thought she was supposed to have the night off.  I tell her about the phlegm in the back of my throat and she brings me a nebulizer treatment.  It does the trick.  I’m her biggest fan.  

Turns out that Ken was worried about me so he called my birthday sis -- OH board member Margie R, who has the same birthdate as me, AND the same doctor – and she lets him know that the day after surgery is most definitely the worst.  It sure made him feel better.

11/21/04: Sunday … 2nd Day Post-op

I had a relatively restful night.  I become less and less dependent on the dilaudid.  As a matter-of-fact, we figured out it was making me nauseas, so the pain management doctor drops by and we decide to go off the dilaudid and try shots of Demerol instead.

Dr Kurian comes by and I casually mention that I was told no liquids because of the pending leak test on Monday.  She says that Dr. Roslin actually does the leak test before he closes the incision.  So then why no liquids?  No straight answer.  I figure it’s all about catering to the new belly.

The interns come by on rounds and start asking me if I’ve passed gas or had a bowel movement.  Uh, no … Based on what?  I haven’t had anything to eat or drink since 10pm Thursday!!  Hey guys, you’re the experts … Nothing in, nothing out!!!

Ken and Stacey come to see me again and feel better because I’m perkier.  I’m less sleepy, more responsive, adjusting my bed.  But the pain/severe soreness in my stomach is no picnic.

We revert to chatting and watching TV.  I ask Ken how and what he’s been eating all this time.  It doesn’t make me hungry to know.  We do, however, steer clear of the Food channel which is included in the TV cable package at the hospital.  Doesn’t make me hungry, just makes me sick!

Then one of the greatest highlights of my whole time in the hospital … Heck, of practically the last few months: I get to meet Margie R!!  We’ve been chatting on the phone for several months now and just haven’t had the opportunity to meet.  I’m so happy.  She brings me balloons and a spritzer for my incision and little cups that are absolutely perfect for a portion of what my meals will be for a while.  I can’t believe she’s actually sitting and chatting with my family and I.  My only regret was not being able to hug her tightly.

Ken, Stacey and I continue our visit but after another couple of hours I convince Stacey to get home to her honey.  Ken and I enjoy some alone time as best we can.

The nurse comes in to tell me that she wants to remove the catheter.  I know it’s time but I’m still expecting my sister and niece to come and I don’t want to have to crawl to the bathroom while they are there.  I ask the nurse to wait a while longer.

But of course my sister is running behind schedule … She never knows she’s stopped running until she’s in bed, poor thing … So the nurse removes the catheter anyway. An added benefit was removing the telemetry and oxygen.  I don't feel quite so "wired" anymore!

My sister and niece arrive and we do some quick catching up and chatting.  My niece makes me laugh and my stomach starts to spasm and she feels guilty.  But by the time she gets “I’m sorry” out of her mouth, it’s stopped.

My sister and niece leave and it’s just Ken and me.  I make my first trip to the bathroom.  Oh boy, this is not a picnic.  I cannot walk without being hunched over.  It freakin’ hurts to walk that 10’ (probably less)!   I go to the bathroom but I can’t bend AND I have my period.  Thank God I brought a gizmo from Dr. Leonard’s Healthcare (online) that they call a lotion applier, or something like that.  It’s so you can put lotion on your back without help.  I use that to help with simple bathroom hygiene.  I feel like sharp dull pain then soreness on my lower left side while I sit on the commode and somehow think it’s related to my duodenum.  It’s a couple of days before I figure it out but I’m not alarmed.  Then I shuffle back to bed.

Some of the dearest OH angels (Val Stalker & Alice W) even called me today.  Although I wasn't in top conversational form, it was wonderful to hear their voices. 

All-in-all, not so bad a day … as long as I don’t get up!  

11/22/04: Monday … 3rd Day after Surgery

No Bella last night.  She is off and I will not see her again while I’m here.  I felt her absence.  Everything was okay but then I’m not really having any problems so I’m pretty easy to care for.  I’ve just about eliminated my pain meds.  

I thought it would be some kind of fancy announcement by my surgeon when he came by that I could finally have liquids.  Nope, the interns on rounds said liquids and “ta-da” … a tray of broth, sf jello and tea appear.  The broth tasted like the finest elixir, the jello tasted like crap, and instead of the tea, I started drinking my Vita-J, which had already been approved by my surgeon’s nutritionist.  I knew my body needed vitamins and while I guess some configuration is included in the IV, I wasn’t responding to it.

So I sip, sip, sip merrily through my day.  When Dr. Roslin shows up, I’m sitting up in the recliner, Ken and Stacey by my side.  I feel overall pretty darn good (all I wanted was something to drink for God’s sake!) … He takes one look at me and says “When do you want to go home?”  We decide on tomorrow (Tuesday), which was what we’d been hoping all along.

Going to the bathroom is still an unpleasant adventure and unfortunately my responses to the “Have you passed gas or had a bowel movement?” question has been a resounding “Nope.”  Now it’s really important because my release depends on it.  Besides, it’s my proof that the plumbing is operating correctly.  Fart, baby, fart!!!

So the pressure is now on me big time to get up and moving a lot.  I have been on my feet.  I have walked around the room.  I have walked as far as the door.  But that’s not good enough for the nurse practitioner.  I have to walk the halls.  

I have heard legendary tales of fellow boarders who have walked so much while in the hospital that the nurses made them go back to their room and settle down.  Why can’t I be such a good girl?  I do what I can.  I’m no baby.  But it freakin’ hurts!!  I feel like an aged lady.  Can’t stand straight.  Hunched over, shuffling through the boring halls.  But each time I do it, I walk a little further.  By the time Ken goes home, I’m on my fourth “run” of the day.

Tonight I ask for a Demerol shot so I can get a good night’s sleep.  I’ll need all my energy to get out the door tomorrow.  But they have a surprise in store for me.  Not one I’m all that delighted about, either.  

About 10pm, I get a roommate.  Poor woman.  She was expecting to have a laproscopic cholecystectomy (gall bladder removal) and it was reverted to a very complicated open surgery.  To add insult to injury, they moved her from one room to another and made her move herself from her gurney to the bed.  She was in pain and getting sick and they wouldn’t give her a catheter, so she had to go back and forth to the bathroom.  One of the problems is the bathroom was about 5’ from the foot of my bed and she kept leaving the bathroom light on.  It was a lousy night for my poor roomie but not exactly a banner one for me either.  I’m glad to be going home in the morning.

11/23/04: Tuesday…4th Day After Surgery…GOING HOME!

At about 4am, I couldn’t sleep because my roommate was either throwing up, in pain, or snoring really loudly.  The poor thing couldn’t figure out the “nurse alarm,” so I would ring for her when she was in distress.  I got up, sat in the recliner, and watched TV.  At about 6am, I got back in bed and faded in and out of sleep.

Sometime around 7:30am, before the dreaded question could be posed, I went to the bathroom and while in there, I let out one perfect medicinal smelling poof of gas … I did it … I’m going home, baby!  How could anyone be so excited by a fart?

All systems were go for me to be released and to really drive it home, I made yet another visit to the bathroom and actually had a bowel movement.  It was medicinal-smelling and loose but baby … it was good enough to get me the heck out of there. Like I said … They gave me something to drink and eventually everything was going to work right!

The same routine: the interns on rounds, nurses taking one last BP, temperature, a final heparin shot, etc.  The nutritionist, the nurse practiioner, then Dr. Roslin made an appearance to tell me I was officially released and that the NP would take out the drains.  

My right drain had already been draining to practically clear liquid, which showed how quickly it was healing.  My left drain was a little more messy and hurt quite a bit when it was pulled, it felt much deeper than the other … And that’s when I figured out that the “duodenal pain/soreness” was really related to the left drain.  It was planted in there pretty solidly and pretty deeply.  I can actually feel the soreness a month later but everyday it’s a little less extreme than the day before.

I was released with prescriptions for Vicodin and Axcid.  I have taken two Vicodin in all as of today (12/14/04) and just stopped the Axcid two days ago.  I’ve been supplementing any discomfort with Tums.

The trip home was uneventful.  I was wheeled down to the car by a great male aide.  I felt a little register on the pain meter when hitting some of the more potholed city streets but I made it up the four porch steps with a little effort, then a full flight of stairs up to my apartment with a little more.  Slow and steady all the way.

That’s when I figured out that it wasn’t that everybody in the hospital had body odor or too much perfume, my sense of smell was really affected by the surgery.  I smelled more smells in my house than I care to divulge.  Cat food smelled so sickening, I could barely go near the kitchen.  Somewhere on some item somewhere in the house, something smelled mildewed.  Thank God I got some flowers at the hospital; they balanced the annoying smells.

I slipped into our easy chair.  Kitty immediately followed.  She jumped onto my lap and -- as she is used to do doing -- approached my belly to cop a squat.  I put my hand out to let her know she could not go any further than my lap.  She sniffed my belly and then settled for resting on my lap, her head against my renovated abdomen.  I was home and very grateful.  

12/14/04: Since Then…

Now I’m almost a month out of surgery.  It’s true when they say every day it gets a little better.  The pain subsided so swiftly that by one week out of surgery I could get myself up from a laying-flat-down position (okay, I got stuck a few times and hubby helped).  Now that’s not to say I’m not sore in some places and moving slowly and deliberately but it’s all manageable.

I’ve had some issues with “gastric juices” … can’t explain it much better than that – especially since I never really had issues with heartburn or reflux or the like before.  It’s funny because I shouldn’t really have any stomach acids going on at all anymore (at least that what the doc says … he said the DS in particular should eliminate such issues).  I took Axcid for about three weeks and started with Tums to help me along.  It’s actually been less drastic since I’ve done this.

Twelve days out of surgery I had my staples removed and my surgeon’s office weighed me and I’d already lost 25 lbs!

They were not kidding when they told me my stomach could only hold about 2 oz.  It is a chore and I must eat painfully, deliberately slowly – especially when eating meats – or I have what I refer to as an “overflow valve” … I don’t really vomit, it’s like I feel uncomfortable and then whatever isn’t going to settle down just comes out.  I mean I get to the bathroom fine and everything but it’s just not going down.  This has happened twice.  

I miss larger portions and like my food anything but bland, which just makes me want to eat more but I simply can’t.  The holidays are not the best time of year to have surgery but once I finally got approval, I wasn’t going to wait any longer than I absolutely had to.  So be it.  But please, all you pre-ops, address your food demons/issues now because they will drive you batty when you’re early post-op.

Within the first week of being home, I realized that I had bruise-like pain (but no external bruising) on both outer thighs (e.g., impossible to lay on my side because of the pain, with or without surgery). After some private consultation with our fabulous Tooter, it appears possible that this is due to post-op nerve damage that will eventually fade. Such pain is very common with post-ops in the upper leg area. It has to do with the hydraulic operating table tilting your body so all organs are accessible during surgery. The pain was not there pre-surgery and it was a weird and very unexpected development.

Even though I was incredibly prepared for this surgery and had done my research, I find surprises about it with regularity.  Everyone I’ve talked to has had gas.  Me?  NONE, zippo, nada.  Diarrhea?  After the first two weeks, fuhgeddaboutit … I have to be careful not to get constipated.  This is an earmark of my surgeon (wonder why I fought so hard to make sure he was my surgeon?).

Everything has full flavor; I expected things to taste differently after surgery but they don’t.  In fact, I tried Carb Countdown yogurts pre-surgery and thought they were terribly chalky but now I love ‘em.  

Practically nothing other than water reaches my lips unless it has nutritional value.  It must have protein and/or vitamins or no way.  I have always been anal retentive about applying myself to my weight loss food plan.  After all, before my autoimmune disease, I was the queen at losing … It’s always been about KEEPING the weight off … And now that I’ve had my DS, I have confidence that will no longer be an issue.

Am I happy I had my DS?  Let’s just say I’m not unhappy.  Seeing and feeling weight loss definitely is a huge positive.  Healthwise I’m about 2/3rds of where I was pre-surgery but remember, I am disabled with big stamina and energy problems.  I’m struggling most with getting in enough liquids and I know once I get that in hand, I’ll be alleviating a lot of those problems (i.e., when I’d get particular “wobbly” pre-op, it was because I wasn’t well-hydrated).

I’m hopeful, optimistic, and determined … definitely in this for the long haul. If you want to know the God’s honest truth, I still can’t believe I actually did it! That's pretty easy to say when you've been blessed by God and the power of love to emerge from WLS with virtually no complications. I hope this holds true for all who read this as well. {{{HUGS}}}


11/24/04: Finally Post-op!

Nov 23, 2004

Not up to posting or reading much but wanted to let you know that I'm home (since yesterday) and doing well, with the grace of God -- not to mention the incredible love and support you have so warmly bestowed upon me. I have not even had a chance to make it through all your emails but rest assured, I will.

I love you guys more than I can say and thank you for being there for me and caring so very much.

I have to admit I'm thrown by the pain -- but then I had an open and the upper part of my abdomen (where the cutting was done) is a relatively lean part of my body, considering that most of the fat on me is concentrated from the waist down. As a matter-of-fact, my surgery took a solid two hours ... Doc says that I'm "relatively skinny on the inside" and there were no surprises at all.

I was also kind of stunned by the occasional stomach spasms (pretty much over now) and the fact that I wasn't allowed liquids at all from Friday until Monday. That really was a drag. And that once I was able to drink, Axcid made the difference in staying hydrated.

Every day I'm a little stronger and the pain subsides a little more but then I'm pretty thickheaded about not taking in a lot of pain meds, so I'm feeling it all. Of course, DH has been sensational and I feel love around me and although, I'm not hooting and hollering that "I did it!" ... I know I will be before long.

I was, however, a riot while in pre-surgery (rearranging furniture in the waiting room and breaking into a skip, trying to keep my family's spirits up) but I know it gets better every day. You have all educated me so well.

There's so much more I want to share with you but I'm not going to overdo it. But how screwed up is it that you have this surgery and virtually no mobility in bending and you get your period and "loose movements" all at the same time? That which does not kill us ...

I'm so lucky to have each and everyone of you ... What a special group to belong to ... I am forever grateful. Have a terrific Thanksgiving ... You are on my gratitude list for sure.

November 18, 2004

Nov 17, 2004

Well … there’s nothing left for me to do, really. I’ve taken pretty much every step I could think of and made as many changes as I could to give myself secure footing before, during, and after surgery.

… I quit smoking over a year ago.
… I’ve all but eliminated diet soda from my life.
… I stopped drinking coffee a week ago (in part due to some gastritis but coffee is not a very smart decision for a new post-op with a newborn baby’s belly).
… Even though my surgeon does not require a magnesium citrate regimen, I’m cleansing myself out (Smooth Moves laxative tea).
… I’ve written my letters to family members.
… I’ve reviewed my life and made amends whenever/wherever possible.
… Anticipating a first-call time of surgery, I’ve changed my 10:30am wake up (hey, I stay up late!) to 6:30am (and remember … no coffee to get there!)
… I’ve mentally created a vision of the life I hope to have post-op.

I have designed it so that surviving post-op will put me in a position where I’m starting my new life pretty much with a clean slate. Last night DH (Ken) and I watched the rerun of Kathy Harris’ story on the Discovery Health Channel (Escaping Obesity: Kathy’s Story) … and it was just as inspiring as when we saw it the first time (at the beginning of my journey). Watching her find -- and embrace -- life again is so inspiring and exciting. Walking in her recovery footsteps would be about the best thing I can envision for myself.

At about 1:00pm today I will take myself off the boards and spend time with Ken, who is taking off for the next two weeks to play “Nurse Pookie.” He’s been … not nervous … but overly sweet, overly adorable, and overly huggy this week (and for someone who fits the bill for all three on a regular basis, that's saying something) ... He admits to being worried but hopeful. And my daughter, well, that’s a whole ‘nother story. Since it's so easy to get sidetracked by the boards (especially since I have already started sleeping on the sofa bed closer to the bathroom, the computer is never more than two feet away), I just have to shut off the "magic box" -- as Ken calls it – and make sure I’ve got everything in place for tomorrow …

There are simply no words with which to thank you. I am at a loss at how I could possibly reciprocate for all the time and energy you have spent to give me support … a cyber hug … words of encouragement.

I fought this fight for me, because on some level (regardless of the “little voices” … LOL), I knew I was worth it and I knew the life I have today – while satisfying because of the people I love and who love me – could be so much more. I have never been one who could easily receive without giving and I’ve had enough of trying to make my life and health better through non-surgical means. Through the grace of God, the surgery will make the difference for me.

One thing I do know, however … This is your result as well as it is mine. You supported me when I really wasn’t sure if I could go on; you understood and empathized. Many of you wanted this for me as much as you had wanted it for yourselves. There is no doubt in my mind that there is such a thing as unconditional love, because you and my family have proven it to me everyday.

I love you guys and will be eternally grateful for the support and love you have shown me. I am humbled by it … I feel so protected … Thank you for all of you who are keeping me in your prayers.

Looking forward to my next post as an official member of the “fellowship of the switch …”

November 16, 2004

Nov 15, 2004

It's Thanksgiving in our house today. Since I will not be in any kind of shape to prepare -- much less eat -- Thanksgiving dinner, I'm making a nice moderate holiday dinner for DH and myself (I owe my sweetie that much ... he's been so great).

Nothing over-the-top ... We had a turducken roast in the freezer, so I will make that, along with some stuffing, and a pumpkin trifle (pumpkin pie without the crust). I will freeze the leftovers in meal-sized portions so DH can munch on that while I'm pureeing my food post-op.

Wednesday I will eat lightly and on Thursday I will stick to egg drop soup and liquids in preparation for my big day on Friday.

I must say I'm not very nervous ... I'm extremely hopeful and quite excited. It's been quite a ride, hasn't it? I never would have made it this far without all of you and for that, I thank you from the bottom of my heart!

BTW ... I've posted contact information on my surgery page for while I'm in the hospital. In the meantime, Izdawnie 2, Margie R and Stalker Val should be keeping you updated on the boards.

November 10, 2004

Nov 09, 2004

Get ready ... Cause here I come!! It's official: 11/19/04 at 6am at Lenox Hill Hospital. Other than what appears to be an attack of gastritis and a tooth seriously in need of a filling ... I'm SO PSYCHED!!

NINE DAYS, everybody ... NINE DAYS!! Surgeon tried to talk me into the two-stage DS because of my issues with stamina but was willing to go with my ultimate decision OF ONE FELL SWOOP, baby ...

Music playing in my head: "Ain't no stoppin' us now ..."

Thanks for caring and being my buddies ... Here comes the truck ... I can hear the honking now!!

P.S. Also very cool is the fact that in 11 months I've only gained seven pounds! That's like a miracle for me. 321 lbs ... Certainly nothing to brag about but considering the fact that I'm housebound and not well enough to exercise at all ... I consider it a minor victory!

About Me
Westbury, NY
Location
20.7
BMI
DS
Surgery
11/19/2004
Surgery Date
Feb 01, 2004
Member Since

Friends 175

Latest Blog 79

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