July 5th, 2007

Jul 04, 2007

Well to update since I last posted. I came back down to Florida and met with Dr. Gonzalvo on June 5th. I liked him very much. He spent a lot of time with me and answered all of my questions very frankly and made a lot of sense in his explanations. I met Jan, Chris and Sherri in the office and was very pleased at how professional and friendly everyone was. I left there and in the next week completed the last of the requirements, checked with his office to make sure they received all of the results and was told that my file was going to Sherri, who will submit to insurance. Well I checked last week and she was on vacation. I called her on Monday and the office staff are all out for training this week so being short handed it wasn't likely she'd have time to submit to insurance this week. Sigh. So I wait.  MEANWHILE I had a car accident and am going for physical therapy so am staying in Florida to continue that. My neck seems to be the biggest problem for me and I'm getting a little concerned about why the PT and chiropractic treatments are not helping by now. It's been a month since the accident. They keep telling me to be patient. Do I have a choice? 
So I wait for insurance approval. As all of us know... this is very nerve wracking. If I get a quick approval the first time, I should still be on schedule for surgery on August 13. I'll be so glad when I finally get the call from insurance. Then I know I'm on my way. Being in limbo is always hard. 
Also for the first time in a year, it's not up to me anymore. I have no control over what happens from here on out. For the last year I have been working feverishly being almost consumed by making sure I jump through every hoop and cross all my T's and dot all my I's. 
Let's see..  here is what I have had to do in the last year...

*7 monthly doctor visits for supervised weight loss plan
*Cardio Nuclear stress test
*Cardio EKG
*Cardio Echocardiogram (twice because the first one expired)
*Endoscopy
*Colonoscopy
*Overnight Sleep study
*Pulmonary function test
*CPAP therapy
*Psychiatric Evaluation (2 appointments including a 2 hour test)
*Abdominal Ultrasound
*Chest Xray
*Bone Density Scan
*Blood workup

Also... in the process of all of these tests I needed to make many many phone calls in order to get all of these records sent to the surgeon. In many cases they didn't do it and had to be hounded. To make matters even more difficult I started out in a bariatric program in Albany NY, then moved to Florida and changed to a program in New Port Richey. I had to have all my records transferred to NPR. Then in May I found out that the surgeon in NPR quit so I had to scramble around, do a lot of research to find another surgeon who I liked and get all my records transferred again. 

So here I am now in the waiting phase and I have no control. Not easy for a control freak like me.

May 18, 2007

May 18, 2007

I had some VERY upsetting news this week. While we were driving up North from Florida, I got a call from Ivy Landell at Community Hospital telling me that Dr. Rodolpho Dy is no longer doing bariatric surgery and my surgery has been cancelled. They have no other doctors to do the surgery and I will have to find another program, another hospital and another surgeon.  As you can imagine I was devestated. But only for a short while because once I composed myself I resolved not to let this deter me in any way. As soon as I was able to, I got on the Internet and did a lot of research and began making phone calls.  I am VERY happy to report that I am now back in another program and all of my records are on their way to the new program. I will be having my surgery at Morton Plant Hospital in Clearwater and my surgeons will be Dr. John-Paul Gonzalvo and Dr. Richard Gordon.  I spoke to Julie Douglas who is the coordinator of the program and also Jan who is the office manager in the surgeons office and was very pleased and encouraged. I have an appointment with them for June 5th which is also the date of my last appointment wtih my primary doctor who is monitoring my 6  month weight loss program. Unfortunately I am back in NY up at camp so I will have to fly back down to Florida for these appointments. It looks like I will still  be able to schedule my surgery for early August like originally planned as long as I get insurance approval.  So I am really no farther behind and actually right back on track.  It was very upsetting to me but I think in the long run this is for the best. The way I look at it is if Dr. Roldolpho Dy is such a man that he would do this to people then he is not the man I'd want to do my surgery. When my husband and I met with him he complained to us about not making enough money doing bariatric surgeries. My reply was to ask him that even though the monetary rewards are not there that he must get great rewards seeing how many peoples lives he has helped. His reply to me was "yes but I still have to pay my bills."  That SHOULD have been a red flag to me. That alone should have told me what kind of man he is. It now tells me in hind sight I can see that he was then planning on quitting and he knew he was not going to do my surgery then. But he got one more consult visit payment from my insurance company. And since money is his main interest in life, that is where his decisions lie. So be it. I know that God has guided me toward better surgeons with good character.
So at this point  my last hurdle appears to be insurance approval. After my appointment on June 5th with my primary care doc and the surgeon, we will be submitting to insurance and hopefully I should have approval within 30 days of that time. 


April 16, 2007

Apr 16, 2007

John and I met with Dr. Dy today. We did like him. He was very direct and wanted to know if we really understood the risks and the degree of changes to our lives this surgery would mean.  He was very pleasant, has a good sense of humor and gave us all the time we needed for questions. He asked John directly how he felt about me having the surgery and was very pleased to see that John was supportive. He explained to us that he feels spousal support is imperative and would not do the surgery on me without it.  Our next step now is to submit the paper work to insurance!!  I still need to get a pulmonary funcion test, abdominal untrasound and a chest exray but aparently these are not needed before we submit to insurance. Dr. Dy told us that insurance companies in the last year have become difficult when covering this surgery and that they are doing less of them because of insurance denial. Hearing that has terrified me! I will be on pins and needles now until I hear. I know that if I do get denial, I will appeal but I sure as heck hope I didn't get this far and find I can not get insurance coverage. Well... I will try not to worry about that and stay the course and remain optimistic. I know that a positive attitude about anything sends positive energy and really helps. Plus I know that God is always with me and knows what is best for me. So it's in his hands. What ever happens does happen for the best. I have learned that over the course of my life while looking back.

April 11, 2007

Apr 11, 2007

Got my cardiac clearance this week and was very happy to hear that they can use my cardiac tests that were done at Saratoga Hospital last summer so I don't need to have them again. A few hours after my cardiology office faxed my clearance to Ivy, the coordinator of bariatric surgery at Community Hospital) she called to give me a an appointment to meet with Dr. Dy!!!  WOW!  I'm meeting with my surgeon! This is huge! I have been VERY VERY busy... I could even say totally consumed with getting everything done so that I can meet with Dr. Dy before we head North for 3 months. The plan is for Ivy and Dr. Dy's office to work on getting insurance approval while I'm gone. I've seen my gastroenterologist, got my psych clearance, did the sleep study in November, have been seeing my primary care doctor King monthly for the required 6 month doctor supervised weight loss counseling. I have also been working very hard on getting my records from my docs up North to send to Ivy here. That has been a nightmare of phone calls trying to get people to do what you need them to do. Now that Ivy has everything she needs,  I am most nervous about what I read on the groups that BCBS is tough. I am doing everything they require and dotting all my i's and crossing all of my t's so it will soon be out of my hands. BUT if I get a denial.. I'll appeal and appeal until they are tired of me and will approve. I just HOPE I don't have to go through that too. This has been tiring enough! But I am very ready now. No more thoughts or doubts. Will update more as I know.

February 21, 07

Feb 21, 2007

Monday night John and I attended the monthly support group meeting at Community Hospital in New Port Richey led by Ivy Landell and Barbara Corell. Again I was very impressed with the program and got a lot out of the meeting. I also had yet another chat with Ivy and this time Barbara was included about my concerns about having the surgery in Albany and then having to come back down to Florida only being a few months out of surgery. I also needed to consider that I have to be back to work by October 1st at the latest. My husband understood the dilema but was not happy about the idea of not going back up North at all so that I could have the surgery. After all his reenactments are very important to him too. SO Ivy suggested the possibility of us going North as planned in May and coming back home here early and perhaps having the surgery in early August. That way... first of all I'd have a good month or even 6 weeks to heal and be ready to return to work Oct first AND I would have 9 months to heal and be near my surgeon before having to head back up North in May of '08. I strongly feel that it is much safer for me to be near my surgeons and the program that I working with for 9 months out of surgery than only 3 or 4 months. So John and I left the meeting and discussed it and I was SO RELIEVED that he was willing to compromise and agreed to come back down in August. I am a very lucky woman to have such a loving, supportive and understanding husband.  I'm am filling out the paper work for Ivy and working on getting my records sent to her. This is going to be a lot more work for me... more paper work and getting all of my records transferred from up North. I think though, it is a much safer plan. 

There are some downsides to this new plan. I won't be able to have my weight loss surgery angel, Mary J. with me. She was very disappointed too. I won't be near family... especially my Sister Cuffy, who being a nurse is a real help and comfort. Not to mention we are very close.  My Mother will not be happy either but I'm sure she will agree this is best. Even with these negative aspects I am still very happy with my decison. After all I live here now and am here for 8 or 9 months of the year.
It's not like I will be alone. I will have John with me and we have several wonderful, dear friends who live here in our neighbhorhood who I know we can count on to help me if I need it and support John. I think he will need more of the latter than I will help. He really is very nervous about his whole thing. 

That's why I am trying to get him to come to support group meetings. He has been to a few and I think the more he attends, the more he understands and the better he feels.


January 30 '07

Jan 29, 2007

Still staying the course. Reading,  reasearching, regularly attending support group meetings here in Florida at Community Hospital in New Port Richey. Seeing my primary doctor, Dr. Feliz King every month. Doing well with the 10 percent requirement for weight loss. Last month lost 4 pounds this month lost 3 pounds. Down from top weight of when I was in the hospital in late June at 250 pounds to 230 for a total of 20 pounds lost.  According to Albany Clinical Nutrition I need to get down to 224. So only 6 more pounds to go. The tricky part is that I should not lose MORE than that prior to insurance approval or I risk them denying me. So I play the game. I can do that.  Since I posted last I had my sleep study done here at the Florida Sleep Institute. I was diagnosed with severe sleep apnea. They are putting me on CPAP therapy with a machine pressure of 17. I understand that is very high. I HATE the machine and unlike other people, I am not feeling better using it. In fact I feel MORE tired. A LOT more tired.
My next step, I need to make an appointment with a psychologist for my required psych eval. I think I will do that this week. 
Other than the fact that I keep having these CRAZY thoughts go rushing through my brain that MAYBE I can lose it on my own and THIS time will be different. THIS TIME I will be able to keep it off on my own.  Then I wake up and continue working on the requirements for surgery. I talk to people online and in the groups, and of course my angel, Mary J and all say their heads did the same to them. I guess it's all part of the process and why it is so important to really research and go to support group meetings and take your time. I guess I won't have to worry that I'd regret not doing my homework!
Ok it's after midnite and here I am up late again. I have to go to work tomorrow too! My sleep habits are terrible. But that's another story for another day.












11/10/06

Nov 10, 2006

I know it has been a while since I updated here and since I did, OH has changed their format so I had to copy and paste my entries from before into one entry. See earlier posts for November '06 for those early entries into my blog.
Anyway.. here's what has been going on. I am still staying the course with regards to my endeavor to have the weight loss surgery. We are back down in Florida now (YAH!!).. and it took me a while to find a primary care doctor who is taking new patients. I found one but couldnt get an appointment until November 30th. I went for a consultation today at the Florida Sleep Institute in Spring Hill and will do the sleep study next Wednesday night. Dr. Kohler, the sleep doc does think I have sleep apnea. Not good because I will have to do that darn cpap machine.. and wear a mask to bed. NOT happy about that at all BUT if I am diagnosed with sleep apnea it is considered one of the comorbidities so along with high blood pressure, I will have 2 comorbidities which will put me in better shape to get insurance approval. AND... once I have the surgery and lose weight, chances are very good I won't have sleep apnea any longer since it is most likely caused by the excess weight.  
I have also been in touch with Dr. Santoro up in NY  at the Albany Clinical Nutrition group and let her know I have my doctors appointment scheduled AND that I am dieting and excercising AND that I have lost 15 pounds toward my 10 percent pre surgery weight loss requirement. She was very pleased and told me to keep in touch and have Dr. King... my primary care doc here send her my records and weight procress.  I need to be monitored monthly by Dr. King to show my attempted weight loss.  

Austust '06 - Sept '06

     
08/14/06 Got the paperwork in the mail today from Albany Medical College Bariatric Center. I filled it out immediatly and faxed it from Staples at 8PM tonite. I will call them tomorrow to verify that they received it. Once they have received it they will set up my appointment for my "Informational Session". It is the first of 3 sessions. This one takes all morning.
Also... today was reading through the forum messages here on OH and came across a post with a subject line: Vaginal Vault Prolapse. It caught my eye because lately I have been experiencing something that sounds like that. I did a search in Google and found a website that explains what I have to a T. I have an appointment with my PCP on Thursday to talk to her about referring me to a sleep center for possible sleep apnea and my blood pressure. I guess now I have something else to talk to her about. BTW... the website says that one of the possible causes of this vaginal prolapse is obesity. :-(
It's looking more and more like this surgery is something I really need.

8/15/06 I didn't even get to call them this morning when I got a call from Stephanie at 9AM from Albany Med to set up my appointment for my first session. I will be attending the session on 8/29. I spoke with Stephanie about my living in NY for 5 months and 7 months during the winter in Florida. She was a little discouraging saying that I would have to do 6 months with THEIR nutrition program just prior to surgery. Then she transferred me to the nurse practitioner who said the same thing. I asked her if I could do a program with a bariatric nutritionist in Florida who would work with them directly. She did not think that would be possible. She advised me to go to the information session anyway. I will see what happens then. Hey if worse comes to worse, I'll have the surgery in Florida. Not my first choice but if that's what I have to do, I will.

8/16/06 After talking to Stephanie at Albany Med yesterday I am wondering after that conversation that I may have to think more seriously about the possibility of having surgery in Florida. I sent an email on July 19 to a woman named Ivy Landell who is the coordinator of the bariatric program at Community Hospital in New Port Richey, Florida. I told her about my snowbird status and asked her when the next seminar would be held since I wanted to make plans to attend as soon as I return to Florida. She replied to that question and also told me to let her know if I would like her to send me information on things I could be doing here until I return to Florida in October. I replied that YES... I would very much appreciate her sending me that info. The following week when I did not hear back from her I emailed her again reminding her. I never heard back from her. So last week I sent another email. Again no reply. Yesterday I left a phone message on her voice mail. Still no reply. Hmmm.... I guess this is the part where determination comes in? All part of the test to see if we are motivated? Perhaps.


8/17/06 Just some thoughts for today. You know, unlike many obese people I really don't have a bad self image. I do feel pretty even when I'm heavy and my size doesn't make me feel self conscious. Of course I'd love to look thinner... don't get me wrong but looks are not my motivation. I have always been a very active person. I can't stand feeling so restricted and it's taking a toll on my physical health which is effecting my emotional health. So many things are popping up health wise because of this. To name a few:
High Blood pressure
Possible sleep apnea (going to talk to doc today about referral to a sleep center)
Heal pain (Plaster Fastitis)
Anxiety and Depression
Vaginal Rectal Prolapse (talking to doc about this too)
Low blood sugar
Cervical degenerative disk
Excema in areas of excess fat
And of course low energy.

I am too young and want to have many years ahead of me. I can't keep dieting and gaining weight back. It is very dangerous and I've done the yo yo thing way too many times in my life.

8/17/06 My "Angel/Friend" Mary and I were talking tonite around the campfire. We talked about how some people don't understand the reasoning behind the requirement to lose 10% of your weight before being approved for surgery. I told her that I totally understand. I was just laying in bed and thought of an analogy and had to get up to write it down lest I'd forget in the morning. My analogy is this. If I were a farmer and needed to plow 126 rows of field. (I have 126 pounds to lose) and I was told I needed to use this very difficult tool to do it. (The very difficult tool represents dieting without the tool of weight loss surgery) Someone has the tool that would make it much easier to plow all 126 rows but they don't want to give me that easier tool just yet. They want to see how I do using the more difficult tool. The reason is that using the easier tool alone, without the other things necessary, then I will not be successful. Along with the easier tool, I still need to have determination, motivation and knowlege of how to properly plow the field. If they just handed me the easier tool, without knowing that I already have the determination, motivation and knowlege, that easier tool all by itself wouldn't be enough to successfuly get the job done. Until they see I have the other things it takes then and only then will they give me the tool to make the job easier and more successful.

9/13/06 Had TERRIFIC news today. Went to Albany Clinical Nutrition for the 4 hour initial visit. I am assigned to Dr. Santoro and she has agreed to work with me to do my 6 month nutrition and weight loss program in Florida but will monitor me up here! This means I can have the surgery in Albany with Dr. Singh! I am trhilled. It means a lot to me because all of my friends and family are here. Also Mary had her surgery with Dr. Singh and he was amazing with her during her crisis so I feel very confident in him.
This week I am also doing the required 1/2 day sessions for educational classes at Albany Med. I did part one yesterday and will finish part 2 tomorrow. They were excellent and very informative. I also enjoyed the commeraderie of those going through the process at about the same stage I am. Most there will have the surgery long before I will since I will wait until we get back from Florida next May. Then I will do the preliminary things I need to do here before surgery. Still a long road ahead and many hurdles but I'm on the road and pshyed. 
Here is a picture of me taken recently at the Coldbrook Picnic. I am at my highest weight ever of 250 pounds. I hate how I feel and I hate how I look. I  can NOT continue on this path or I will be facing many debilitating health problems:



About Me
Hudson, FL
Location
27.1
BMI
RNY
Surgery
08/14/2007
Surgery Date
Jul 06, 2006
Member Since

Before & After
rollover to see after photo
Me at top weight of 250 pounds
250lbs

Friends 86

Latest Blog 58
WEIGHT LOSS TICKER
BACK TO MY GOAL OF HIKING THE ADIRONDACK 46 HIGH PEAKS!
SAILING!!!!!
WOULDN'T HAVE DONE THIS A YEAR AGO!
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Photo Show of Marianne's Weight Loss Journey
Kayaking!!!!
APRIL 23, 2008 - I RODE A HARLEY TODAY!!!!
APRIL 11, 2008 - IT HAS BEEN A GREAT WEEK. LIFE IS GOOD.
100 POUNDS LOST!!!! GONE FOREVER! AT GOAL and in a SIZE 10!!!!

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