Mindi0629

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I haven't been on in a few months, but for good reason!  After last revision on 7/3/12, and new leak on 7/5/12, I went into a black hole of despair.  My surgeon was at a point where he needed to refer me to another surgeon for evaluation and consideration of a total gastrectomy.  After several consults, a CT, and a VERY EXTENSIVE swallow study, it was determined that I had 3 contained leaks and a total gastrectomy was needed.  I was TERRIFIED.  The option was very radical and I was being swallowed by fear and depression from all of the pain and nausea over the last several months.

Dr. Jonathan Schoen of University Hospital Denver performed a total gastrectomy on me on 1/7/13.  I am one week post op and the surgery was considered a success.  My small intestine is connected directly to my esophagus.  Due to my unique anatomy, Dr. Schoen was able to retain some remnant stomach and put in a g-tube (aka Lifeline!) to help with my nutritional status.  If all stays well, the tube will be removed with-in a few months. 

I have not had a SINGLE instance of nausea post op.  I swallow without pain.  With the exception of the pain, I have not felt better in months.  The pain however, well..... it HURT!  But without some suffering, I cannot fully appreciate the good in life.

I will do better in keeping this updated!

~Mindi

Having had abdominal cramping with eating and drinking for a week, my doctor advised that I have another CT scan to see what was going on.  I spent 9 hours in the ER where they determined that there is an abnormality with my esophagus that seems to be causing a build up of gas and fluid.   Will have a follow up with my surgeon this week to determine how best to handle the problem with my esophagus.  I will fight this and beat this.  Has anyone had problems with gas pain weeks after surgery?  I expected it immediately post op but didn't know it would be a continued issue weeks later.  :o)