Gastro-Gastric Fistula

Jun 27, 2016

I am now 13+ years post-op.  I had the open RNY with silastic ring.  I have had a long road.  I was semi okay for 4 years.  I had a bad problem with my potassium dropping.  I was in the hospital for 3 months to get it regulated. They thought that I might have a heart attack.  It was so scary.  The doctor that did my RNY retired shortly following.  I ended up having a feeding tube placed into my native stomach.  They said I would need it the rest of my life.  I wondered at times how long that would be.  I had a "Mickey Button" which was much better than the tube hanging out all the time.  I kept it for 5 years.  I decided to have it removed.  It was hard, but I tried to eat as much as I could.  I have SEVERE problems with mal-absorption.  I have had bad pain like a charley horse under my ribs and my hands & feet.  I had to go to the ER because of pain and nausea & vomiting for over a week.  I am on IV fluids at home for hydration.  They did a CT Scan which showed contrast getting into my native stomach. My GI doctor did an upper endoscopy and confirmed the inflammation at the stoma.  I went to see the bariatric surgeon that took over for my doctor.  She ordered the vitamin levels and a few other labs.  She said she would have to get the results and consult with Dr. Steinberg, her colleague, as she has never done this kind of revision.  I got the lab results today.  I imagine her office did too.  I have had a long history of abdominal surgery before my RNY.  I have a lot of adhesions.  I've had to have a bowel resection due to bowel obstructions, hysterectomy.  I am having a very hard time with this.  I would like to get all the surgery at one time.  Maybe even skin removal.  It worries me that she hasn't done this before.  I know she'll do her homework.  But it is scary.  Would love to know how others have done.  Revision?  

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About Me
Jun 25, 2016
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Before & After
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before
320lbs
180lbs

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