P.S. high B12 is rarely a problem. Mine has been over 2000 at times. It's been hovering around 800-1000 lately, and that's fine for me. Some people don't feel well when it gets much lower than that, even if they're still within the "normal" range.

hey there,

i'm 38 (had the DS in 2011) and just found out i have osteoporosis (i'm right on the borderline of being osteoporosis). I'm so upset, scared and confused:(

I'm already on creon, due to past complications. I'm 95kg (put on 10kg once I started Creon).

I'm going to start doing weight bearing pilates and exercises, and doctors will give me Zoledronate IV treatment every year, starting from March 2020. Should I do yoga, or do I have to lift weights at the gym (which I really hate)? What about walking?

1) Could someone pls advise me what kind of Vit K (1&2) I should be taking?

This is what I currently take daily:

2,200 ug K (1000 µg K1, 1000 ?g K2 (menaquinone-4), and 200 µg K2 (as menaquinone-7)

2) How do I check my vit K levels on my blood results?

My recent blood results
Parathyroid Hormone 36.85 (range 15-65)
Total Protein 76 (60-80)
Albumin 43 (35-50)
Calcium 2.31 (2.20-2.60)
Adjusted Calcium 2.33 (2.20-2.60)
B12 852 (1 197-771) i've lowered the dose (1,000 ug) from once a month to every other month
D 100 (75-200)

3) Can the osteoporosis be reversed? Was it due to the DS? my mom and grandmother also had some for of bone osteoporosis / osteopenia

My typical pattern is twice in the morning, about a half an hour apart. If I overdo it on fat, I could have 3. Have you developed lactose intolerance? Try avoiding milk and see if that helps. It can be in protein drinks, so check. Are you using a probiotic? Culturelle can help. I drink bottled water now, because I find I'm very susceptible to germs in City water, and that can give me the runs. Try eating a low fat breakfast and then only solid protein after that until 2 pm. If that works, you are eating too much fat. I do drink more liquids after 3 pm, but have 2 large cups of coffee in the morning. No mil****il after 5 pm, but yogurt and cheese are ok. I save most fat consumption for late afternoon and dinner. Nothing fatty after 8 pm. Bottom line, if what you are eating is so problematic, experiment with different foods and intake patterns. If you are still experiencing this many, see the doc. It's not normal.

What does a days menu look like for you?

Hi everyone

I am an RNY to DS. I was self financed. I have only lost 36 lbs total. And 30 of it was in the first 5 weeks. I haven't lost a single solitary pound since then. Nothing. Yes, lost some inches. But nothing else. I have uppped my protein, downed my protein, upped my carbs, downed my carbs. Upped my exercise, downed my exercise. Nothing. Today Doc pretty much is confounded as to why I haven't lost. Said maybe eat less. OK I am under 1000 calories and see the nutritionist. They may help. I asked about my loss expectation and he said maybe high 100's low 200's. Huh? I started at 269. That is it? Yeah, probably that is all you can expect at this point. Oh btw, my common channel (I can't remember the length he said, maybe 100?) which I did ask about. He said he made it "very aggressive" so he doesn't understand the lack of malabsorption. One bowel movement a day is a puzzle to him but no advice on how to change it? More fat, less fat? good fat? Nada. He is a very good surgeon and very reputable but I think he has never seen something like this. I am very upset and feel like I spent over 20k to lose about 70 lbs. I guess maybe I went into this with the wrong expecations. Maybe that is all I can hope for.

sorry for the long post. Just trying to see if there are any other revision folks out there with any similar stories. Thank GOODNESS for this site. I swear the folks here are more helpful than my NUT and doc at this point!