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dustycroy
on 5/1/19 11:44 pm
DS on 05/14/13
Topic: RE: Severely anemic, poor labs
Thank you so much..... for all the information..... so interesting

enlightened HW 372 SW 350 CW 185 GW 150 Lost 187 so far....

Tufer777
on 5/1/19 11:14 pm
Topic: RE: Gastro questions/B12 elevated/fatty liver/Calcium constipation

Normally I'm a naysayer too, but these results were in fact pretty right on. And it makes sense that I'm not able to absorb the B vitamins so there just sitting in my blood. It makes me wonder if the people who have elevated B12 on this board all have the very common gene polymorphism MTHFR mutation? Time will tell for sure once I start supplementing with what they suggest, if it makes my symptoms go away. But I'm not throwing the baby out with the bath water on Spectra Cell yet.

Sufia
A grateful DSer forever!
SW 223 CW 132 GW 117-125
PattyL
on 5/1/19 6:40 pm
Topic: RE: Gastro questions/B12 elevated/fatty liver/Calcium constipation

Do some research on Spectra Cell and their kind and you find pseudo science at best. A lot of people are paying a lot of money for this right now and I don't think it is even close to legitimate.

Tufer777
on 5/1/19 4:34 pm
Topic: RE: Gastro questions/B12 elevated/fatty liver/Calcium constipation

Thx for the help guys. I'm still pondering this high b12 thing. Read an interesting article on it. http://www.yourhealthbase.com/B12overload.htm

It's interesting because I went to a nutritionist who did blood work through a company called Spectra Cell that measures the amount of each vitamin/mineral is actually being absorbed by my cells. This report came back saying that I'm actually LOW in B12 & other B's incidentally which means that even though I've got Vit B12 floating around in my blood, it's not actually being absorbed. All this lead me to discover that I have the Mthfr gene mutation that doesn't allow my body to absorb B or folate in top of having our surgery- oy vay! Thought it may be useful to all of us to read the article at least.

Sufia
A grateful DSer forever!
SW 223 CW 132 GW 117-125
chevtow41
on 5/1/19 2:56 pm
DS on 11/11/14
Topic: RE: Gastro questions/B12 elevated/fatty liver/Calcium constipation

High B-12 isn't going to cause any harm. Stop taking any extra and you should be fine.

Are you eating enough fat to help with your constipation? If I get stopped up, it's because I'm not taking in enough fat. Also maybe some miralax daily would help

Janet P.
on 5/1/19 11:55 am
Topic: RE: Gastro questions/B12 elevated/fatty liver/Calcium constipation

I also have always had very high B12 - haven't taken it for years. I think my multi has a small amount.

Do you take any fiber? I add a scoop of really good organic fiber to my morning beverage to help keep things regular. I take massive amounts of calcium and have never had issues with constipation. Hope you find some relief.

Janet in Leesburg
DS 2/25/03
Hazem Elariny
-175

Janet P.
on 5/1/19 11:52 am
Topic: RE: Severely anemic, poor labs

I take 150K of Biotech D3 every day and it keeps my levels in the low normal range. Have been taking it for years with no side effects (that I know of).

Janet in Leesburg
DS 2/25/03
Hazem Elariny
-175

PattyL
on 4/30/19 7:35 pm
Topic: RE: Gastro questions/B12 elevated/fatty liver/Calcium constipation

Well hello there!

Lots of us have high B12. It's water soluble and the first thing to do is stop taking it. Get a multi with no B's and check all the rest of your pills too. Just for example Kirkland calcium is loaded with B6. Many of us had to stop taking it for that reason. B12 levels are a snapshot in time. Our bodies don't store B12 and you would need to be tested multiple times to be sure it's really high!

The liver thing. How was it diagnosed? High ALT/AST? If that's it, you may or may not have fatty liver. We metabolize a lot of fat every day and it's not that unusual to have high liver enzymes. But it should be followed up! I have heard about this happening to quite a few of us. One person was even put on a transplant list maybe 10 or so years ago. In the more than 20 years I have been around this community I only know of one person who died from liver failure and that would be right in sync with the normal population as a whole. Maybe even a little less.

Yes there is injectable calcium. I have never heard anything about it being used for deficiencies. Or instead of taking pills. Usually it's used for cardiac problems/muscle cramps, and sometimes insect bites.

Amy R.
on 4/30/19 6:19 pm
Topic: RE: Severely anemic, poor labs

Mine are dry. The ones from the pharmacy are oil, and they are usually D2. My D3's are over the counter and I buy them online.

We can't absorb the D2's from the pharmacy very well at all and they're basically worthless to us post op.

I'm taking Bio Tech brand, and the bottle says "D3-50, Cholecalciferol, Dietary Supplement". I paid around $30 plus shipping for 100 capsules and it lasts close to a year. Not sure if adding a link is ok in here but you can find the Bio Tech website easily if you Google it.

Hope this helps. Take care and good for you for getting on top of this now. It's critical, as you're discovering, but not every surgeon educates their patients sufficiently.

Tufer777
on 4/30/19 3:14 pm
Topic: Gastro questions/B12 elevated/fatty liver/Calcium constipation

Hey there. Doubt if any of my old buddies are still here. Had DS in 2005 and am having a few issues from malabsorption & nutritional deficiencies. Wondering if anybody has any of the following:

1. Calcium and no constipation? I'd be in heaven if they could fix this problem with a calcium infusion like they do have for iron deficiency (venofer)

2. I've got consistently high levels of B12

3. Recent fatty liver diagnosis. Haven't touched a drop of alcohol since 1986.

I'm going to see a Gastro and am trying to decipher what to ask them for? Never been before. Id love to see if they can give me anything either to inject or via IV. Has anybody every been given calcium thru IV?

Feeling brain ? fog ? & fatigue.

Thx for any suggestions.

Sufia
A grateful DSer forever!
SW 223 CW 132 GW 117-125
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