Okay, so I had RNY in 8/08.  I'm coming up on my 2 year mark.  I've lost about 155lbs.  I was down to around 225 but now am hovering around 230ish.  The regain is my fault.  I am not exercising and was eating a lot of CRAP.  So, this is not about weight.....

I take full responsibility for being my own health advocate. I do not remember anyone TELLING me that I could not take NSAIDS with a pouch. I didn't get on here until post-op.  This is also when I was advised I  could not have the NSAIDS.  I have LUPUS, FIBRO and have had two back surgeries---NSAIDS tended to be a part of my life.  But I'll take the blame for not doing my OWN research and trusting someone else to tell me the truth.  But then I was LIED to....

I have LUPUS.  At my pre-op class I gave them my list of meds INCLUDING my Lupus meds and they told me what I could and could not take post-op. They gave me the green light for all my LUPUS meds.  Dr.Cacucci was well aware of my LUPUS b/c we discussed it at length pre-op.  At my FIRST post-op visit I told her I was having some stomach problems with some of my pills.  She then informs me that they are commonly known to cause ulcerations in pouches and tells me it is best if I come off of one of them (most likely to cause the ulceration).  WHAT? ????  

Now we are 2 years down the road.  I've not taken the medicatin she told me not to.  I have not taken a single NSAID and I have suffered b/c of both.  I have a lot of physical pain and inflammation that was being controlled before by these medications.  My labs for my LUPUS are bad and my Rheumy wants me back on the meds...and I'm afraid to take them.  I would like to kick the surgeon in the head but find that probably would not help much.  So, I've seriously been considering a revision.  I just my "stomach" to be more normal.  I was thinking they might be able to undo the pouch and just give me the sleeve.  This way I could take my meds and regain my pyloric valve....man, I miss that thing.  

Does anyone know if Dr. Innman handles all the revisions.  I must be honest.  I've been having some complications lately and have found Dr. Cacucci's attitude to be just as LOVELY as always and frankly, I no longer trust her.  I trust her ability as a surgeon but not the information she gives me and I am tired of her damn attitude, frankly.  

I just had a scope and we had issues.  Then I asked her if my pouch was stretched out and she said "Yes."  Then I get home and look a the paper work and it says that my pouch looked normal and my capacity was 6-8oz which is what I thought we were suppose to be at at 2 years out?  

Any thoughts or advice would be appreciated.  Thanks!

I don't know who Dr. Gomez is.  However, there is a new PA to replace the old NP.  Obviously, these would not be the same as Dr. Gomez b/c a PA doesn't use the Dr.   The PA is replacing the old NP that we see for follow-ups after so many months out.  I have an appt with the PA in August.  I'll post when I meet this person.

Wish I had gone, but with my heel the way it is.  I gave my ticket up once again and our son took my place this year.

Hugs

Peggy

Thanks for the prayers, I would have been off 2-3 months if I did not have a sit down job.  My doctor wants me to take off the first 3 weeks since I am not to put any pressure on that foot, then as long as everything is healing right then I can go back to work. Mine is starting to push out, look like I have a large bump on the heal.

Linda I will keep you in my prayers to, I know how mine feels, and it is VERY PAINFUL. 

Hugs
 
Peggy

Going to be working a food booth for Terre Haute North Vigo High School tomorrow "ALL DAY" at the race. This is out 2nd year and 3rd race working (2nd Indy Race this year). I am afraid that it is going to be much hotter tomorrow than it was in May at the 500. So, Stop by and say hi or buy some food and drinks to support the marching band students!! We are working the grill even and I will be the one with a red bandana on my head to keep the hair and sweat out of my eyes. Man, it is rough work but fun and really rewarding. Especially to see how hard the kids work.
Have a great weekend everyone!!