UPDATE!!! on our SDC trip today!!!!!



Britt, you are such an encouragement to me this evening! I'm on my 6th day of liquid diet, (21 more to go) and at the phase "why am I doing this to myself!'.....So you post was just a God-send to me.
I am soooo proud for you. And lets not forget your DH too, it must have been as awesome day for him to have someone to ride the rides with!
Thanks for your post- it was prefect timing for me....
Brenda
The liquid diet is getting harder! Last night I drained some chicken and rice soup and drank the broth...oh man it was sooo good- I slept like a baby with something hot in my belly.
I am self-imposing the extra 2 weeks of a liquid diet. It's a long medical story...too long to type out... To try and make it simple..... I have a problem with my lymphatic system. The extra liquid diet days will just help me to lower the manufacture of lymph fluid in my body down to a healthy bare minimum. Everytime a person eats, we manufacture lymph fluid (called chyle). My body makes too much of it. So the liquid diet for a month should really help me with less post surgery complications. All this goes with the rare disease called LAM that I have. Also, I need to get my blood sugars under better control, they have been high (250-300's) for the past year. Going into surgery with lower numbers will really benefit my healing. Plus try and loose at least 10 pounds... I need to start exercising. I just hate exercising.... Always have.
I chewed a B complex pill yesterday that was chewable. Oh man- I'll never do that again! I've got to go get some liquid or something. I thought my teeth were going to curl backwards!
I'm glad my stomach has calmed down...that was tough for a bout a week. I finally figured out it was taking all the medicines together, now I spilt them up to get them all in. Plus, I take the diabetes meds. with a protein bar.
Thanks for asking about me, living with LAM is not easy. Only women get this lung disease. It first presents as shortness of breath or that ‘panic attack’ feeling. There are less that 1,500 women in the WORLD with this, but they think there are thousands more because it is easy to mis-diagnose it as asthma or COPD or chronic bronchitis and other common lung diseases. LAM can’t be seen on x-rays, but a high resolution CT will show it. I not only have LAM cells in my chest, but the cells have also damaged my lymphatic system. . There is no treatment, and no cure. LAM often leads to lung transplant. All this to say, it is good for me to get my weight down to a healthy number for a host of reasons. LAM stands for Lymphangioleiomyomatosis. Can you pronounce that? Ha! www.thelamfoundation.org (thousands of TSC women have mild LAM, but I don’t have TSC, I have the rare sporatic form of LAM)Didn't mean to talk your ear off this morning! Brenda
How exciting!!! I am so glad you enjoyed yourself so much, you can see the excitement in your post. How neat to be able to meet one of your goals. One of mine is to be able to go horseback riding. Once .....just once it seems so fun and I've never been able to do it. It's a long ways away but I keep it in my mind. great job!! Charlene
The Lord is my rock, and my fortress and my deliverer, My God, my rock, in whom I take refuge. Ps 18:2
Britt I am SO glad you had such fun!!! My family LOVES SDC...and even as big as I am right now, I love the cave...just hate the humidity. We are season pass holders with 2 & 4 year old boys, so we go there A LOT! I can't believe you did thunderation...maybe once I am post-op I'll be able to do that too :) (8 days and counting til knife day)
It would be great it if we could get some folks with kids together to have a kid's day. Being season pass holders, I have a couple of passes (3 I think) to get people in for $10 during the kid's Fest. Best time to go is mid-week when it first opens. We are like SO local and have learned the best days to avoid tourists lol. If you would like to get together and do this, just let me know.My surgery is the 15th, so, I am looking forward to being post-op and being on "semi-normal" foods by the time Kid's Fest rolls around. Again congrats on a great time!!! Amy
The Lord is my rock, and my fortress and my deliverer, My God, my rock, in whom I take refuge. Ps 18:2