Tuesday morning....

Good morning everyone! Well..got all the plumbing taken care of. Now I'm just trying to get the carpet around the toilet to dry out completely so I can de-oderize & clean it. It should be ok within a few days I would think.  Yesterday was a very frustrating day in our household, medically speaking. First, Bill FINALLY call the call from Dr. Price's surgery center and they changed his surgery to Thursday. That was aggrevating because we had initially had doctor appointments for today and had asked them last week if the surgery could be on Thursday instead and were told a flat out 'no'.  It's a little different though when it's them that wants to change the day though! Our doctor was a sweetheart when she heard about Bill's surgery and got us in last Thursday instead.  And then there's me. Dr. Greist's PA called last night (~6) and told me that my white count (from the bloodwork Saturday) was down to 2.6 AGAIN! So..Dr. Greist wanted to do a test on my bone marrow!!! Since Hope has been keeping me up on Peter's condition, I know that this is a VERY 'uncomfortable' test (ie, PAINFULL!). I also know that my body reacted this way to coumadin and I was the first person they knew of who it happened to...so why not to the Arixtra too? They are both blood thinners. So I suggested me doing without it and see if it goes back up. "Oh, Anne wouldn't go for that!" Shoot, doesn't Sherri have a say in this??? Why should I have a painful test done when all they have to do is let me do without this daily shot for a week and see if the wbc's go back up??? I don't know how long it takes to get the Axistra out of your system completely...it takes 10 days for coumadin but I would think that it should be gone sufficiently by Monday so I can still have my surgery. She finally agreed to me not doing my shot until she calls me back today. I've got news for them, I'm not the kind of person to get star-struck and agree to what-ever they say just because they have 'MD' and several other letters after their name. And you know the heck of it is? They were only going to have me on Arixtra/coumadin after this surgery for ~ a month or until my WBC decreased anyway! I know they are concerned about blood clots, so why not just do the scan to see if the clots from October are gone or not? If they are, why should I remain on this stuff anyway??? So...Bill's surgery was delayed 2 days...and mine? Well, if I can help it, it WILL still be on Monday!!! I'll keep you guys filled in of course. Have a good day, and pray for a good outcome today for me..ok? Sherri

Good morning all! Just waiting to see what this weather is going to bring today.  They are saying about 3 more inches today and blowing.  What fell last night was very wet snow.  Talk about a heck of a drive.  I was throwing slush up over my car that is how messy it was. I just read on the clothing exchange thread and I am going to try my best to make it. I want to meet everyone.  Is it ok to bring my kids with me?  I didnt know if people did or not.  What side of Indy is this clothing exchange on? I wrote the address down, but  havent mapquested it yet.  Sherri Your surgery came up fast. I didnt realize it was happening next week already.  You would think the doc would try the less invasive stuff first. That doesnt make sense.  Hope all goes well for you and hope all goes well for Bill's surgery.  Good luck today!

Jenny, The clothing exchange is on the west side of town. I'm going to have to mapquest it too..lol. It is fine to bring kids with you. All we ask is that people remind their kids that it's 'inside behaivor and inside voice' time since we have some people who come that it wouldn't be good if a kid ran in to them (like me & my belly, my hubby with him being visually impaired, or Gail who has been having a problem with falling down). I'm looking forward to meeting you! Sherri

Oh my kids are 13 & 14 and shy. They wont go up to anyone and talk to them unless someone talks to them.  They would be right at my side the whole time...lol! 

Morning all.  Not much going on here today. Just a few calls to make in regards to the upcoming Relay for Life events that I am working on.  If anyone has any ideas or suggestions for donations, please let me know.  Our local area is so small that we are really unable to get many donations for the events.  If I were able to, I would just make all the purchases myself, but I haven't hit the lottery, so that is out of the question!  Anything is greatly appreciated.........and I do mean ANYTHING! lol  We are having a dance for ages 6-12 years old next Friday, and talk about get things ready for that! It is like pulling teeth from a buffalo!   Enough rambling on.....hope everyone has a great day today.  Sherri, hang in there. You have the right to put your foot down and make a stand for what your body feels like it can tolerate.  I agree with you. Just because they have MD or any other letters behind their names, it doesn't mean they are the "Almighty One"........they are only human too, and can and do make mistakes.  Let them know your feelings, and if they aren't happy with your choice, you can always tell them that you will find another surgeon.  That usually will scare them enough to back down. Gotta run. Have a great day!

Good Morning!   I finally feel like I'm back with the living.  I've had the flu for the last THREE weeks.  I had my flu shot but found out that the shot they gave everyone this year is not for the strain of flu that is going around.  I feel like I've been near death more than a few times in the last 3 weeks.  Not only the congestion but the aches and pains along with the WORST headache ever.  I told Darrell that I think the recent rash of murder-suicides that have happened were because both spouses got the flu at the same time.  There were a couple of days there when I wished someone would just shoot me and put me out of my misery. But yesterday, it was like someone flipped a switch and I feel altogether like myself again. WATCH OUT WORLD, I'm back!

Good Morning All Yesterday I visited my chemo doc. Got my schedule. Looks like Mondays for the next six week are gonna be my big days. 6+ hours at the Cancer Inst. in Lebanon for chemo and radiation. Then the rest of the week is just 2+ hrs of radiation. Weekends off. All for the next six weeks. Then after that I just have radiation once a week for three weeks at St V's in Indy. My chemo doc said she seriously doubts I'd loose any of the hair on my head because of the chemo because the dosage will be extremly low. I will however be nauseated (extremly) and could develop a rash on the arm the are putting the chemo IV in. WOW! I know I wanted this to get going so I could go back to living but now that it's here and happening it's seeming a little overwhelming. Infact this whole past year is starting to feel slightly overwhelming with everything that has happened in it. I may just have to go back to counseling and deal with this past year appropriately so it doesn't come back to haunt me later. March 4th I'm mailing out the beginings of my wedding announcements. We have wedding decorations being bought and let me tell you, it's making me excited as heck. My life has been so much better since meeting Matt and I just can't wait to marry him. He is just such a wounderful man. Anyways - hope everyone is careful on the roads today. Stay safe. Stay warm. Enjoy your day. Jodi

Bless you and you will be a champion and in control of this process.   E

Hi Everyone.  Just wanted to jump on and say hello.  Sherri,  I hope you wbc goes back up and they can take you off of the blood thinners. Jodi,  I am really looking forward to seeing you again Saturday.  I just have to say that you and Sherri are my heros right now.  You both are facing medical issues that would bow so many and yet you both keep marching along to your own band.  I want to be like you when I grow up (that is, of course, assuming I ever do! ).   Jenny, my kids are going to be at the dinner on Saturday and probably at the exchange.  I'll be sure to introduce my son (13) so your kids will have someone to talk to.  He really enjoys meeting the other kids his age ( like Jodi's Gage and Dawn's Markie), so I'm sure he'll enjoy meeting your kids too. I'm looking forward to seeing everyone Saturday and hope you all have a good rest of your day.

Cindy, Thanks. We just do what we gotta do..you know? Here's the latest on us... For Bill:  Dr. Price's office called back 3 times. His surgery has now been changed to tomorrow. Each call was to change the time of it. First, he was to be there at 7, then 10, and the latest call 9. At any rate, it is tomorrow. For me, I'm to stay off the Arixtra and have the cbc done again on Thursday. If it is low on that day, the hemophilia center is going to have me get an injection that they usually give to chemo patients to get the white count built up in time for the surgery Monday. In addition to that, they are setting it up for me to get a CT done of my lung & leg to be sure the clots are gone. While they are doing that, they are to also scan my abdomon, etc to be sure my spleen isn't having anything to do with these whacky white counts. I don't know when that will be done yet..but they are trying to get it so that they can have the results back before the end of the day of Friday. They are going to try to schedule it through Community East since it's the closest but I told them to go ahead and do it through St. Vincent's if it will get it done quicker. At any rate, the surgery should definitely be on for Monday. No telling what it's going to take to make it happen or what will happen after that, but at least it sounds like it WILL take place. This day is turning out very interesting! Sherri ps..I made taco soup for lunch...very tasty! I'm making seafood enchilada's for dinner. YUMMY!