FYI- my brain diagnosis/etc.

Ellenchanged
on 8/3/08 11:18 am - Thorntown, IN
Dear Ones, 
   I have recieved several pm's about what is going on with my health, so instead of answering each one, I thought I'd post on here.I really believe "ALL things are meant for good for those who love the Lord & live according to HIS purpose"; I CAN do ALL things, thru Christ, who gives me the strength"; & ALL things are POSSIBLE with God". I claim therse scriptures everyday. Today, I have inner strength, and a calmness about my health. I don't believe for a minute that God has inflicted me, abandoned me, nor wants me to suffer. Those are lies from hell, & I refuse to believe them!!!! 
 YEP, the meds. will definately help- as well as getting thru all of the side effects from the dye they had to use~~even tho I did preventative meds. I still have hives! For those of you who wonder, this is something that I/we have had to deal with for 5+ yrs. and didn't have a definitave diagnosis. I am so grateful for my new Neurologist. (The old one moved to another business practice & didn't notify ANY of his patients~ or leave a forwarding address,etc. My new one is flying blind because he doesn't have any of my records!!!) It hits hard when I am extremely tired, stressed, ill or under pressure- then my blood pressure skyrockets setting off the migranes & more, & then bam- just like being slammed by a sledgehammer in the head.
  I just didn't share much about it, but those close to me have seen it in the works & know how I am.( Blurred vision, blank stares, violent headaches, unable to concentrate, rambling on & on, not knowing what I am repeating over & over, anxious/excitable,& over medicated, to the point I am double/triple dosing myself cause I can't remember I already took meds!
   God BLESS my dear family, they have gone thru some horribly rough ,rocky times with me~to the point of almost hospitalizing me in a stress center or up to Mayo to see what needs to be done. Having gone off 14 meds since Bariatric surgery, we are being EXTREMELY cautious with what meds. I go on, & how much/often.I WILL NOT become addicted to pain meds. again or over perscribed /mis-diagnosed, as my other Neurologist did!
   Again, I thank you all for your support ,love & prayers- you all are
the BEST & I love ya!!!
  (((BIG HUGS)))
   
Ellen
starting wgt. 271#/178/ goal-155#  Loving God,family,friends & life!!!
ENDURE, BELIEVE & NEVER GIVE UP! WITH GOD ON OUR SIDE, ANYTHING IS POSSIBLE!!!
imonmyway
on 8/3/08 12:37 pm - Indianapolis, IN
Ellen,

I am holding you in my hugz and saying lots of prayers for you and your family! I am happy to hear that you are keeping the faith and marching forward! You are a trooper! I love ya! I miss ya! Hope all is going to better each day and that the meds are going to bring you some much needed relief! You are a wonderful person/friend/mentor I wish you the very best! Please know that I think of you often and will be continuing to wish you the best! Hugz Dawn

         
              I  MY RNY!!!
               334/178/167

snowy_mitch
on 8/3/08 2:53 pm - Kempton, IN
Ellen,
 I just wanted you to know how very concerned I am. I did not realize this was going on. I hope that the meds are and will continue to work. Boy even I can't imagine the pain you must have endured!
 I may have to go see a neurologist soon about some spells I am having could you tell me who your new one is? If you could I would apprciate it! Thanks Michelle
(deactivated member)
on 8/3/08 3:14 pm - Terre Haute, IN
Ellen, you have such a beautiful faith, you continue to inspire me.
Gail O.
on 8/3/08 6:14 pm - indianapolis, IN
Dear Ellen,
I too have you in my heart and prayers. You are such a special person, and I know God will get you though. I have blessings and prayers for, you & your family. I can't wait to see you. I love you, Hugs & More Hugs, Gail

  Believe ! Each and Every Day.
301 pounds lost since RNY 10/26/06 
  
Visit me @ www.MySpace.com/gail7616
                                                            
 

Amy H.
on 8/3/08 10:34 pm - Kokomo, IN
Ellen,

Those Scripture verses are the light, aren't they? HUGS your way....I cannot imagine all you and your family have been through over the past five years, and am so thrilled that you have found a doctor who is responsive, proactive, and ready to get you treated properly!

Sending lots of hugs, prayers and positive thoughts your way....
Amy

Highest/Day of Surgery/Current (8/15/09)/Goal (mine)
262/240/150/145ish

Linda Kay
on 8/3/08 10:43 pm - Mooresville, IN
Good Girl!! Sounds like you have the 3 most important things to combat these headaches.. GOD, A new Dr and ATTITUDE!!  A great attitude will help you thru the most difficult times...

Linda Kay
Brenda R.
on 8/4/08 12:29 am - Portage, IN

Ellen, you are the living proof that with God all things are possible. Just keep your faith, which I know you will and you and your family will get through this. My prayers continue for you all and also for the doctor. I know that God will not desert you now. He hasn't so far and He will continue to walk with you through this turmoil. I know that everything that I am saying you already know. But sometimes we need reinforcements.

I too went through a trial with a doctor. I was almost dead from one and finally he sent in the heart doctor who verified just what I thought. I was within weeks of dying. The reason why the incompetent doctor waited for 9 months and to the point that I was within a short time of death? He was just getting so much money from my insurance company and when he had me in the hospital 6 times in 9 months he was getting it too. I had reached my $1500 out of pocket expense and so the insurance company was paying him 100% and never questioned anything at all. It was through this experience that I have become my own advocate and ask many questions of every doctor that I have. I figure if they can't take the questions then do I really want them to be my medical provider? I think not. I too have walked some of the path that you are. I do understand the frustration that you have experienced. Just remember that I love you and pray for you always. You are a important person in my life and my journey through it. Know that I am here for you even if it is just to listen and not judge.

                    It's not what you gather, but what you scatter 
                        that tells what kind of life you have lived.

                          oh_c_card-2.gif picture by kittikat22


 

Cindy P.
on 8/4/08 3:29 am - Indianapolis, IN
Hi Ellen,

I haven't talked to you in a while and didn't realize that you have been waging such a battle all this time.  I just wanted you to know that I am keeping you in my thoughts and I look forward to seeing you this weekend.
Cindy

sprat
on 8/4/08 5:01 am - Rockport, IN
Ellen,

I am so sorry you are going through all of this.  I had no earthly idea!  I get so self absorbed that I totally zone out sometimes.  I'm sorry I haven't been here for you more.  I hope you know how very special you are to me and that I will cover you in prayers.  I know God hears and answers prayers and it sounds like He is with you through this.  Just want you to know there will be more storming of heaven on your behalf.

Know I love you so very much.

Smooches from your former Elf,
Jacqui
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