I found you again!!

My computer died last month for about 3 weeks. I've been back online for about 1 week. It has taken me the last week to figure out how to get back to this page. I've got it bookmarked again. The last month or two has been rather trying. I'm doing my best to tred above the water. I worked for a short time at Lenscrafters. I did love my job there and helping others pick out glasses. I mean...I got to go shopping everyday and didn't have to pay for it. However, the management really was poor. The manager wasn't the most supportive or actually very nice about me taking time off when I was in the hospital for a week last month. And when I came back to work - 2 days after I got out of e hospital and told her I could only work 4 hr shifts she was okay wit it. Then - scheduled me for 8 hr shifts. Just didn't go well. So...when I went to an interview for a part time job and mentioned that I was also interested not only in teaching but in an office/clerical position - the guy laughed and said "give me some time". Well, an hour later he called me in for a 2nd interview for an office position. He had went and 'talked' to his office person and well she no longer worked for him after their conversation. I'm the Client Services Coordinator for a swimming school. Right now I have a hole in the wall closet for an office at the Baymont Hotel. However, in about 6-8 months I will get a much nicer office when our new building is built. It is a very fast growing company. I started hemo-dialysis 2 weeks ago. The first week went well w/no side affects. This week I wish I could say the same. I have 6 more weeks of transfusions. In 2-3 weeks I meet w/a new OBGYN and hopefully she will be supportive of a hysterectomy. The hemotologist and my internal med docs both agree that this dr. will be supportive of the idea. The hope is that by the time I'm done w/the dialysis my iron count will be high enough for surgery. Then after I have the surgery I may go threw another course of treatment to give me another boost. We will see what happens. Linda - sorry I was in the hospital and my puter died on me when it was your time around!! I had EVERY intention on getting your phone number and checking in on you!! Hope you are doing good know. Love, Gala

I feel kind of stupid. On my paperwork from the clinic it says "hemo-dialysis"....I just looked it up on line and that is NOT what I've been getting. UGH. So either the chick gave me the wrong "info" sheet or I'm really confused. Regardless the side affects on the sheet and what I found online go hand in hand on what I felt this last week. The dr. called it iron transfusion. And gave me the amount that I was getting. I just did some online research. What I'm getting for dose is rather high according to what I've just read. Interesting. Anyway - the goal is to bring my ferratin, hemoglobin and one other "iron" related numbers up to normal or much closer to normal than what they are. Gala

No problem Gala, I forget to check this board everyday myself. I am doing fine, just experimenting with what I can eat and what I can't. At this point if it doesn't set well after two bites, it goes in the garbage. I absolutely refuse to be a human garbage dispossal at this point in my life. Better to waste the food, than strugle to put it inside of me. Your swimming office job sounds like a fun deal for you. So glad you stumbled into something thats fun. Linda Woods

Gala, I think you could write a book about struggles and triumphs. I read something the other week that I really liked. Think about exercise - No Pain, No Gain. Compare that now to faith. No trials, no gain. In other words - No Pain (or challenges in our lives) - No Gain (spiritual gain). Hang in there. I'm glad that you were saying the wrong words because when you were talking about dialysis I began to think that you were having kidney failure. I went to my PCP *****ferred me to an OB GYN because I was bleeding about 20 days out of the month. I asked about a hysterectomy. The first thing the OB GYN guy did was remove my IUD. That has cleared up the problem tremendously. Although I don't relish having surgery, I was kind of disappointed that I wasn't going to get a hysterectomy. I won't be having anymore children (I'm 46 years old) and the thought of not having to go through menses everymonth was quite appealing. Oh well, doctors know best (at least we hope they do). Good luck on your new job, Melody

Before we moved back to the Madison area I saw another OB in Dodgeville and she wouldn't do an IUD because my iron was on the low end and since I had problems to begin with with bleeding she didn't think it would be a good idea. Then when I saw my previous OBGYN that I had for my kids who is a specialist/surgeon he wouldn't even entertain the thought of a hysterectomy and told me that an IUD would be a good thing. I'm not stupid and I'm not going to take that "very low chance" that it would help the bleeding. When deep down I know that it could make things much worse. My appt. is Sept 8th and it can't come soon enough. The infusions are not getting easier. I thouhgt it would get better. But each time there are more side affects. So hopefully we can get this under control soon. Tonight I came home and went to bed and slept for a few hours. And still pretty tired. The tornado sirens are going off again. So I think I'm gonna turn this thing down and check out the news. Take Care, Gala