I am Broken: An Editted Cross Post from Local Support Group

moniquesgettingft
on 5/5/13 10:05 am - Scarborough Ontario, Canada
I feel so sorry you have to go through this. I really hope there is some help coming your way soon.
Gentle hugs, Monique
starfish52
on 5/5/13 10:20 am - Canada

The care at  some hospitals are brutal.....where are you?

OKNEE FE + 3
on 5/5/13 10:49 am
Humber HILTON

Oknee's just gotta dance
Weight at the start of Optifast 378 T-1 OR Weight 352
Broke the 300 pound Barrier 13-Dec-2009 291.2lbs 01-APR-11 "onederland"
HGBA1C 5.2  d/c from the care of  my Endocrinolgist 09-JUL-10 "diabetes resolved"
10-MAR-11 Extreme Sleep Apnea (dx 2007) resolved-"b-bye CPAP won't miss ya"

HAVE A QUESTION ABOUT IRON AND/OR http://theironmaiden.ca/                

1greeneyedgirl
on 5/5/13 10:24 am - Barrie, Ontario, Canada

I'm trying to understand this post. 

Can you say what has happened and what you wanted to be done?  Why does the doctor say he cannot make you better?    I'm so sorry there is a problem, but is there any more information so we can better understand.

I'm really sorry to hear staff are not being very kind and the pain medication needed is not coming quickly enough and you are feeling so ill.   

Someone has to help.  Don't give up.

Cathy xo

Orientation: Feb 2013, Surgeon, Nurse, Dietician: June 2013, Dr. Glazier: April 2013, Surgeon: Dr. John Hagen, June 2013, PATTS: August 2013, Optifast: August 2013, Surgery: HRRH Sept. 5, 2013

.20011726

OKNEE FE + 3
on 5/5/13 10:46 am, edited 5/5/13 5:43 pm

Sorry I can't cut and paste on my phone. . .please see my post from February 03, 2013. "breaking the silence"



additional information to that thread I saw a physician at a tertiary care centre (Mt Sinai) I sat there while he dictated his note that what is needed is an open procedure in which every piece if scar tissue and every adhesion is pedaled away from the small intestine and a temporary, likely permanent ileostomy done.



It is going to be a very long tedious procedure because my small bowel is extremely fragile and I have very limited bowel left (

Oknee's just gotta dance
Weight at the start of Optifast 378 T-1 OR Weight 352
Broke the 300 pound Barrier 13-Dec-2009 291.2lbs 01-APR-11 "onederland"
HGBA1C 5.2  d/c from the care of  my Endocrinolgist 09-JUL-10 "diabetes resolved"
10-MAR-11 Extreme Sleep Apnea (dx 2007) resolved-"b-bye CPAP won't miss ya"

HAVE A QUESTION ABOUT IRON AND/OR http://theironmaiden.ca/                

1greeneyedgirl
on 5/5/13 11:30 am - Barrie, Ontario, Canada

Hi Leona,

I did go back and read your post from a couple months ago.  I understand so much better now and I am really sorry to hear that these brilliant minds haven't made a decision yet on what to do next to help you.  I really hope something is done very soon.  Nobody should have to go this amount of time suffering like this.  Those nurses should not be nurses at all if they cannot be kind and understanding when they have a patient that has experienced so much difficulty.  I'm sure everyone here is just praying for you and that something has to be done a.s.a.p. 

Stay strong, I'm sure this situation will get better.  I'm still fairly new here but I will be thinking about you like everyone else here.

It sounds like something will be done soon because they have to.

Cathy xo

Orientation: Feb 2013, Surgeon, Nurse, Dietician: June 2013, Dr. Glazier: April 2013, Surgeon: Dr. John Hagen, June 2013, PATTS: August 2013, Optifast: August 2013, Surgery: HRRH Sept. 5, 2013

.20011726

Joanne D.
on 5/5/13 10:27 am - Canada

My heart goes out to you.....you have been through so much! I will keep you in my prayers. Stay strong!

Joanne

      

referral from GP July 2012     Orientation October 2012  SW initial Dec 2012   Nurse Prac. Dec 2012   Nutrition Initial Jan 2012  Nutrition Jan 2012      Psycho social Jan 2013    Meeting with Surgeon Feb 22 2013     Surgery May 2nd ( Dr. Jackson TWH)

    

momof4beautifulgirls
on 5/5/13 10:39 am - Canada

I am so sorry to hear about the struggles you are experiencing.  It must be so frustrating to have to be constantly fighting, just to have your basic needs met.  You seem to be an awesome advocate for yourself, stay strong.

gardeninggal
on 5/5/13 10:43 am - Midland, Canada

My hands want to strangle the 'care' that you are not getting....my heart wants to hug you,  and my brain wants to tell you that you are reaching out in the best way you can.. You are your best nurse, you are smarter than the average bear.

    

  

        

    

    

    

    

    

OKNEE FE + 3
on 5/5/13 10:50 am
On May 5, 2013 at 5:43 PM Pacific Time, gardeninggal wrote:

My hands want to strangle the 'care' that you are not getting....my heart wants to hug you,  and my brain wants to tell you that you are reaching out in the best way you can.. You are your best nurse, you are smarter than the average bear.

thanks

Oknee's just gotta dance
Weight at the start of Optifast 378 T-1 OR Weight 352
Broke the 300 pound Barrier 13-Dec-2009 291.2lbs 01-APR-11 "onederland"
HGBA1C 5.2  d/c from the care of  my Endocrinolgist 09-JUL-10 "diabetes resolved"
10-MAR-11 Extreme Sleep Apnea (dx 2007) resolved-"b-bye CPAP won't miss ya"

HAVE A QUESTION ABOUT IRON AND/OR http://theironmaiden.ca/                

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