Winniepootoo’s Posts
Hi all.... I need help because I'm really scared.... I had my surgery June 19 2017, was readmitted 2 times due to complications with my 2nd stomach....for a year and a half after my gastric bypass I foamed and threw up every meal... all they said Is go back to your original food plan... ie liquid diet.... my surgeon left to be an orthopedic surgeon in Cali a few months later...... The new surgeon I was assigned to has been so rude and nasty and I don't understand how so many people like him because my experience with him has been so confrontational..... his name is Dr Texiera..... during 2018 I had to get infusions for iron which went very well.... then that Dr left the practice and the other hematologist was horrible which started to make me feel these drs didn't care about my concerns because I was a black woman.... so I just didn't go back to Him either..... I have been lethargic low energy and not well this entire time after my surgery...... But I have been under severe emotional stress the last 9 months...in Jan I got a test showing my iron reserve was almost to zero so I got an iron infusion.... I had sever chest pains and went to the ER.... they said it's stress ... however I went back to the hematologist for my next iron infusion and he said he wouldn't give it to me because he believes I'm bleeding internally somewhere..... I then went back to Dr Texiera and we had a huge argument he was talking over me just saying what he wants without actually listening and I had to respectfully put him in his place and he pushed for and endoscopy from Dr Ivanina who I really like...... My results are a clean ulcer and an fistula next to the staples and an uneven suture line.... I am SCARED beyond belief,... In reading about this It can be a lot of reasons, however for me to have surgery, I do not want Dr Texiera inside me.... he gives me no confidence he cares about me or my well being.... I need a good surgeon and idk where To find 1 in NYC where the hospital treats you well and the Drs listen to what you actually say.... Being an American Black Woman when drs don't listen is a terrible feeling .... especially when you have to entrust your life to them literally... I am so nervous IDK WHAT TO DO.... How do I find a good Dr that knows about this kind of issue and has success with it in the past? Does anyone know of Another Gastric Dr In nyc that is great ? Any help is welcomed
I am about to do another round of tests so ill check back if there is any improvement... trying to find a better iron that doesnt constipate so much I have a hematologist appt in nov too
Thank you so much for replying... I am going to be going to a neurologist, however It was immediately after I woke up that night when I walked I felt the difference and i know it has to do with anesthesia and the allergic reaction to all the narcotics they gave me...
here is my b12 and irom
Order: VitaminB12
Vitamin B12 10/11/2017 >2000 pg/mL 243-894 Northwell Hea
IronTIBCPanel
% Saturation, Iron
Unbound Iron Binding Capacity Iron Binding Capacity Total Iron, Serum
Value Units Range
10.00 % 14-50 316.00 ug/dL 110-370 351.00 ug/dL 220-430 35.00 ug/dL 30-160
it was way too high so they told me to do it once a week... to take the liquid b12
Hi everyone thank you for getting back to me... My labs are ok, I was low in iron and i raised it, my red or white cell count is a bit strange and I am taking thiamine in addition tro my vitamins and meds. I told Dr. wong he said it would pass and so did my pcp... 4 months out it hasn't... However I have had numerous complications and severe allergic reactions to narcotics in the hospital and out. I will be seeing Dr. wong next week... Thank You for your replies .
:)
Hi everyone. Since my surgery june 19 2017 my eye sight and memory have been going downhill. I believe I now have Postoperative cognitive dysfunction (POCD)... My PCP said it was my diabetes however my a1c never went above 6.7 until surgery because they gave me steroids 3 times with my complications. My finger stick test hasn't been above 86 since august... My recall for information is way off, and I strain to remember things... My eye sight is strained as well. and I believe I need glasses full time... Has anyone had this experience? It is wreaking havoc on my ability to function daily...
Thank you all
Thank you Kathy... this too shall pass because no weapon forged against me shall prosper...
Surrounding you with love, light and healing energy. Hope you are back home healing soon!
btw Kat I still get gas every time I swallow, I think a straw might help and I will try it this week... Thanks!
Hydration is my #1 Job ... thank you Scott
Thank you Pinyee, things got to a bad place so I not allowing myself to move as fast as I want to... My patience is getting better after this last stint in the hospital.
Hi Kathy it is interesting you said that, I love ice but i find it cramps me sometimes... the warm food feels good but im nervous since my wounds haven't healed inside yet to continue so i usually let it cool for a bit first. I do continually eat the shaved ice it feels good and I wont have a reaction so I eat it all the time now.
Thank You Slightly... Listening and slowing it down even more is the rule for me now... It literally takes me and hour to hour and a half to eat my meals yogurt apple sauce oatmeal protein shake whatever it is... I have to make sure there is not anything disturbing my insides... when all is clear I can take a few more bites (slurps lol ) and its usually good. My surgeon told me to start taking the diuretic again however I declined because I could feel I was dehydrated... so every few days I take 1 turmeric pill to help with inflammation and excess water... as long as I am keeping up with my fluid intake.
Thank you... I have had sever constipation and the pains are still rough but not as bad as this last time I was in the hospital... been back there 3 times since the operation 3 weeks ago... I have decided to count the 64oz separate from my meals because the dehydration causes so many issues.... I also incorporate the probiotics now which help a lot. Thank you for your encouragement and I give it right back to you... as they say... "this too shall pass..." Good luck and hang in there! xo
Hi Again Everyone.... Sorry for getting back after so long, I have been having some serious complications. I had been having for days disturbances (In the Force I like to say).... and I dry heaved a couple of times... However nothing as bad as when I ate egg salad and salmon too early... I mushed it up really good but the salmon was too dry, and I was extremely dehydrated .... Long story short. I had sever pain as though someone was stabbing me, then projectile vomiting to the point I was dry heaving almost 2 hours... I lost consciousness 2 Xs so they admitted me. After my cat scan, they told me the connections where my old stomach is connected to was inflamed all around it as well as the new connection to my new pouch! ..... The food became lodged somehow in the tube going up to my old stomach which felt like burning and knives.... The pain was unimaginable not to mention was stuck full of holes 60 times I am filled with black and blues and I am back at square 1. sof****ery puree and liquids. I am taking longer to heal and I have had to slow it down even further. I am not losing weight even though my daily calories don't go over 800... I range from 400 to 800... I still have water build up in my body.... With All that said I am Grateful to be alive!... The only thing I care about right now is healing and getting better. I felt like I was going to die ( first time I said that out loud ).... I wondered whether I did the right thing. I had no idea these were the possible complications.... and it is my job to make sure I drink 64oz a day minimum and have protein if I can. I meet with my PCP tomorrow to change my BP meds and to get something to help my potassium levels since they are below the minimum. .... Again this is my update I appreciate everyone that posted ... I am appreciative of the hospital, they and the surgeons treated me very well and were very cautious to make sure I was good before I left.
I am not complaining, I am Explaining what has been going on... It is difficult to talk out what I feel since it is so much , however I am doing my best not to let fear run me again.... I have been going through not wanting to try new things for (fear ) this might happen again... But instead... I Declare I will be healthy and my wounds will heal... I will be the healthiest I have ever been.
Hi Scott yes I am a patient of Dr. Wongs... I feel the same thing... I am trying the Premier protein but its way too sweet even watered down. the powdered peanut butter I think I want to try. My post op visit is on Tuesday because I had some things happen to me this week they weren't and I wasn't expecting. He calls me back or I speak with the Dr. Teixiera and the nurses ... That I must say is the best part thus far They are communicative and do what they say I appreciate that immensely. My Fiance doesn't want me going out alone since my head is so loopy feeling with the now low blood sugar I keep getting but I follow what he says and drink some water down apple juice and my vision is blurry after a while. I think I am done with the scale for right now, it hurts to see the numbers and my mind can't wrap my head around it.
Hi Kat Thank you, that is an easier way to think of it. I just set up a timer on my phone and I will reset it every 15 mins... they gave me tons of the 1 oz cups which I keep trying top force my way through... my dr. said every 5 mins 2 to 3 baby sips... so I think Ill take your suggestion because being overwhelmed seems to be derailing me and I have to get a hold of this.
Hi I am prescribed something for ulcers not nausea... Today after writing I decided to watch more videos on specific things I am having trouble with and I believe this nausea is pain related and the yogurt is too soon... Congrats on your surgery, that's a good idea ( the spreadsheet ) Ill ask my fiance to make me 1 tonight maybe seeing it will help with the mental pressure I feel to do things right.
... Hard is an understatement.... I am back home now and it has been a difficult and emotional road. I can not find anything to eat that I am ok with... today I noticed all the low carb options I bought are too sweet and the broths are making me nauseous. My blood sugar dropped down to 62 today and I am trying to have more than 30 oz of water and have not gotten there yet. over this week My calorie count has been 700 all together for the last 7 days and in the hospital I gained 32 lbs... from fluid i guess. My dietitian said I could advance to more than water and broth but this seems impossible. I went into the hospital last night because I was bleeding from somewhere in my nether regions and they said my labs and cultures look good though... I am finding it hard to express myself because I am constantly crying and scared of doing something wrong. My Fiance is the best and had to start work again yesterday. Being alone for these 2 days has been even harder for me. ... with all that said I do not regret my decision, I have been over weight my whole life and this decision for me meant I chose me... and did not allow the pain/abuse of the life I've had end me. My family is now My fiance and sister from my dads side. My mothers side is dead to me now they now longer exist to me. I knew this was going to be a challenge, I didn't want to do this years ago and fail because I had not dealt with my mental and emotional state. I have worked for 14 years on my mind changing the chatter destroying the lies told to me I believed my whole life ( worthless, amount to nothing, not worthy of love, no one wants you, you deserved to be raped, molested etc... ) I know who I am now and I needed help... That was this surgery is to me the assistance I didn't know how to give myself.... I just had no idea the struggle involved with taking a sip and keeping it down. I didn't understand about the foaming at the mouth until this week and when the pain is too bad it happens automatically. I am relearning how to consume and eat healthy and have patience ( something I have never had in abundance )
This is major surgery and voluntary, and my body like my mind will never be the same again and I am grateful for that....
I guess I would like to ask all of you how did you do it the 1st week, the tastes, the smells, the consistency ... and how did you get 64 oz of fluid in you in 1 day.... How did you get past ( if you experienced ) the emotional toll it is taking, and when was your 1st good day, what did it look like? What did you eat the 1st week when you were told you could consume yogurt like consistency, no fat low carb? I feel desperate and alone right now to get a grip on this... Thank you for listening and reading and if you so choose, responding :)
PS... I am back in grade school trying to figure out how to respond to messages and people that have been so kind to reach out to me
