murfy

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i posted a few times about sharp horrible pains where my gallbladder used to be. well i got blood work and it showed h-pyroli and high lipaise levels. not high enough to mean pancreatitis, but definitely showing inflammation. my surgeon did an endoscopy yesterday. he said that my stomach lining is inflamed and also the hole leading out of my patch was too small. he stretched it while he was in there. (didn't feel good at all) and he took a biopsy of my lining to see what how severe the bacteria is and how to go about treating it.

he said that the inflammation could be due to the prednisone i take daily. also i am on another auto-immune suppressant for my rheumatoid arthritis. these things are causing me to heal slower than someone who is healthy. understandable. anyway, i am to go back to liquids for a couple of days. i have also been taking mylanta inbetween any meal or dairy drink. it has helped a lot with the sharp pains. i even got some lactaid. it tasted fine, but it is so thick, it actually made me gag. i think maybe i drank it too fast. bleh. this was before he stretched the hole in my pouch. he thinks that could have been contributing to my zero appetite and extremely slow digestion. food is taking a really long time to leave my pouch.

so, all in all, nothing life threatening or terrible. just some bumps that will hopefully be smoothed out soon.

thanks to everyone for your advice and prayers.

i just found out that i have an inflamed pancreas and h-pylori bacteria.

great.

my incision has a hematoma. i went to the surgeon today and he stabbed a long qtip 6 inches into my stomach. i probably lost over a cup of blood. i am actually in too much pain and too upset to say anything else about it. if it doesn't get better, i will have to have surgery again to correct it. i have been crying since yesterday.

and i am having a hot flash! i am sweating like crazy and i'm getting really anxious because i'm scared i am going to be sick. i am so scared to throw up because my stomach muscles and guts still hurt soooo bad.

dear lord, please let the 2 crackers with pureed chicken salad pass safely and easily through my little pouch. i promise only to eat pudding for the rest of the day. amen.

foods i can eat with no problem:
sugar free pudding
sugar free jello
greek yogurt
cottage cheese
cream soups
scrambled or fried eggs
grits
3 crackers with hummus
sno cones


foods i have tried and failed:
mashed potatoes

wtf? i think a lot of the food i can tolerate is harsher than mashed potatoes! but noo. i had like 2 ounces of mashed potatoes yesterday and was sick all day with a stomach ache. weird.

i have lost almost 16 pounds since i was weighed in pre-op before my surgery a week and a half ago. that is nuts. i am getting used to the diet. i have found some yummy snacks to keep me sated. like greek yogurt with torani toffee flavored sugar free syrup. i also loooove cottage cheese and scrambled eggs and slushies. it's funny how these normal things that normally wouldn't matter that much to me, taste soo delicious now. i am sick of puddings and jello. i am craving salt and savory foods. i am going to try and eat some mashed potatoes this week. my doctor is shocked at how well i am doing. i am able to tolerate everything i have tried to eat so far with no nausea or vomiting. *knock on wood* my surgeon can't believe it's only been a week and a half since he did my surgery. i am not even on a liquid diet anymore. i am going to try oatmeal and grits this week. the only thing is that i haven't been drinking protein shakes because i can only eat 2 or 3 ounces two or three times a day and i'd much rather eat something delicious than drink a a few ounces of a shake. it's funny that i can't even eat 1 whole egg before i am stuffed. i guess my new belly is as big as an egg. my scar is huge and very itchy, but healing nicely. dr hoddinott did a great job stitching me up. i think my scar will be minimal.

ooooo it's so good to be home and in bed. screw sleeping in a recliner. i don't care if i need help getting out of bed, you aren't going to catch me in one of those for a while. i've been sleeping in a chair for the past 5 days. i have my pups and my girlfriend all tucked in around me and i'm happy. i am still hurting a lot. but slowly figuring out how to deal with it. it mostly seems to be gas and bloating. and walking does help. i haven't been able to eat even a third of what they told me to. it hurts too bad to fit it in there. they were saying to eat 8 ounces over a 1 hour period 3 times a day, with two 4 ounce snacks over a 30 minute period inbetween. and when i'm not eating, i need to be drinking. ok well that is impossible. i had 3 ounces of broth for breakfast and 4 ounces of cream of chicken for dinner. i had a popsicle as a snack. and that's it besides some water. i just can't fit it in there. i guess because it is healing. 4 ounces over 30 minutes is almost unbearable. i was craving something cold today though like yogurt. but all the yogurt i can find has 8 grams of sugar in it and the surgeon said to keep it under 5 grams per serving. why isn't sugar free stuff, actually sugar free? stupid. anyway.. i'm going to read and if i am lucky, fall asleep.

got my first bit of sleep since before surgery. i slept for 3 hours. i slept through when i should have taken my pain medicine and woke up in bad shape. now i am laying here waiting for the meds to kick in.

i can't type a lot right now, but i wanted to let everyone know that i am out of the hopsital. i never knew it was possible to be in that amount of pain. i didn't even know that it was possible to hurt that much. it took them an entire day just to figure out how to make my pain tolerable enough for me to be able to not hyperventalite. my glucose was super high and they had me on insulin the whole time i was admitted. also i received 2 iron infusions. so i know, in the long run, the iron will help me feel better. i will add more later on. thanks for your prayers.

it's finally here!! my open rny and gallbladder removal is april 21. i am terrified out of my mind. i like being very prepared and knowing exactly what the plan is and what will happen, and this feels like i have no control. i just can't fathom what life will be like after surgery. but i am excited. just scared.

i go for my endoscopy and post-op nutrition class in the morning. and then tomorrow my open RNY is scheduled at 6am. wow. i'm not sure when i will be able to post after surgery. will be bringing my laptop. hopefully they have wi-fi there. i am staying in a bariatric suite with my girlfriend and mom. i think they will be taking turns staying with me on the fold out couch.

i have rheumatoid arthritis and lupus and i am very anemic. on a normal day, i have a hard time getting around, so i can't help but worry about what recovering from an open rny and gallbladder removal will be like. my mom wants me to stay with her after i get out of the hospital, so she can take care of me. but i think being comfortable in my own home with my dogs, girlfriend and my space will probably be the best thing for my recovery. my partner is a chef and she works at night. i should be ok by myself in the evenings, right?

how many of you needed someone to take care of you after your surgery and for how long?

i am sure i am over planning and everything will go smoothly and fine and i will be healed in know time.