Coping with Setbacks
On 5/7/12 (GBS was 4/3/12) I began to have problems with swallowing food and liquids. By 5/8/12 I became extremely dehydrated and went to the ER. I was rehydrated, given pain meds and Zofran & Pepcid and released with the caution that I must begin to take in adequate fluids. The doctor had suggested I be admitted but, I was reticent and wanted to try at home. Needless to say, by Sunday 5/10/12 it was clear I wasn't able to hydrate and nourish properly. Once back in the ER, it was determined that I would be admitted and a clear diagnosis would have to be made. On Tuesday I had an UGI and we found that I had healed 'too tightly' where the "feeding tube" connects to the small bowel. It was not a FORMAL stricture as that involves the pouch but, I required another laparoscopy ASAP. Surgery on 5/15/12 was successful and I am drinking and eating with much more ease. The downside to all this was I gained about 12 lbs of fluid due to the non-stop IV hydration. That was very disappointing and frustrating when I got home. Happily most all of the weight was lost within a week and I am back on track now. Everything about this process is a learning experience. There was nothing that I could have done to avoid this problem. So, once again, I've begun my journey. For all those that have setbacks-don't be too hard on yourself and know that things will sort themselves out in time and you will regain your footing.
Best regards to all,
Celtie
Best regards to all,
Celtie
Sounds like a classic stricture to me. Your stoma, the man-made opening between the pouch and the small intestine, had scared too much and restricted the passage of foods and liquids from the pouch. I question why they didn't 'scope you the first time you went to the ER---at 4 weeks post-op, you were at the prime time to develop a stricture.
But now you know the symptoms. Hopefully you won't need another dilation, but if you do you'll know what's happening.
But now you know the symptoms. Hopefully you won't need another dilation, but if you do you'll know what's happening.