Duodenal Switch and other medical conditions: Vestibular Migraine?

no it's not a hyjack, it's good info. I needed to know. I did know about the right kind of calcium, and had been taking the wrong kind at first (something through bariatric advantange so i'd assumed it was the right kind straight out of surgery) but i did discuss it with two doctors specifically and they did check, what i thought was, the right things on my labs and assured me i w s fine. SO now i will indeed be rechecking. my problem is i'm also checking my aklaline phosphatase level and that has always been off the chart. like even before the surgery norms are 35-115 and mine is 120-137...i'm sitting here trying to figure out if i really do have celiac disease, my test came back "inconclusive" and i assume that's because of the DS part...then i have these vestibular migraines, and topamax isn't working, i get kidney stones, i have PCOS, i have hypermobile joints and easily bruised tissue but it's not lupus or not true tender points like fibromyalgia but they're not sure...i fit a lot of auto-immunue disease issues and have a positive DNA DS antibiody in my blood but not for the things they've tested specifically, so...

Anyway, they brush me aside like i'm a head case. And i am because the migrainse make it very hard to concentrate and rememeber all of this.

Also i had to switch doctors a couple of times and every single time i go through the DS they act like they know and understand when i tell them but of course they're just being arrogant and don't want a patient telling them about a medical procedure. especially since it seems like i have so many things i have to tell them about. i should book two appointments then they'll feel like they can give me the stupid time of day!!!

I've had my blood tests out looking through things, last year my PTH levels were good, this year she missed including that becuase she was testing for other things, even though i asked her to get all the vitamins and all kinds of things i hadn't brought in my normal list (i was foggy that day). I am already planning to go back to her. It isn't really her fautl, she's arrogant, but i need to bring my stack of papers with me and give them the tools and hand feed them..lol i'll have her check. i'm just so tired of all of this and my brain not working sometimes has made things a bit difficult! : )

when i went to my urologist he said stop all forms of calcium no matter what form it was and demanded my husband and i be very clear on that and didn't want to hear any more about the DS and scared me into listening. And when you have an 8mm kidney stone in your side and you're vomiting from pain, and your husband is upset he's listening too..... : (

Hi Melissa;

I have had Migraine Associated Vertigo (MAV) since August 2012. I have taken Topamax, Imitrex, as well as Dyizide for my migraines and vertigo. I had my DS surgery on July 31, 2014 and since then have not been able to take anything for my migraines due to my surgery. I do take my vitamins as required, because I want to make sure that I follow that regimen. I guess I can't really provide too much in the way of preventing kidney stones, since I haven't had them. I have struggled since my surgery because of my vertigo and my headaches, but, I have had to deal with them for two plus years. I am grateful that I had my surgery and had hoped that the surgery would have helped alleviate the migraines, but so far that hasn't been the case. 

I hope you find the answers you are looking for with regards to your calcium intake.

Susan

Well, i did take a look and my test before last and the ones previous and my PTH was good, So that's a relief, i just needed to be aware and i'll keep up on it now. Thank you guys for the reminder!

Susan! October 2012 is when mine started! Have you been able to determine what caused yours? so far it's just...stress. Some days it's this vicious cycle of i have it, so it gives me stress, which makes it worse, etc. The symptoms are all over the place as you know. It's been so, so hard.
I go in in a couple of weeks to tell my doctor how i've been doing on the topamax. Honestly, i don't think it's been doing anything. But i think i said that, i don't know, lol.

Gee, Melissa,

Seems like 2012 was the year for both of us. My docs kind of ran me through the gambit of "Well, it's not life threatening. . ." and kind of left it at that. I figured I would wait and see if things changed. I did hope my MAV would go away after losing weight--but that hasn't happened yet. Stress does affect me horribly, and it seems the more we try to avoid it, the worse it gets. I wonder about Topamax, it made me into a zombie, worse than I was without it. LOL. Hang in there. FYI there are two Facebook groups I am a part of where others are going through the same thing we are with MAV--one is the Vestibular disorder group and the the other is the Migraine Associated Vertigo group. Hang in there.

Susan