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ROSE Procedure

(deactivated member)
on 5/10/09 7:10 pm - San Diego, CA
Hi all-

I am new on here and found the site while researching different revision procedures.  After extensive research, the ROSE procedure seems to be the best fit for me.  Pretty much all I have seen on OH is negativity about the procedure.  However, numerous clinical studies have proven this procedure to be quite successful.  Is it possible that the few patients on this site that participated in the study and failed did so in its very preliminary stages last year before the surgeons had sufficient experience in how to perform the procedure precisely for the best results (accurate placement of anchors on pouch and stoma, amount of anchors, etc.)?  I am trying to remain optimistic...overall study results can't lie, right (that would be the ultimate letdown)?? I sure would hope not and I do strongly believe there are ethical laws prohibiting doctors from publishing less than accurate findings regarding clinical studies.

There is a barriactric surgeon in my area that has performed this procedure and had great results in his patients.  Here is the link to the news story which finally allowed me to hear a LIVE person talking about their experience for the very first time: http://www.cbs8.com/Global/story.asp?S=10314535.

It was refreshing to hear the amount of weight and gave me a light at the end of the tunnel. Thanks for any input.  I have forwarded my Operating Report from my RNY per his office's request and have a meeting with him on 5/20/09.  I will keep everyone posted and also if I hear additional success stories from his patients (crossing fingers). :)

=Lisa=


JROLFSON
on 5/11/09 7:17 am - St. George, UT
Well Lisa....

There just hasn't been any glowing reports on this site for the ROSE...I do know that they are adjusting the procedure as they learn more about it....The thing that I heard that is a problem are the sutures or staples whatever they call them, are plastic...And they break....so yes, you might get restriction but if someone who overeats does so often you would break those sutures or pleatings and lose restriction again.

I have heard that they are on to making improvements all the time on this procedure and that we should be hearing something down the road soon about a much better procedure.

Let's hope so...In the meantime if your very compliant with your Dr.s orders you may be successful and hallelluah! if you are....please post your results as we will all be interested...There's nothing more than any of us here want than a new procedure that brings light at the end of the tunnel...

Janie
(deactivated member)
on 5/11/09 10:28 am - San Diego, CA
Thanks Janie! 

Yes, I have seen that they are really trying to "fine tune" this procedure and I am really hoping that this surgeon has done that and that is why he is having great success with his patients.  I do realize that they are trying to invent SOME sort of alternate non-invasive revision procedure that will have effective and lasting results.  Unfortunately, I have to do something now before I am too far gone.  While I have considered lap-band over RNY, I had open RNY originally and had complications so I am terrified to have invasive surgery again.  Boy, sometimes we can't win, huh! :)

I will keep my OH network updated with my findings, progress, etc.

=Lisa=
JROLFSON
on 5/11/09 12:01 pm - St. George, UT
Well Lisa I can totally relate...And really when it's all said and done, it's all about us and how we handle our new tools...Don't you think? So if you have it in your mind you will be successful and your Dr. thinks you'll be successful, by gosh Go For IT!

When we get to that no turning back point where we know we need some kind of jump start to get the weight loss moving again....Sometimes that's what it takes...

I wish you good luck and I hope the VERY! VERY! Best for you..Please do keep us posted it might be that I will need some more restriction down the road after my ERNY Surgery and by that time maybe they'll have perfected this surgery so that everyone has some success...

Janie
shele
on 5/11/09 2:25 pm

I was thinking the exact same thing Janie!

I hope all the endo patients don't get scared off!

shele
LiFeLoNg hEaLtH imY GoAl
RNY 5-11-04 280
Lowest weight 174
Highest re-gain 238

erny 3-23-09 (120 common channel

low post revision 190
Current Weight  204

Height 5'6"

GOAL 154 Normal BMI

        
CoachRoz
on 5/11/09 3:24 pm
Hello Shele,

I would love to connect with you as oh.com friend or through my member support group - Beat Weight Regain with Rose (group tab - search "ROSE").

You are working your way through a revision surgery and it sounds like you have grabbed a second chance at change.  I experienced a weight regain, too and worked my way through it.  Now I'm trying to offer support and encouragement to others.

You may be a motivator, too.

Best,
Coach Roz

Also, I found 2 patient video testimonials from ROSE patients on YouTube.  In case anyone is looking for newest information.
(deactivated member)
on 5/11/09 3:31 pm - San Diego, CA
Thanks...I did find it and once again am inspired to hear actual patients that have had a positive experience!

http://www.youtube.com/watch?v=W3ll4RrTMRo
CoachRoz
on 5/11/09 4:59 pm
Hey Lisa, the link you posted is from a surgical center... Here is another one.  This link is CBS news report from southern California

http://www.youtube.com/watch?v=QEqetXruNxM

I love your photo - very pretty!

Stay motivated

Best,
Coach Roz
(deactivated member)
on 5/11/09 7:05 pm - San Diego, CA
Thanks Coach Roz!  That CBS story is actually the doctor I am going to for the ROSE. :)
CoachRoz
on 5/11/09 7:20 pm
WOW!  I'm going to connect with you through the Beat Weight Regain w/ ROSE member group, ok? I hope we can exchange private messages and I hope to exchange success strategies between you, other ROSE patients and people considering ROSE as a tool to beat weight regain.

My role as the member group leader is as coach.  This surgery is one tool weight loss and the support/coaching that follows, is the tool for making changes that last.

I'm excited for you! 

I hope you believe you can do it, too...

frndlyghost
on 6/9/09 9:41 pm - Kelseyville, CA
 Hi Roz!  I, too, am interested in  the ROSE procedure. Unfortunately, it's waaaaay out of my budget right now. I'm on Medi-Cal, which (for those who don't know) is insurance provided by the state of California.  
  Meanwhile, I've gained 20 lbs back (but have managed to keep the gain at that level for awhile now), and am open for any suggestions on how to get rid of it. Foot problems are preventing me from enjoying my favorite activity (walking). But I bought a nice bike and have been trying to get as much ride time as I can. Unfortunately, that same foot injury has made even biking difficult. 
  So. my question is: Did you work your way through your weight gain via the ROSE procedure, or did you do something else? I'd love to get your advice.
(deactivated member)
on 6/9/09 11:32 pm - San Diego, CA
Hi there - Feel free to check out my blog too...I had revision surgery 5/28/09. :)
muggag
on 6/10/09 4:20 am - Posen, MI
Lisa:  Can you tell me how to find your blog.  I am interested in what you had done.  I had WLS in August 2004 and have gained about 20 lbs back.  I really want to find a good way to turn myself around.  I'm not very blog or facebook savvy so any help would be appreciated.

Thanks
(deactivated member)
on 6/11/09 9:38 pm - San Diego, CA
Hi there - Actually, it is posted right on my page.  So you just have to click on my picture to get there. :)  Good luck and let me know if you have any questions.
frndlyghost
on 6/10/09 10:29 pm - Kelseyville, CA

  Hi Lisa! I checked out your blog, and think you are amazing! A trip to Mexico is not in my budget, and I just found out my Medi-Cal "share of cost" is being increased. So I don't see myself being able to afford revision surgery any time soon. But I do believe in miracles, and maybe there's one waiting for me. 
  Meanwhile, I re-assessed my situation. Took a good long look at what I was doing, what I should be doing, and what I CAN do. Walking -- which is how I lost my pre-surgery weight (19½ lbs. in 2 weeks) -- isn't always an option. Some days, my feet hurt so bad I can barely stand up.
Biking isn't always an option either, for the same reason (it hurts to push the pedals). But there are other things that I CAN do.  My husband and I bought an Ab Lounge at a church rummage sale. I tried that, and found that I can do it with no problem. 
  I can also eat less, and drink more water. I find that if I include fruits and veggies in my daily menu, I actually feel fuller with less food intake. I've been doing this for a week so far and have already lost 3 lbs. This is good, and I believe I will succeed. I have also decided to stop seeing myself as a wls failure. I didn't fail. I just got stalled out in trying, and now it's time to get back on the road.

(deactivated member)
on 6/11/09 9:43 pm - San Diego, CA
I totally understand the cost thing...I was able to pull if off somehow but I feel your pain.  Anyhow, here is another suggestion to help you get on track:

I keep a handwritten food journal/log and find that it really helps to keep me on my toes.  I know this much...when I write down "cottage cheese & slice of tomato," I feel a whole lot better at that moment than when I have to write "chocolate cupcake."  Now I get it...eating healthy makes me feel great and bad choices make me feel crappy inside.  Even though nobody sees my journal but me, I still feel embarrassed for some reason.

Some people take it day-by-day, but I have to take it meal-by-meal.  Some people prefer & utilize an online food journal, but I do much better with the hard copy in my purse and having to add up the totals at the end of the day on my own gives me a sense of responsibility and more gratification when I do well.  It has kept me really motivated to keep eating well for some reason and I have promised myself that I will do this for at least 1 year.  If after that I feel comfortable enough to trust myself to make better choices "off of paper," I will quit at that time.  Maybe I'll have to journal forever...who knows?

I found it at Barnes & Noble in the Diet section.  It is called the "DietMinder Personal Food & Fitness Journal" by MemoryMinder Journals.

Anyhow, there is always hope...don't give up now!!  :)

Take care.
CoachRoz
on 5/11/09 3:28 pm
Hi Janie, I love your attitude... I was talking to wls surgery success story and mentioned that I'm supporting people who are regaining weight and considering the ROSE revsion surgery.   She made a comment that surprised me "if someone needs a another wls operation, then they should be able to have one"...

WOW!  SAD!  Anyway, amen to you!  You said it "Go for it", if it's right for you because sometimes we need a second chance at change.

Hope you are great and continue to thrive!

Best,
Coach Roz
Member Group Leader
CoachRoz
on 5/11/09 3:30 pm
Hi Janie, I love your attitude... I was talking to wls surgery success story and mentioned that I'm supporting people who are regaining weight and considering the ROSE revsion surgery.   She made a comment that surprised me "if someone needs a another wls operation, then they should be able to have one"...

WOW!  SAD!  Anyway, amen to you!  You said it "Go for it", if it's right for you because sometimes we need a second chance at change.

Hope you are great and continue to thrive!

Best,
Coach Roz
Member Group Leader
susang
on 5/12/09 6:26 am - CA
Is the ROSE procedure the same as the stomaphyx?
CoachRoz
on 5/12/09 8:33 am
From what I've read and seen on YouTube, ROSE is different than stomaphx.  Both are incinsion-free, but ROSE makes the pouch and stoma smaller with anchors that grab more tissue and hold in place. 

If you want to ask me more, please feel free to join the Beat Weight Regain with ROSE member group or contact me off the public discussion boards!

If you're struggling with weight regain, I hope you also look into getting support, too.  Join an OH support group or return to your surgical center.  When I regained weight I realized that there was something behind me overeating and underexercising.  I had to deal with that, too, as I lost weight.

Much love,
Coach Roz