seeking_freedom
update, 5 months post op
Oct 29, 2012
well, here i am, surg went ok, found out i was quite the bleeder, thanks to the supplements i had been taking. my cousin whitney came with me to edmonton, we were there from a mon to a sat, was supposed to stay until the following monday, but i missed james too much. so i flew home early, naughty me! dr karmallis team was great, they kept me in hospital 5 days, so that was nice. i got up and walked almost right after surg, they were impressed, i couldnt wait to start on fluids, but wasnt alklowed until the following day. the day after surg they did a leak test, i sipped up that dye solution like id just crossed the dessert! i was sooooo thirsty, that went wekll, so once i was back in my room i started sipping. 1ounce every 15 mins is what i was allowed. the worst part for me was when they removed the drain, the day they discharged me. the nurse ripped it out of me, it felt disgusting!. the worst pain i had was strangly the back pain for the 1st couple hours after surg, man i dont know how theyve got you layin ion that operating table, but my back was in agony. very little incision pain. once home, i did ok, until 2 horrible things happened, 1st i had a sneezing fit, and ended up tearing some internal stiches, 2nd i got so terribly constipated, i hadnt pooped in 10 day, then for the next 4 days i was in the biffy, sweating, shaking, and crying for 2 hours at a time, finally after 5 doses of milk of magnesia i went, boy did i go! needed a shower, had to throw out my undies, and clean the bathroom, even the walls! it was horrible! about 7 weeks after surg, i ended up in st boniface emerg with a gallbladder attack. it was so bad they admitted me. after 2 ultrasouinds, an mri, and a blood transfusion, they finally removed the darn thing. they told me it was gangerous, necrotic, and there was pus everywhere. apparently i could have died if it stayed in much longer. a month later i had a follow up with the surgeon dr v fraser, awesome lady!! she said i bet you had a lot of pain from the navel incision, i was ummm, yeah. she went on to tell me that they go in put a baggie in you, place the gallbladder in the baggie then pull it out. well they were yanking on mine but they couldnt get it out through the navel incision, so they had to go back in and crush what they discovered was a stone over an inch in diameter!! crazy stuff i tell ya! after my gallbladder, i couldnt keep anything down, even water was painful, nothing tasted good either. so for a month i lived on pepsi slurpees and milk. i quite losing weight, i guess at least i didnt gain. then our house flooded, my dads was in the hospital.... again, i tried taking on alot, more time with bronwyn, getting her up and ready for school, very stressful, always a fight, trying to work on my spirituality, got interested in larping, too much for me, i got very overwhelmed, and started eating crappy food. again still no losing, which bummed me out even more! so here i am now, trying to get back on track, im starting to come back to OH ive started reading my wls books again, and my recent trip to edmonton have all helped. i think im back on track now. my biggest weakness was liquid calories, i was also drinking alot of paralyzers! not just the slurpees....ugh. well since edmonton ive only had 1 slurpee, and one night of drinking alcohol, and ive even switched from paralyzers to vodka orange juice and watered down oj at that. much less calories! like they say on these boards, they can fix your stomache but not your head.
weight gain
Apr 22, 2012
point is, ive been weak, very weak. but i kicked myself in the butt after stepping on the scale this a.m so i plan on being back on track as of now!
niki
surgery date!!!!!!
Apr 12, 2012
so i think i already wrote that i left a message for lorraine on monday, well, the lady covering for her called me back, and informed me that lorraine was away that day, but the list has not been updated since april 1, and as far as she could tell, it was looking like june-july for me. well on tues lorraine called me she gave me a surgery date of may 23!!!! wow! i was so excited! i told everyone i knew, made childcare arrangments, ugh
so the next day, wednesday, lorraine calls me back and tells me she accidently booked too many people for that day, and has too rebook my surgery. ugh again!!! so now my surgery date is june 5. just another 2 weeks from the previous date, but yeah, thats 2 wekks longer. i am a little disappointed, its only 2 weeks but, well, ya know. its june instead of may. lol, silly i know. really im fine, im just so pumped to have a date finally! and lots of notice, so i can book hotel and flights. ive been feeling that i want my hubby there, but i think he hasnt been offered a co op position because he is asking for time off. tonight my cousin whitney offered to come, i may just may take her up on it!.
let the count down begin!!
niki
goal weight???
Apr 09, 2012
so today i had a "phone" apt, with the dietition, it was my girl suneet, it was someone coverin g for her. we went over "maintainingthe change" its usually a class i would attend but i was allowed to do it over the phone. she also gave me my pre-op diet instructions. my pre op diet will be 5 ensure high proteins and 1 cup of skim milk, and as much non calorie drinks as i want, its 1215 cals a day. seems high cal to me, i hope i will lose on it. so i do 14 days full fluids post op then start vitamins and start introducing solids. no bread or rice, seperate liquids and solids, take 20-30 min to eat a meal, chew chew chew, small portions, eat every 2 hours very little bits as needed, work up to 3 meals a day, she told me i will eventually be able to eat 3/4 -11/4 cups of food at a time. keep making healthy choices, i need to get in 68-81g of protein, and my goal weight is 220LBS!!! what why am i doing this surgery for 60lbs?? i want to be 165lbs, now i know shes being conservative, but man will i be ticked if i only reach 220. grrr, that was really discouraging. sigh...
so now i wait for my other phone apt today from donna (another sweetie) the physiotherapist.
ok, i broke down and called lorraine, but had to leave a message, hopefully she will call me back today.
esophagogastroduodenoscopy
Apr 07, 2012
back at hotel we had lunch and i misbehaved i had a chicken club wrap with salad, but i used dressing and allowed the chipotle mayo on the wrap, yummy! every time i eat over the last few months i wonder if ill be able to eat this post op... its a constant in everything i do and think. i had to force myself a month ago to start reading something not wls, im a big reader and love my books, ive enjoyed it but find myself needing the comfort of knowledge and support that my wls books give me. so now i jump back and forth. ive even been re-reading my weight wise modules info. i wanted to go for a swim, but also wanted to take it easy, it was a long day, getting up at 4, after only a few hours sleep, and james hadnt slept at all, so nope, didnt swim, :( we really need to take advantage of that pool! and i got a new swimsuit i need to wear while i still fit it. its really nice too! that night i was reading a form i was given when my original scope was booked, it lists my apts, but it said that when i know my scope date i need to book a consult between my surgeon and nurse to review my scope results. crap! if that wasnt booked when my scope date was changed, how long will this set me back? the clinic was closed at that time, so i couldnt call. i had trouble sleeping thinking about it.
the next day we slept in, checked out and made our way to the weight wise clinic for my "preparing for bariatic surgery class". 1st thing i did was ask about that review of my scope results, phew! thankfully the awesome receptionist booked those when i phoned her! man shes tops in my books! so off to the class i go, james was allowed to come in, yay! i love how involved he wants to be in all this, hes amazing, so supportive. i get terrified thinking that "we" might change after surgery. we have a very solid relationship, i just hope it stays that way. the class told me everything i wanted to know( except my exact preop diet). the nurse spoke for 1 hour, then the dietican spoke for an hour, and finally the psychologist spoke for an hour. the nurse spoke about the hospital stay and the process, just a very general idea. the dietician talked about vitamins, dumping, post op diet ( i only have to do 2 weeks full fluids then start introducing solids. a couple days of clear fluids in hospital). the psycologist spoke about body image and the expectation gap. at one point he asked us what we do to comfort ourselves without food. everyone was saying stuff like, read, meditate, excercise, i say cuddle my dog or cats, the psychologist says i noticed you didnt say your husband, lol. everyone laughed, my face was red!
we ate at the airport at chilis. its become our tradition, we even have an awesome waitress there aswell, her name is anna, and unfortuatly she wasnt there this time. :( well hopefully we will see her on our next trip.... surgery!
saw the surgeon!!
Mar 06, 2012
so thursday i go to my apt with dr modi. she is so fantastic! i hope i get to see more of her, shes so uplifting, positive, and encouraging. my hubby james came in with me and he got a kick out of her to. she shook my hand 3 times saying goodbye, i thnk she likes me.lol she always tells me how awesome i am because of the weight i managed to lose. that and she loved my openess about my psych history. so needless to say, that went well. so onto dr karmali!!! well 1st thing is he brought in 4 of us to the room, aswell as 2 of us brought our hubbys, and he just went over the 3 types of surgery they do there. then i went to my o.t. apt. which went ok, nothing really happened with her, just kinda checked in on my activity level. then i went back to see dr. karmalli one on one. we talked about the rny, and he agreed that would be the best surgery for me, he told me my bypass will be 100 cm long and my stoma will be 25mm wide. he said not to expect much pain, cause if theres alot of pain that means theres something wrong. i will have to do a 2 week liquid diet of ensure, and a colon cleanse the night before surg. its just a pill i take, but apparently it cleans me out. i wioll fast the night before surgery, then the day of surg, then overnight until the next day when they check me for leaks, then i can have fluids. boy am i gonna be parched! hopefully ill be to groggy to care. they also chech for leaks while im on the table but likes to check a 2nd time aswell. if i have a hiatus hernia, he will repair it aswell during surg. i will have a jp drain, which should be removed before i leave the hospital, if not then definatly removed before we come back to winnipeg. surg will be on a tues or wed ( i think) and we can fly home the following monday. at my one of my early post op visits if they find i am losing quickly they will give me meds for gallstone prevention.he will send me home with an anti-nauseant. i should be able to wear plastic earings to keep my piercings in tact, but they wil tell me for sure at my pre-op admission apt. which will be the day before surg so we dont have to fly twice. they use stockings and heparin injections after surg to prevent blood clots. and last but not least he requires me to come in for a scope before surg, he checks for polyps, and h. pylori bacteria and does biopsys. he likes to do the scope himself so i need to come back to edmonton for it. i asked him how soon surg would be, he said about 2 months, he said i could have the scope in 2 weeks. so i left there pretty excited, went to the front counter to book the scope and the 3 hour class i need to attend before surg called preparing for bariatric surgery. the girl at the front said they dont book the scopes there so i had to down the end of this other hall and book it with nicole, dr karmallis secratary. so we go see nicole, and she tells us she can book me for june 28th!!!! um, excuse me? what happened to 2 weeks? now its 4 months till scope? then another 6 weeks or so till surg? i dam near hit the floor! im sure my jaw did. well i was upset after that, felt very discouraged. we went back to the front and booked my phone follow ups and my class. while there we saw dr karmalis nurse anna. told her our situation, that we were hoping surg would be early may because thats when james is done exams and before he starts his co-op term. she said she would put a note on my file and see what could be done. well, by then it was too late to get to our module for the afternoon, and to be honest i really didnt feel up to it. so we went back to the hotel, and napped. i tell ya, it was a good nap, i was feeling emotionally drained, so many ups and downs in one day. so we had a nice quiet night in. i wont discuss the crappy supper we had that i had to send back 3 times and eventually didnt even eat. im sure it wouldnt have happened if tara was there. but on the plus side our server ended up being her brother. so we got to meet him, and hes just as huggy as tara! lol, very lovable family. so friday i had to do some tests for dr modi. i was fasting since that absent supper the night before. so we went to the royal alex hospital to do blood work and a urine test. then we had to haul all our luggage to hys centre for a ecg, then back to the weight wise clinic for my apt with donna the physiotherapist. it all went well, but i sure logged some mileage on my pedometer. after my apt with donna, we went to see dr karmalis secratary nicole to apologize for my curtness the day before. i wasnt rude, just obviously disappointed. so we are saying sorry to her, and she tells me that i wasnt the only one who was upset, apparently dr karmalli misquoted all 4 of us that he saw the day before. she said she was working on getting another day of scoping in april, and the 1st people she will be moving up are us 4 that he misquoted. so i am to await her call on monday or tuesday.
update!!!
nicole phoned me today, and yes she moved my scope up, to march 29th!!!!! horray!
so much has happened!
Feb 22, 2012
so back to everything else thats been going on. on the monday after we came home from edmonton, we spent the weekend at brandon hosp, then came home sunday night thought it was really weird my little boy cat wookie never came out to see me, then monday morn when he still didnt come out i knew something was really wrong! bronwyn and i went looking for him. broni found him in the scrap/craft room. i went in and he was crying in pain and couldnt move his back end at all, i thought maybe fus or a broken hip?. so i called james at school and he rushed home so we could take my wookster to the vet. the vet knew right away what it was, there was no pulse in his back legs, and they were cold. its a heart condition, that has no warning and no treatment, basically the heart starts shooting out blood clots and form embollisms in his legs. unfortunatly he had to put my wookie down. i held him in my arms while the vet gave him the needle to his heart. he tried to give it to him in a vein, but they were collapsing already. i really miss him! he was my buddy, he slept under our bed, so every time i moved he knew when i was up and would come give me lovin snuggles, every morn, every night, and every time i went pee! he was 12, we only had him for 7 years, we got him as an adult from the humane society.
well after all this crap happening, you think id get some good news, which i guess you could say i did, since my dad was slowly improving, but at this point he was nowhere near out of the woods. i went to my follow up apt with dr corne, at the sleep disorder clinic. found out i have severe sleep apnea! what the heck! i thought at worst id have mild sleep apnea. apparently you are supposed to have under 5 respiratory disturbances an hour, i had between 15 and 119!!!i range from moderate to very severe sleep apnea! so overall they deem it severe. i will be contacted in the next 4 weeks to be fitted for a cpap machine! crazy!
so all was slowly getting back to normal this week, then today i recieved a phone call from sue, my case manager, she told me that as long as they can squeeze me in i will see dr shazeer karmali the SURGEON!!!! next week while i am there! i was so excited i forgot to ask any further questions, after talking to nicole i realized i want to know more! so i called sue back and asked how long after that will i get surgery? she said 4-6 weeks!!!! holy crap!! i will have to go back for a scope and a couple other tests she said, but seriously! surgery in 4-6 weeks! i could be starting optifast in the next month! wow!! wow!! wow!!!lol
cant wait to post next week after our next trip!
hugs to all, wish me luck!
niki
some ups some downs
Jan 30, 2012
monday a.m. i had my apt with the dr. now im really not sure if she was a gp or an internist. or are they the same thing? dont know, what i do know is that she was awesome! very positive, she told me my honesty about my psychiatric and abuse history was a "breath of fresh air", i dont get called that often! lol she asked me questions and was relieved at my responses. she wants me to see the head psychiatrist there. which was kind of disapointing because i had thought my letter from my psychiatrist here had given me the psychiatric clearance. she was so positive about everything, saying she would go to bat for me, cuz she knows "im gunning for surgery"
after that apt. we had to go out to spruce grove for another module. the ride there was kinda funny, our cab driver missed the turn, so he cut across 3 lanes of traffic, cutting off a cop, so we got pulled over! man, i think we are ginxed with these cab drivers! lol. the module was the same info weve learned in the other modules, so it ticked us off that we paid $100 to get there and back. did learn that they are no longer calling them modules now. as of 2012 they are now refered to as workshops. which makes a boat load of sense to me, modules?.... really? lol.
tuesday was the big day. 4 apts. i walked in feeling so good about it all, still vibeing on dr modis words(the internist/gp?) my 1st apt was with my case manager. yeah... she totally poo pooed on my good vibe! she made very sure to tell me that i may not even get surgery, that my sleep and inactivity is a major concern, that im not showing improvement with my activity. she even commented that i have until im 60, so dont worry cuz im young! seriously! if i wait till im 60, i will be dead! no exagerating, my genes have it all laid out for me! so if not dead, then ill have a stroke at 53 like my dad. gggrrrrr. if they only knew where i was a year ago, and just how far i really have come! why do we always think of a million things we should have said once its too late? really she needs to know how much better i am now. maybe at our next apt... in spite of that i still have complete faith that i will get the surgery.
my next apt was with my dietician, suneet. i really like her, shes straight forward but not negitive. she was very pleased with my diet, portions and content! so we set a few goals , 1 no more diet pop, or any carbonation, 2 aim for more then 3000 steps a day. so that means keeping on wearing the pedometer( which btw, i am on my 4th one. im spending a small fortune on the stinkin things! lol) 3 continue with previous goals, 3 meals a day with 1-2 snacks, and 1600-1700 calories a day. and 4 im only allowed to weigh myself 1-2 times a week. i usually hop on that thing every morn. i'm glad to report ive done well with those goals. well except the one night we ate at olive garden,, man that was bad! my meal, breadstix, salad, pasta and i split a dessert with my hubby, was 2200! well thats the last time i eat there! lol. i did say that was one of the places i wanted to have a last meal at, so i guess that was it!
my 3rd apt was with the occupational therapist, gotta tell you , if nothing else, this program is thorough. her name is minh. she was nice, very informative. lots of good ideas, like getting elastic shoelaces, so i can wear something other then slip on shoes, and using a grabber/reacher tool to pick up toys, ect. she also gave me a write up on skin care. it said something which i was already doing, and that is to use anti-perspirant on your folds. i started doing that when i was at my heaviest and was getting really smelly rashes(tmi?,lol). then we set some goals, and i had to rein her in. she had me doing all the house work, cooking meals, and working out everyday! so what we settled on was swim/aquacise once a week. excercise 20-30 mins while james makes supper, do batch cooking and freeze leftovers. and lastly, have mom,james or friend give me a wake up call at 9 am, to start getting me up earlier. i always sleep through my alarm, so hopefully this will help. she also said i should nap for 30-45 min after lunch, which i tried, but i have such a hard time waking up after that short of time, i dont think napping is an option for me right now.
after a 4 hour wait between apts, my last apt was with donna, a super nice lady. oh... and shes the physiotherapist. she understood. she knows im starting at 0, that i used to have frozen shoulder and that i have fibromyalgia and sufer from chronic neck and shoulder pain. she talked about starting out slowly, doing 5-10 mins on the bike at a time. to do stretches to keep limber and chair excercises if my knees hurt to much. she assessed me and aside from low back/hips i have pretty good range, which was nice to hear. she talked a bit about how im stuck in the mind set of when i couldnt do anything, that i have to work past that and start moving. which i might add a very good friend of mine pointed out to me after aswell. there was a time i needed james to bathe me at the sink, that i couldnt make it up the stairs to sleep or bathe. there was a time that i slept 20 hours a day, sometimes id even sleep for 3 days straight only waking to pee. we set some goals aswell, she wants me to check out fibromoves or waterworks thru the arthritis society. chair excercises called sit and be fit, possibly go to the library and borrow chair or sitting excercise dvds, to take short walks on days that we dont go shopping to get more steps in, try biking for 5-10 min at a time and to stop locking my knees when i stand.
so lots to work on, huh? all good though, most ive been incorporating already. i go again tomorrow jan 31-feb 2,for 2 modules a body scan and the big apt with the head psychiatrist then again feb 29-mar 2 for 3 modules and 5 more apts. i look forward to not having to spend every spare cent on these trips, maybe we can start swimming as a family on the weekends. oh, lol, i bought a dance workout dvd, thinking it would be difficult but i could go at my own pace... um, nope! i couldnt even get thru the warm up! lol. gonna file that one away for skinnier times.what i really want is some ricard simmons dvds, but ive never seen them on dvd. his videos rock! i have some vcr tapes of his packed away somewhere, but instead of spending a week going thru every box we have, id prefer to have them on dvd aswell. so if anyone knows where i can find some, please let me know.
i also did a level 3 home sleep study on the 26th, so thats one more thing accomplished. i see dr corne for a follow up in feb.
feeling discouraged
Jan 12, 2012
december update
Dec 15, 2011
so i think thats it for now.