Sometimes DS's aren't the 'platinum standard'

maryc543
on 9/16/10 1:13 pm
My niece, Lynn Bee, is back in the hospital.  I'm not sure if this is the third or fourth time this year.  It's a bowel obstruction again. 
   She's done all the 'right' things.  She researched the surgery, the surgeons, the hospital.  Post op, she was compliant with the vitamin regimes, the blood draws, the follow up care.  She exercised, ate correctly, etc.  Her DS was an original surgery, with a respected surgeon.
   She's had troubles, bad troubles.  Chronic diarrhea, fistulas, hernias, strictures, iron depletion with transfusions, food allergies, and intolerance's.  She's been seen by the noted 'experts'.  She had a revision with a NYC surgeon, and has been consulted on with gastro experts, hematology experts, etc.    Her surgeon now is considering an open exploratory, with another revision, moving the bowels back to as close to their original positions that he can get.  
   The gastro guy has suggested trying another medical approach, but has no answers or even an expected outcome.  It would be 'maybe this will be better'.
  
I'm not sure why I'm posting.  Here's a link to her OH profile.  http://www.obesityhelp.com/member/nimue/
I think I just want to vent my frustration at the fact that I'm old, compared to her, and had lesser known and regarded surgeons, and way more co-morbidities.  Why the hell is this happening to her????  and not to me, and others, etc  etc  etc. 
   I don't know what she'll decide to do,  she's an adult now, and I don't want to influence her.  She's finished her first year in her career, and in this economy, that's quite an accomplishment.  An open surgery will mean at least 2-3 weeks out of work, and there's no boss/firm in the world that understanding for a relatively new employee.  Her health has to come first, but....if she loses her job, and with it, her health insurance, oh geez....  maybe manage this medically until she can get some vacation time in October?  aaarrggghhhh.  I wi**** could be me for just a few weeks, and cut her a break for a while.
   Oh well, I'm not looking for solutions from this board, I just want to rant.....   DS's can be a great option for some, like me, or a f*ing nightmare, like for Lynn Bee......    I know we all go into this with the knowledge that things can go wrong....but damn,  so many wrong things for one kid XXXX   girl XXXXX  OK,  woman.  She's a grown woman and I MUST remember that.....  ok, stopping now, but swing some chickens for her....    If I'm this crazed over my niece, how the heck do you parents do this over and over with your children?  aarrgghhh       Mary C

DS Part 1 (VSG) 11/14/06 DS Part 2 12/18/07
HW 430 SW 400 CW 210 GW 170 Blog: lifeisgood-mc.blogspot.com

(deactivated member)
on 9/16/10 1:18 pm
Mary, this just plain sucks and is not fair. I am so sorry this is happening to her. 

If she's been working for a year, wouldn't she now qualify for FMLA and the job protection that comes with it.

Swinging chickens for her that this nightmare gets resolved and she can live the life she deserves. Swinging chickens for you that you can find some peace in all this too.

Jenna
maryc543
on 9/16/10 1:30 pm
Jenna,  Thanks,  I just needed to vent,  (grin)  and not to LynnBee....  she doesn't need to hear me freak right now!   I don't know about FMLA, I'll have to mention it to her...she's just doing so well at her firm, and the competition there is soooo much!  Thanks for the poultry!   Mary

DS Part 1 (VSG) 11/14/06 DS Part 2 12/18/07
HW 430 SW 400 CW 210 GW 170 Blog: lifeisgood-mc.blogspot.com

(deactivated member)
on 9/17/10 5:58 am
Yep, Jenna's right.  If she's been there a year or more, she does qualify for FMLA to protect her job.  She can also apply for temporary disability, which will pay her salary while she is out of work.  I hope she pulls through and soon!
Privacy Please
on 9/16/10 1:19 pm
My heart goes out to her, and you.  My thoughts and prayers for you both.
maryc543
on 9/16/10 1:32 pm
Rachel,  Thanks, it does feel good to get it all out!!!  especially to folks here that understand the DS, and don't say  Well, you brought this on yourself.....   aarrgghhh.....     Thanks,   Mary

DS Part 1 (VSG) 11/14/06 DS Part 2 12/18/07
HW 430 SW 400 CW 210 GW 170 Blog: lifeisgood-mc.blogspot.com

Privacy Please
on 9/16/10 1:40 pm
We all hope for a perfect, complication free surgery and recovery.  And mostly the stats are in our favor - but we're all taking a calculated risk that we might be the one who makes the stats what they are.  I'm so sorry the risk turned out this way for her. 

I think if someone said to me that she'd brought it on herself I might hit them before I could stop myself.  And I'm not physically violent, at all.  But that attitude is just so offensive. 

I wish peace for you as well.
Renee2007
on 9/16/10 1:36 pm - Central, FL
I just hate to hear this. I think of Lynn often because of us sharing the same surgeon. It's just so hard to understand how one surgery and recovery goes picture perfect (like mine) and then someone has such continuous complications. It's just not fair! She has been through hell and back. I hope and pray that she will find a solution to this once and for all. I'll keep her and you in my thoughts and prayers.

Renee
 My DS   
SW/263  CW/136 GW/150



maryc543
on 9/16/10 1:43 pm
Thanks Renee,  yes, there just doesn't seem to be a rhyme or reason for some of the people who have trouble.  I understand the ones that skip the vitamins, or don't follow a nutritious eating plan, protein first, etc.....they're bound to have troubles,  but lately,  I'm hearing more and more about compliant patients with serious troubles.  It's disheartening.  and , even a bit of guilt, because I sailed thru with just a gall bladder complications, nothing else serious.    Thanks again for listening to  my rant and keeping Lynn Bee in your thoughts.     Mary

DS Part 1 (VSG) 11/14/06 DS Part 2 12/18/07
HW 430 SW 400 CW 210 GW 170 Blog: lifeisgood-mc.blogspot.com

Fade2Pink
on 9/16/10 1:49 pm - Salt Lake City, UT
Mary, I hate hearing this about Lynn Bee, I knew she had been through a lot, and I am so sorry to hear that her issues continue.  I hope that her surgeon can find out something to help her, please let us know how she is fares from surgery.
Duodenal Switch 4/29/09
Loving my DS!!

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