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It is not hard at all. To find companies that will do this in your area just google how to order your own bloodwork. I know others who do this and we all use different companies. Some of them require a doctor's order. Some don't. And there are others who will have their doctor issue the order.
If you have insurance verify if and what they will pay before you go this route. Don't give yourself a huge bill to pay unless you have no choice! I learned how to do this because I had no insurance for about 10 years!
Patty - quick question, how do you do your labs yourself, could you please share? It has been hard finding a doctor that will order everything even with an explanation of how our system works- sometimes they will order some but not everything, if I could find a different way to do it I'm interested, thank you!
This just shows how different we all are. I've got a 100 cm CC and I've always had issues with certain levels and staying in the normal range (iron/ferritin, D, calcium/PTH). I take lots of vitamins 3 times a day.
Janet in Leesburg
DS 2/25/03
Hazem Elariny
-175
Question for you! Because of your username. Is the VA paying for it? Thanks!
Most people on the planet are D deficient. It's just a fact.
I had surgery almost 20 years ago now and I have never had an infusion or been low on anything. I take a small handful of supplements twice a day. Morning and evening. It's not a big deal at all. I do my labs myself and make my own decisions on what to take and how much. I stay active and informed. I learn from others.
Are you talking about a standard 2 anastomosis DS? Your CC will be about 100cm? You might have to work at it a bit but it's doable. If you are talking about a hybrid procedure like SADI/SIPS, the CC is longer so it is easier to manage the malabsorbtion. But... You need to know you are sacrificing some of the power of the procedure for easier maintenance.
Me personally, standard DS and my CC is 75cm. I wi**** was shorter.
I'm 17 years post-op DS. I would absolutely do it again. It's a marathon, not a sprint. Make sure you learn as much as you can to keep yourself healthy. Follow the rules!
Good luck!
Janet in Leesburg
DS 2/25/03
Hazem Elariny
-175
My doctor wants me to try Prolia. Glad to hear about the little side effects.
Janet in Leesburg
DS 2/25/03
Hazem Elariny
-175
If you had the DS you did not have a bypass. I've tried Reclast which didn't work. Now we're going to try Prolia.
Janet in Leesburg
DS 2/25/03
Hazem Elariny
-175
With the DS you WILL have to take vitamins. Whether you develop deficiencies is another story. Everyone is different. Every surgery is different because every surgeon is different. Some of us have more issues than others. The key having the DS in my opinion is being proactive. You need to understand how your new insides work. You have to start with a good list of supplements. Make sure you're monitoring the right labs - when I get labs done once a year they take anywhere from 15-20 tubes of blood. Over the years my surgeon has developed a great set of labs and I have a wonderful primary doctor that works with me to make sure I stay healthy.
I had my DS 17 years ago. I'm now 63 so I am dealing with osteoporosis. Combination of heredity, age and the DS. I have always had issues with my iron and ferritin levels (I simply don't absorb oral iron) so I have managed that with infusions (and having a great hematologist). I take large doses of D3 (150k per day) so my levels are in the normal (low) range. All my other labs are good because I manage them - I take my vitamins religiously. Get them checked every year and adjust accordingly.
With all of this, the DS was the best decision I ever made.
Janet in Leesburg
DS 2/25/03
Hazem Elariny
-175
I had a revision from gastric bypass to a distal which is similar to the DS in terms of side effects but I didn't have any revision to my pouch. I've done well, weight loss is slower but definitely lots of terrible diarrhea. It comes and goes and sometimes I go a day with just normal stool and others I'll go a week straight of 3-8 diarrhea episodes a day. Lots of poo-pourri in the house lol. Sorry for the TMI. Diet is similar but much more protein needed and multivitamin needs to be higher for some people. I didn't have a ton to lose but I've lost about 30lb since but I'm down to my goal weight. I have a medical condition that really pushed us to revise to a distal.