I forgot to mention that I also have cluster headaches - and a lot of anti-seizure meds are supposed to help relieve the pain of fibro and cluster headaches - so I think I tried almost all of them. Some of the anti-seizure meds (like Lyrica & Neurontin) didn't make a difference in my pain levels. Others (like Topamax, Topiril and Depakote) made my head feel funny - like there was cotton in it, or they caused me to be forgetful. My doctor's also tried me on Cymbalta - which is an SSNRI anti-depressant that is supposed to relieve pain associated with depression. That didn't work for me either. I just felt more depressed - and had to stop that. I was taking Ultram as often as my prescription required (I don't remember how many hours apart I could take the meds - but I could feel my pain return before the next pill was due). After I finished my physical therapy and got into a regular exercise routine - I didn't need Ultram during the day. If I had any daytime pain, I was able to manage it with OTC Tylenol. I only needed a stronger pain med before going to bed at night. As for Flexeril - I made a mistake in the name. It's not an NSAID - so please ignore what I wrote about it in my last post. Flexeril is a great muscle relaxer!  I don't remember why my doctors switched me from Flexeril to Zanaflex - but they're both the same type of medication - and they both have generic equivalents that are inexpensive. If the Flexeril works for you - then I'd say keep taking it! The one thing that I really would like to emphasize - exercise has been the biggest pain reliever of all for me. If you are able to start exercising - start off easy and gentle - and very slowly build up. I was fortunate that my husband's insurance paid for physical therapy. The PT was able to tell me how to exercise - and when to increase.

Hi,

 

I cleared it through my GBS.  I take about 200 mg. per day.

So far no problems.

 

Jeanne

I was diagnosed with fibro in 1986. I have tried so many different kinds of meds that it makes my head spin (literally). I began treatment for my fibro by going to see a physical therapist that specialized in fibromyalgia. She helped me get to the point of beginning to exercise - SLOWLY. Once I made it part of my routine (which took years) - my fibro didn't hurt so bad. The kind of meds that I have to manage my fibro: At night - to help me sleep - Vicodin (pain relief) and zanaflex (muscle relaxer). Morning - Celebrex (I also have osteoarthritis). I've tried all of the neuro pills (Lyrica, Neurontin, and other anticonvulsants), I've also tried other pain meds (Ultram worked for a while). I can't take anything that hurts the stomach (like Flexoril and other NSAIDS). If you have any other questions - let me know. I hope you find what works for you.

Yup - you're not alone. I was diagnosed with fibromyalgia in 1986 - and I also have osteoarthritis.  The one thing I have found to manage the fibro is to exercise regularly. Don't over-do the exercising - because if you do too much at first you'll be really sore that you'll want to stay in bed. THEN staying in bed makes the fibro worse. So - it's a matter of exercising - and gradually doing more each time. It's a long, slow process - but once it becomes part of a routine - the fibro doesn't act up as much.

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