Recent Posts

leedoll
on 9/6/07 11:53 am - NY
Topic: RE: New to this all (29F w/RA)
Hi Leone here. Sorry about your diagnosis Irene. RA doesn't sound like fun. Michelle - my actual diagnosis at this point is fibromyalgia - so I'm hoping it stays that way.  The doctor I see next week is not a physciatrist as in head shrinker. It's with a physiatrist, who is a doctor that specializes in treating the whole body with different therapies. I'm putting a lot of faith in this appt., so wish me luck. Goodnight.
Meemorosie
on 9/6/07 3:43 am - PA
Topic: RE: New to this all (29F w/RA)

Hi Irene! I am glad you got a diagnosis and that you are reading up as much as you can. Please don't let some of the information scare you though, some of it out there is kinda scary. The best thing I was told is that there are a lotof up and coming medicines to minimize the effects of the disease, and they like to talk about or show worst case scenarios online.  Did he give you anything to help with the pain in the meantime? I think when I had to wait to see my rheumy the first time he gave me some naproxen or aleve, and that kinda helped.  As far as the baby, I know whenever I am put on a new drug, I always ask if I was to get pregnany, what effect on the baby would this have. So far my rheumy has told me if I wanted to get pregnant, my meds would have to be changed and adjusted, and I would have to wait before I conceive. I think the only one I am on right now that would be a problem would be methotrexate.  Just make sure you ask questions, a lot of questions!!!  Hang in there...it will get better :) Michelle

Irene
on 9/6/07 3:05 am - Chicago, IL
Topic: RE: New to this all (29F w/RA)

Hi Michelle..

well I got word from the doctor and yes it is RA and also my blood sugar was low. I have made the appt to see the rhumetologist but he cant see me until 2 weeks! ughhhhh!!

My primary doctor told me he might put me on presidone... you know I am child bearing age and hope that when I want to start having children this will not affect the unborn baby!! I am trying to read up as much as I can... this pain is unbearable! Irene

Meemorosie
on 9/6/07 12:28 am - PA
Topic: RE: New to this all (29F w/RA)
Hi Leone!  That's bittersweet news! I am glad they were able to diagnose you, but it's a shame to hear that you have that. hang in there!  Yeah, prednisone and Remicade are my biggies, but they keep me up and going. I am on a very low dose (2.5 mg a day) of prednisone, but I used to be on up to 20mg a day and that is when my rapid weight gain and inactivity started :( Good luck with the psychatrist! Let me know how that goes :) I meet with the enrollment coordinator at the WLS clinic on Monday and I am NERVOUS!!!  Take care!  Michelle
leedoll
on 9/4/07 11:49 am - NY
Topic: RE: New to this all (29F w/RA)
Hi - Leone here. Michelle - I recently had a blood test come back "mildly positive" for an autoimmune arthritis. So I know what you mean about not getting diagnosed right away. Wow - predisone and remicade are pretty powerful meds aren't they? My sister is on them and blames all her weight gain on them! I'm going to a physiatrist next week - that should be interesting. Hopefully, it will be a productive appointment and I can get some help, or at least get headed in the right direction. Best of luck - Leone
Meemorosie
on 8/31/07 11:22 pm - PA
Topic: RE: New to this all (29F w/RA)

Hi Irene,  Hang in there! I am sorry to hear you are in much pain...the pain won't last forever! Once your doctor finds out what is causing the pain, he/she will better know how to treat it! Have you tried a hot bath/shower before bed? That would help me sometimes for the pain.  I'm just starting my WLS journey, and actually I haven't even met with the coordinator yet, so my lap band seems ages away :( I hope you feel better soon! Keep in touch :) Michelle

quiltz
on 8/30/07 10:33 pm - Phoenix, AZ
Topic: RE: osteoarthritis and exercise
You have been told the truth.  Keep on stressing your knees and they will hurt so badly you will wish you had!  You can do water exercises and also the exercise ball for balance, but nothing to stress the knees.  You can do many exercises that will not require any pressure on the knees.
quiltz
on 8/30/07 4:48 pm - Phoenix, AZ
Topic: RE: knees
Thanks so much for your reply.   I have to do some research to see what would be available to me.  I know I will be much better off getting them done ASAP.
brenda F.
on 8/30/07 2:31 pm - whitney, TX
Topic: RE: knees
Hun,i had both done at same time .did rehab at hosp for 9 days and came home on a walker took care of myself .had home rehab for 6 weeks  ,2 times a week .  then went to rehab here in town for a few weeks  2 times a week .was the best thing I did for myself ..girl it is so nice to walk .good luck Brenda in tx..............
was 400+ june 15th,06,..now 145-150 as of may15th,09 ... wow!!!what a ride .   
Nancy E.
on 8/30/07 6:01 am - Charlottesville, VA
Topic: RE: New to this all (29F w/RA)
Hi ya'll.   I have psoriatic arthritis and have had it since 1990.  I can relate to the pain that you have and am scheduled to have RNY on 9/12/07.  I currently take Indomethacina and Enbrel (a shot) for my disease.  I asked my surgeon during preop last week about whether I will still be able to take the Indomethacine and he said sure, since I have not had any problems with my current stomach from it before, then my pouch will probably do fine.  The Enbrel is an injection so there are no worries about that one either.  I am so looking forward to changing my life and to get rid of most of this weight to make my joints feel better!




 

    
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