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jennnys609
on 11/9/11 10:46 am
Topic: RE: postprandial hypoglycemia

Spikes to 180 give me bad headaches and Ithen I fall to about 60 too. that is good info about the berries. I found that low fat products have more sugar. I think that is so deceptive. I think the bread they mentioned is Ezekial bread. I found it frozen in the health food section of my grocery. I like the Spark People website because if I make up a low carb recipie I can enter the ingrediants and get an exact carb count per portion. Helps when developing a recipe. It is in the nutrition section of the website and I think it is called recipe builder.

Lauren1979
on 11/9/11 5:28 am - Holden, MA
Topic: RE: postprandial hypoglycemia
 I eat about 15 carbs and still get a spike of about 180. I want it to get to as close to 120 as possible. I was able to do that on insulin. With a spike of 180 I get a low in the 60's and any spike higher than that can send me into the 30's and 20's. Lowest I have gone is 10 which usually results in coma, seizure or death. I now carry a glucagon emergency kit and ordered a medical alert bracelet. Before acarbose I would spkine ovr 200 with about anythng I ate. So it is working. I tend to eat alot of homemade hummus (I don't like the bitter flavor of store bought, and I can add alot of olive oil for the fat)...high fat proteins that slow down the uptake of carbs. Peanut butter and whole grain crackers. I find Arnold Deli thins are ok as long as I eat a good dose of protein with it, it doesn't spike too high. Tuna and Egg salad are good for me. They told me to stay away from Low Fat products. We need the fat to slow things down. Hummus and carrots is one of my favorite snacks. They suggested I eat berries because they don't spike BS's as much. As well as an apple with peanut butter. Their are these extend bars that are sold at Walgreens. They are kinda sweet for my taste and not that good, but they get me through the night without crashing. I think I might have had a seizure in my sleep a few nights before starting the acarbose. I woke up in the am with huge gashes I bit into my cheeks on both sides. There is a bread they mentioned to me that I wasnt to find ...its made out of bean sprouts. They suggested real unmilled cooked oats with almonds...but I'm a maple syrup or brown sugar on Oats fan. I can't do plain...I tried. Butternut squash fares ok with me. I check the glycemic index for low value veggies. Carbs I stick to whole grains...Oh and DREAMFIELDs pasta has been a gret trick...it works for me but doesn't for everybody. I make a pasta with sauteed spinach chicken and roasted garlic that is delishous. I use alot of roasted grlic. it is very healthy and can reduce blood sugar levels. I buy the huge container of peeled garlic cloves at Sams Club and use a 13 x 9 pan to roast it in olive oil for 1 1/2 hours on 300 degrees. I blend it into a paste and freeze it in ice cube trays...when its frozen you can take it out and put it in ziplock bags. I obsess with carbs and checking my blood sugars.

"Life is way to short to live in the past" and "keep your feet on the ground while reaching for the stars"

jennnys609
on 11/9/11 2:42 am
Topic: RE: postprandial hypoglycemia

Lauren, a takedown is the surgeon's term for a "reversal", since they can't actually reverse the RNY. Somehow the surgeon connects the pouch back to the old stomach and your digestive route goes back to using the pylorix and the previously bypasses portion of the small intestine. My surgeon said she would make the stomach an hourglass shape so I could have the sensation of fullness. I am thinkg that with the improved eating habits and all the discipline people like you and I have to practice with regard to what we eat, that we could avoid very much wait regain. But, I am afraid of regain too. I have read about the pancreatectomy, but very much hope meds work, rather than have any surgery. Glad to hear acarbose is $83.99; not as bad as some drugs that cost hundreds without insurance. I am afraid of being without insurance someday and not being able to buy the medicine I need!

jennnys609
on 11/9/11 2:22 am
Topic: RE: postprandial hypoglycemia
How many carbs per meal can you eat now? Is it scary for you to up your carb intake? I am afraid to do it. I wore a glucose monitor all week last week and my doctor encouraged me to eat more complex carbs combined with protein and I did that for a number of meals throughout the week. It will be interesting to see the results from the monitor.

I can be obsessive about counting carbs and use a scale and Spark People website to put in recipes and see what the carb count is. I also have an app on my phone for counting carbs. I was surprixed that with a very dry meal I could eat maybe 15 carbs. I found that a spinach casserole made with cottage cheese, swiss, eggs and spinach and 1/3 slice of sprouted whole grain toast didn't provoke a swing. I was shocked. I tested myself with finger *****s before and 15 mins, 30 mins, 1hour and 2 hours after meals like that to see what my sugar did. However, this week I find myself afraid again to push the carbs and plan on waiting until I am on the full dose of Acarbose before going up as high as 15 carbs again. What are you eating?

Sorry about those gastro issues. It seems like the remedy for one thing causes a problem for something else.
Lauren1979
on 11/9/11 1:19 am - Holden, MA
Topic: RE: postprandial hypoglycemia
 I started at 25mg 15 minutes before each meal for three days and I am currently on 50mg each meal. I am having gastro issues but rather that than the crashing blood sugars. Hopefully I will adjust soon. It wakes me up at night. Surgery will only be talked about if medications don't work and that is the only way insurance will cover surgery. What is a takedown? I've heard of Dr Patti sectioning the pancreas. This cuts down on hyperactivity of insulin production. She has found that people who have had gastric bypass tend to have small cyst like sectios that produce extra insulin. I was actually on insulin injections for 4 months. My origional endo Dr said it would replace my pancreas from even kicking in thus reducing the over reaction. It worked during my pregnancy but after I had her in July it didn't work the same. The only reason I was diagnosed was because I was having what they thought were low blood sugars. A1C was 5.2 and fasting blood sugar was 72. I knew something wasn't right so I borrowed my mom's meter for a week. As soon as I showed it to my OBGYN she sent me to endo. My vision is horrible in my left eye due to corneal edema cause from rapid sugar flucuation. I'm lucky I work for eye Dr.s that will see me even though I am not working right now due to all these issues! Good thing about the acarbose is it isn't horribably expensive. $83.99 out of pocket per month....I don't want to regain weight as that can cause even more health problems!

"Life is way to short to live in the past" and "keep your feet on the ground while reaching for the stars"

jennnys609
on 11/8/11 9:49 pm
Topic: RE: postprandial hypoglycemia
I am glad you saw Dr. Patti. A number of endocrinologists around the country seem very intrigued by our illness. How much Acarbose are you taking? I just started it on Monday at 25mg per meal, to increase to 50 mg per meal in a week and 75 mg per meal the third week. That is to mitigate gastrointestinal distress. I hope it works. I have been starving myself of carbs too. I hope your brain fog gets better; my endo says the nerves in the brain can repair themselves overtime. At least that's how I interpret what she told me. Did she mention a takedown? My plan is to see how well meds work before attempting surgery. I don't like the idea of being on meds at each meal for the rest of my life because I am afraid of what would happen if I didn't have health insurance and couldn't afford my medicine. On the other hand, what new problems might come up with a takedown. I am not to afraid of weight regain as I have learned so much discipline following this low, low carb diet. I bet you have to be hyper disciplined too. Is it hard for you?
Lauren1979
on 11/8/11 11:44 am - Holden, MA
Topic: RE: postprandial hypoglycemia
 Im here on the east coast and saw Dr Patti 2 weeks ago. I started acarbose. Things have slightly improved with my blood sugar only going into the 30's once, but they generally still go into the 60's on a regular basis. I have a very bad case from what she saw on my meter. My endocrinologist from my area that I really thought was using me like a guinea pig surprised me by being at Joslin, the day I went, shadowing Dr Patti to learn how to treat patients like me. I also saw the nutrisionist out there and gained some useful tips. I was starving my brain of carbs due to being so scared of a cra**** will be a long road and they are not sure if my brain fog will ever go away! My goal is to keep my blood sugar above 90 at all times and let me tell you it is next to impossible! I see her again in4 weeks to see if I need added meds or dosage increase. Worst part of acarbose is the gas...I get it so bad it wakes me up at night from being so painful! If you want to see Dr Patti you have to get a referal fromyour PCP or endocrinologist. Most endo Dr's do not know how to properly treat this type of diabetes so seeing someone who does is key. This is a life threatning problem and very scary for me. I know have to carry a glucagon emergency kit and wear a med alert bracelet....I'm doing what I need to do to get better, I have way too much to live for!

"Life is way to short to live in the past" and "keep your feet on the ground while reaching for the stars"

ktbaker77
on 11/6/11 11:11 pm - Gainesville, FL
Topic: RE: BS 110, should I restart metformin?
You do know that 110 after a meal is NORMAL right?
A1c of 5.5 is NORMAL not Diabetic.
        
Tspoone
on 11/6/11 6:58 pm - TN
Topic: RE: Need some advise
 I can well identify with you.  I've had to be on an insulin pump for the past 2 years.  I too took Prednisone for my asthma and watched as my weight grew by leaps and bounds. Add in the co-morbidities of  congestive heart failure, stage 3 renal failure, and the nightly wonders of a cpap for sleep apnea....and it made for a less than stellar existance..

In April I was told that I probably had 18 months (at most) left prior to needing to be on daily dialysis....and that I was not a good candidate for that dialysis.  Transplantation was totally out of the question.  In essense, I was given a death sentence.  My only hope for prolonging my life - very literally - was to have WLS.  Prior to surgery, I made sure I went to each specialist to get clearance for the operation.  Didn't want to take any (unnecessary) chances.  Had an RNY on 9/13/2011.  

They had me disconnect my pump as they took me into the operating room.  I haven't had to use it since..  Only have to take one shot a day of Lantus now.  Because I lost 33 lbs. the first month after surgery - my neck size went down.  With that decrease, I was able to come off the cpap and the prednisone.  The asthma is still there of course, but at least it's more manageable.

I went from requiring 50 mg. of Hydralazine 3x a day to taking 5 mg Lisinopril only once a day.  In all, pre-op I was taking 26 pills a day to stay alive.  Now, I take 5.  WLS obviously can't solve all my problems...but at least it's offering me a chance for some quality of life now.

I know you're scared of the complications because of your family.  It's a very scary thing.  What's scarier still is knowing that if you don't get some kind of help - your chances of seeing those 2 little girls grow up diminish steadily.

Do your due diligence.  Make sure you research all of your options.  Make sure your anesthesiologist takes time with you prior to surgery to allay your fears as much as possible.  I know the hospital where my procedure was performed takes pulminary issues very seriously and monitored me VERY closely.  I'm sure with your history, your hospital will do the same.

Most importantly - take heart.  There really is hope out there.  You've just got to take that major step to grasp it.

All the best to you and your family!




funkyphillygirl
on 11/6/11 7:13 am
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