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adasha
on 1/23/11 4:34 am - Beaumont, TX
Topic: RE: Help.. New fibro diagnosis- How am I suppose to handle this?
So sorry for you!  After 14 years and some recent advice, I think I may have this down.  Here is what the pharmacist printed for me:

The goal of using medication is to improve sleep and pain tolerance. Patients should receive drug treatments along with exercise, patient education, and behavioral therapies.

Duloxetine (Cymbalta), pregabalin (Lyrica), and milnacipran (Savella) are medications that are approved specifically for treating fibromyalgia.

However, many other drugs are also used to treat the condition, including:

  • Anti-seizure drugs (I take Neurontin - the miracle drug - for pain and migraine prevention)
  • Other antidepressants (I take Cymbalta)
  • Muscle relaxants (He suggested Flexeril, but it knocks me out)
  • Pain relievers (Aleve - when taken with Neurontin, it increases its absorption)
  • Sleeping aids (Klonipin)
I also take Adderall for ADD which helps with Fibrofog.  There are some good books to read.  My favorites are The Fibromyalgia Advocate and Fibromyalgia for Dummies.  Here is the link to the pharmacist's info he gave me.

http://www.walgreens.com/marketing/library/contents.html?doc id=000427&doctype=1

Lap-RNY-9-30-03  247/127
Live life today like there is no tomorrow!!!!!

adasha
on 1/23/11 4:30 am - Beaumont, TX
Topic: RE: Help.. New fibro diagnosis- How am I suppose to handle this?
I have a solution for your PMDD - get an IUD.  I had the same problem for years.  I was ready to have a full hysterectomy.  My doctor suggested the IUD.  It lasts for 5 years.  I'm 43 and I'm on my 2nd one.  I don't have periods.  You do at first for about 3 months, then 4 years of no periods, no PMS.  Get the one that has the hormones in it that slowly release.  Keeps your own hormones in check.

I feel for you.  I know what you're going through.  I promise, this is a solution.

Lap-RNY-9-30-03  247/127
Live life today like there is no tomorrow!!!!!

adasha
on 1/23/11 4:26 am - Beaumont, TX
Topic: RE: Migraine Headaches
I have had horrible, curled up on the floor, migraines since I was 12.  They last for days.  My doctor put me on Cymbalta years ago to help prevention.  Recently, my doc gave me samples of many meds to try during one to see which worked.  MAXALT - it's gone in 15 minutes.  It melts in your mouth and migraine is gone.  What I usually do is if I feel one coming on, I take Excedrin Migraine.  If that doesn't do it, it's the Maxalt.  There are no side effects.

Also - since I started Neurontin a few months ago for the FMS (miracle drug) pain, I have not had any that have required the Maxalt.  Maybe the Neurontin helps???

Lap-RNY-9-30-03  247/127
Live life today like there is no tomorrow!!!!!

adasha
on 1/23/11 4:21 am - Beaumont, TX
Topic: RE: Could it have caused it?
I was reading The Fibromyalgia Advocate and it definitely said you can suffer from mild symptoms for years (like me) and that a really stressful event physically or emotionally can cause it to become fully onset (like me).  I had it under control for years until within 6 months I had MRSA, sinus surgery, emergency surgery for ruptured ulcer, sepsis in the liver and spleen after that, causing me to be in the hospital 11 days on mega-antibiotics.  I have never been the same since.  It's fully onset for sure.  My pharmacist recently gave me info that you MUST be on these meds to control it:

The goal of using medication is to improve sleep and pain tolerance. Patients should receive drug treatments along with exercise, patient education, and behavioral therapies.

Duloxetine (Cymbalta), pregabalin (Lyrica), and milnacipran (Savella) are medications that are approved specifically for treating fibromyalgia.

However, many other drugs are also used to treat the condition, including:

  • Anti-seizure drugs (I take Neurontin-miracle drug)
  • Other antidepressants (Cymbalta)
  • Muscle relaxants (Flexeril - only if needed)
  • Pain relievers (Advil, which also helps the absorption of Neurontin)
  • Sleeping aids (Klonipin)
Hope this helps.

Lap-RNY-9-30-03  247/127
Live life today like there is no tomorrow!!!!!

adasha
on 1/23/11 2:56 am - Beaumont, TX
Topic: Can't believe I found this board...
I was diagnosed with FMS in 1996.  It wasn't so bad because at the same time I was prescribed Cymbalta for migraine prevental, which we all know is now also prescribed for FMS.  I had RNY in 2003 and still had no issues with it.  In 2009 I had about 6 months of crazy medical issues (MRSA, sinus surgery, then a perforated ulcer resulting in emergency surgery and septic liver and spleen, with 11 days in the hospital on antibiotics).  Since that time, I have never been well.  The fibromyalgia has come on full force and gets worse and worse.  Unfortunately it's all in my arms (mainly), which I need!  I have gone from a functioning single mother of three to a jobless, hopeless, non-functioning couch potato.  I am trying to file for disability and cannot even complete the application - it's so overwhelming.

I know the WLS didn't make it worse, but I did read in the books that a traumatic event can cause it to hit full on.  I believe that's what happened.

I've tried everything.  My doctor has tried everything.  The other day at the pharmacy (no insurance, paying full price) I was getting a Rx filled.  The pharmacist, an angel from Heaven, asked me what all I was taking, printed out some materials, and then made sure I was taking everything I needed for this awful disease.  Here is what it said:

The goal of using medication is to improve sleep and pain tolerance. Patients should receive drug treatments along with exercise, patient education, and behavioral therapies.

Duloxetine (Cymbalta), pregabalin (Lyrica), and milnacipran (Savella) are medications that are approved specifically for treating fibromyalgia.

However, many other drugs are also used to treat the condition, including:

  • Anti-seizure drugs - (I take Neurontin - just started - MIRACLE drug!!!!)
  • Other antidepressants - (I take Cymbalta)
  • Muscle relaxants - (He suggested things like Flexeril if necessary)
  • Pain relievers - (Aleve - also helps the absorption of Neurontin)
  • Sleeping aids - (I take Klonipin.  If you don't sleep, you hurt)
Here is the link:
http://www.walgreens.com/marketing/library/contents.html?doc id=000427&doctype=1

Hope this helps.

Lap-RNY-9-30-03  247/127
Live life today like there is no tomorrow!!!!!

MainePam
on 1/22/11 9:31 pm - Bucksport, ME
Topic: RE: Sleep mask
Sue welcome!!
When i used a heated blanket it did feel good. I am not using one now.Infact since my shoulder surgeryt in April 10 I am sleeping in the recliner. I hope to get back to the bed. But when I lay down and it all hurts and the fibro hurt who could sleep????
I think I had fibro as a teen .I always remember feeling more tired and my mom said I always needed more sleep.
Post often  fibro sister.
Pam
MainePam
on 1/22/11 9:20 pm - Bucksport, ME
Topic: RE: Views who are ya all
Thanks Gina for sharing and welcome!!!
yes this fibro is crazy!!
I too am usually (don't know how) I present as humor and plugging away. I have two artifical knees and now one shoulder. This winter the cold is killing me. I pushed myself really hard before Christmas. This that I am in, is not like a usual flare where I hurt so bad, this is like a start of a depression. I am still managing my 4 days volunteering at school but I have not been to church for like a month and that is one thing I really loved and usually went no matter what.
I take 4 vicoden a day and fexeril.. Nothing really helps me enough.
Keep in touch your offically our fibro sister now!!!
Pam
lv2readbks
on 1/22/11 7:30 am
Topic: RE: Views who are ya all
Hi,

My name is Lisa and I am new to this web site.  I have Fibromyalgia and I have just gone through gastric bypass.  I am having a difficult time trying to figure out how to use this web site.  Can you nice ladies help me out?

Thanks so much,

Lisa ( fellow sufferer)
    
Hislady
on 1/22/11 6:29 am - Vancouver, WA
Topic: RE: Views who are ya all
Glad you posted! If nothing else just knowing that others are out there in the same boat helps. The only non drug thing that helps me is heat, sometimes I'll just crank my electric blanket up and curl up inside and toast myself. I take cymbalta and that seems to help me, it's also an ant depressant so helps with that too. I sure wish there was a cure for this, wouldn't that be a blessing?! Feel free to pop in any time.
Gina F.
on 1/21/11 3:25 am - Sacrametnto, CA
Topic: RE: Views who are ya all
Hi I am one of the lurking Fibro ladies.  I read your post about a week ago & have been thinking I should introduce myself.  But, where do I begin?  First my profile & all my pics on it seem to be a different person than how I have been feeling lately.  I still look the same but right now I am not feeling like the happy outgoing woman I see in those pics.

I will be honest the reason I have not posted is because complaining about how I feel seems worthless & not helpful to anyone.  I look on here to see if anyone has tried a medication or anything that might help me too.  I just tried Neurontin, I only got up to about 500mg & was hungry all the time.  I gained 5 pounds while on it, so I decided it was not worth it since I felt no change in my pain.  I did not want 5 pounds to turn into 10lbs etc...  I had WLS 2.5 years ago & have stayed the same weight consistently despite being unable to exercise.

I was just officially diagnosed after finally being referred to the pain clinic.  I have been pretty sure I had fibro over the past 10 yrs off & on.  But, it was in 2009 that I had my confirmation by having a flare that was systemic & lasted months.  It was terrible it was brought on by both emotional & physical stress.  Since then I have had flares but have been managing.  I had my plastic surgery Sept. 27th 2010 & since then I have been in a heck of a flare.  Combined with it being wintertime & being in pain every single day I am becoming depressed.  I always have a rough time in the winter due to the lack of sunshine & the cold.  So I know this to will pass...but some days I have a hard time seeing that far out.

So meds wise I just take 1/2 percocet every 4 hours PRN to take the edge off.  I take antidepressants that normally work well (just having a rough couple weeks), & I take Klonopin before bedtime to sleep.  I have the best bed in the world but still wake up in pain every morning.  Yet, a trip to the store sends me back to bed because my body hurts so much.

I just bought a 1mm wetsuit to wear to gentle water aerobics.  I went yesterday on my own to try it out in the heated outdoor pool.  It helped but the cold is still rough especially when getting in & out because it is not an indoor pool.  I felt like I had worked out like crazy & was so sore.  But, I have to force myself to do it otherwise I am going to turn into a bowl of Jello! ;-)  As you all know it is a fine balancing act.

The pain clinic Dr. recommended acupuncture, gentle water aerobics, & Bowen therapy.  She also gave me some pod casts to listen to that are like meditation relaxation sessions.  I have not started anything but the meditation & water aerobics so far.  ANY MIRACLE CURES YOU KNOW OF PLEASE SHARE! ;-) J/K  I know there are none, but I would love to hear what helps others most so maybe I can try it.

Okay this was VERY LONG!  It is not really "who I am" but right now I feel like it defines a large portion of my life.  I am also a mother of 4 girls, a wife to a wonderful man, & I just want to be able to spend more time with them & enjoy them.  My 5 yr old was talking about wanting to go to Disneyland the other day.  I said sure we can go there someday soon...  She said "no you can't Mom because you'll be too sick".  That is how my 5 yr old sees her Mommy... as sick or hurting all the time.  I want to take her to Disneyland someday, even if I have to rent a scooter I told her I will take her!

Okay, I introduced myself.  I don't think it will be very helpful to anyone.  But, I did it & that is a good start.
Gina Farrell Passion Parties Consultant
RNY 9-18-08
HW-260 Consult Wt-246 SW-218 GW-150 
CW-148  5'8" BMI 22
9-27-10 LBL & BL/BA- Dr. Sauceda, Monterrey, MX :-)
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