Recent Posts

AliciaDDG
on 1/6/11 8:30 am
Topic: RE: Views who are ya all
If you are to go on disability, will it be from work? Like do you have disability insurance? I hope so. that is something that I have always paid for when I start a new job. My dad became disabled and he had no disability insurance. He and my mom have had it pretty rough. She has to work so they will have insurance to pay for their medication and doctor bills.I worry about how long I will be able to work. I am a special ed teacher, so my work can get pretty physical. I hope to work retirement.
            
Hislady
on 1/6/11 6:09 am - Vancouver, WA
Topic: RE: Views who are ya all
This is all so common with fibro, that constant body wide ache, I truely pray that someday soon they will come up with a cure not just treatment. I didn't used to have the fatigue part of fibro but have started having that issue recently so I know how that feels. Some days I just want to sleep 24 hrs. straight. Know we are all here and understand exactly what you are going thru.
sleepyjules
on 1/6/11 4:08 am - Centrally located in, IL
Topic: RE: Views who are ya all
***Please read this post all the way through before making an opinion of WLS***  (this is for any pre-op lurkers that might be out there!)

Unfortunately, I suffer more now than before I had surgery.  I have read studies where it is believed that each "trauma" your body endures will make your Fibromyalgia more prominent or worsen your symptoms.  I have had many surgeries in the last 12 years, starting with a c-section.  Each time i had surgery my FM symptoms did worsen.  It was not until after I had my Duodenal Switch, and started losing weight that I realized that something more than just my obesity was wrong with me.  I had my DS 2 years ago and fought for a diagnosis until 2 months ago.  All along I blamed everything on my weight, you see.

It was about 6 months ago that I started researching for myself on the internet for answers.  Not until then did I realize that many symptoms that I had been suffering silently about would have helped my doctors diagnose me sooner.  I ended up writing down all of the symptoms down that I had been suffering with, taking them to my PCP and said this is why I think I have Fibromyalgia.

I suffer every single day.  More so from the Chronic Fatigue, but I believe that is due to not being able to treat it successfully with medications.  I am feeling better most days as far as the pain is concerned.  I still hurt though. I am a 37 year old and am considering disability.  I have not been able to work since October 2009, and should have stopped working in May 2009.  I risked way to much by continuing to work, but there is nothing I can do to change what is already done.

I cannot even begin to imagine the world of hurt that I would be in had I not lost my excess weight.  Nor do I believe that I would be here with a correct diagnosis either.  As I reread this post I realize that I am rambling, but I hope it has in some way helped you or someone else who may be reading. 

My heart truly aches for anyone suffering with this disease.  Peace be with you.

Julie     


ILIVEBYFAITH_NOTW
on 1/5/11 10:13 pm
Topic: RE: Views who are ya all
well today is another day and it was so hard to get out of bed today. my alarm must of went off like 3 times and didnt hear it. My husband had to wake me up to ask if i was going to work. yesterday was not a good day and i have a feeling today will be worst. i had these big cramps in my hands like if i had bad arthritis and couldnt keep my fingers from bunching up. does anyone else every experience that with fm? Than just this morning i feel a bit of discomfort everywhere today. Usually it's just my shoulder but this morning I'm just all pain. I am so fustrated that continue to pray that one day I can log YEAH NO PAIN TODAY but soon, I have faith that will one day happen.
Eula "Evie" R.
on 1/5/11 9:26 pm - Mount Nebo, WV
Topic: RE: Will WLS help??

Hi Pam,
How was your Christmas and New Year?
You must of had a hard childhood if the kids are like they are today. A lot of people does not take time or care to look inside someone that is overweight. Don't look inside the heart. This makes me so upset. I guess if they never been there it is hard for them to understand. I know this has happen to me, it hurts, but I really feel they are the lesser person.
So you are doing ok with yor band? I am still am on the 6 month diet haven't finished the first month yet. Be around June. It seems like a long way off. Hang in there.

God Bless
Evie

IamBlessed-54
on 1/5/11 1:56 pm - VA
Topic: RE: Three Supplements that seem to help my FM

Hi there, I am new here also.  Where do you get the SuperSnooze and is it expensive?  I was just put on Cymbalta (120 mgs. daily) and not sure when to take it since it can cause insomnia, which I struggle with. Or better to take at night because it makes you drowsy.  My dr. did not specify and I am unable to reach her.  Would taking the S.Snooze interact with the Cymbalta? I also had GB surgery in 2004 and have FM.Has not been DX'd yet-I just moved to new area and am looking for new drs.I am on the Cymbalta for depression/anxiety/FM.  Thanks for any help I can get-seems like the only help we get is from each other!  God Bless each one of you on here.      (Jan)

AliciaDDG
on 1/5/11 10:39 am
Topic: RE: Views who are ya all
Fibro. is a hard thing to live with it is true. And a lot of people do not understand it. Since my wls I have a lot more energy, but I still struggle. Do others continue to struggle?
            
MainePam
on 1/5/11 5:24 am - Bucksport, ME
Topic: RE: Will WLS help??
I doubt I will loose more.I have severe arthritis and it hurts to bad to do the exercises , I am to be 64 yrs next month. I think you can look on this site and it explains the different surgeries.It could explain it a lot better than I could. I by all means still get full faster and thhere are things i cannot eat.  I started at 470 so I was bigger and will never see the 100's. I weighed 200 in 6th grade.
Look forward to your next post,
Pam
MainePam
on 1/5/11 5:15 am - Bucksport, ME
Topic: RE: Views who are ya all
Congrats Alicia on your weight loss !!!!!!!!!!!!
My daughter whom is 38 and has fibro she has awful Migranes but she has had them since she was like 2 yrs old. Nothing helps and she has been to a neurologist.
Glad you posted and look forward to you posting again.

Pam 
MainePam
on 1/5/11 5:08 am - Bucksport, ME
Topic: RE: Views who are ya all
welcome sleepy. Please do not feel you do not ave anything to contribute,even  hearing there is also someone else dealing with the same things make us feel not alone. I too have such a hard time dealing with the fatigue thats hard. I volunteer 4 days a week wuth teenagers. I get off at 2:00 and when I get home like 15 minutes later I am ready for bed.it is hard...
Please keep writing in.
Pam 
Most Active
Recent Topics
×