I was diagnosed with FMS in 1997.  At that time, had been having bouts of days/weeks in bed...not really pain.  After moving to AZ and getting married (stressful enough), in 2002 I started having pain in my hands, mostly.  The bouts of bedridden fatigue continued...

Had my open RNY in 2/2005... about a year later, WHOLE body pain set in... Had a revision 11/'08, which nearly killed me....I suffered with such severe malnutrition for a year...which also led to malabsorption of needed fat-soluble vitamins resulting in severe hemolytic anemia...and ended up having to have that reversed (along w/my appendix removed), and also a 4th surgery--gall bladder removal--12/2009, just almost a year ago.  Right after this last surgery, the reversal, I have suffered with such EXCRUCIATING and debilitating pain, which has spread to my joints as well.  I also am now suffering with muscle twitches/spasms when I am flaring... 

These incredible flares are indeed FLU like...as you stated.  Just last Sat I had another severe flare, which put me into bed for 4 days... During this time, I became even MORE depressed... I am certain it's more than FMS...at least in my mind..... I have developed, as I said, muscle twitching, as well as my tongue deviating/pushing to the R (against my teeth) inside my mouth.  This is why I feel I have something more, but do not know where to turn, doctor-wise. 

I am at the end of my rope, many times, and like you, am frustrated.  I don't think its FROM the surgery...but, I do believe it was all exacerbated by the surgeries.  I am frazzled and stressed all the time over this, and have not worked in over a year. 

All I can say is, hang in there.  I hang....but sometimes it's by a noose.  :)

My goodness you've certainly been thru the wringer haven't you?Any kind of stress can bring on fibro or cause a flare. The pain in scar tissue could be a form of neuropathy from nerve damage. I have very painful scar tissue on my feet from several foot surgeries. So far the narcotic meds I take for my arthritis keeps it under control but I think there are several drugs you can get for neuropathy, one I can think of is neurontin, you may want to ask your doc about it. Also there are several meds to help with the fibro, lyrica, cymbalta and savella. If your regular doc doesn't seem to understand try a rheumatologist or pain management clinic they are both good for treating the fibro. Good luck it can take awhile to find the right treatment. 

Both my T3 and T4 levels are elevated.  I am taking a med that is supposed to 'shock' my thyroid into being a good little girl.   Since the levels are coming down very slightly, the endo say's I'll probably be taking it for a year.

We'll see after that.  If not enough progress they will consider taking my thyroid out.

I'm glad you have found relief.  I will continue seeking that also.

Thank You, I know my fibro flares post op, that is why I looked into the Fibro&Fatigue Center.  I can not believe how good I feel now, and how much more energy I have.  I had days I could not stay awake today I made home made asparagus soup, baked squash( will freeze soon)  and sweet potatoes froze beets turnips and rutabaga.  I would not have been able to stand long enough to chop up the veggies for the soup before due to pain and fatigue.  I am concerned because after this taste of feeling good I don't want to go back to the way I was in August.  Thank You for responding
Lyn

I understand completely.  I was on Lyrica and Cymbalta.

Lyrica made me hungry and I gained weight.  It also made me fuzzy, I just wasn't on top of my mental game anymore.

Cymbalta helps - I take 60mg twice a day.    Trazadone helps me get the REM sleep I need to help overcome the insomnia / increased pain.

I do stretching exercises for 15 minutes first thing in the mornind, following by a warm/hot shower,  That really helps a lot.

Then at noon I walk with my cane for 15 minutes.  We will be working up to 20 minutes after next months doctor appointment.

Keep your diet as pure as you can.  Protein ( I do shakes) and veggies, fruits. Anything that your body has to work at to break down.

I use Vicodin 5/500 for the breakthrough pain.   Some days are worse and I take more, some days are better and I take none.   I rarely have a day when I feel great.

If you go the narcotic pain reliever way - remember to take a stool softener.  Colace is pretty good.

It takes time to come to terms with it.  Try not to fight it, meaning find ways to get more rest for your body and mind.

I know I can't do groceries after doing a 9 hours workday, so I stopped stressing about it.  DH does it or we do it on Saturday.

A Saturday movie and groceries is about the extent of activity I can tolerate.   Or shopping and a movie (although I admit, I sometimes fall asleep at the movie).

Find your comfort zone and be sure to put yourself first.   It's nice to want to do things for others, but with fibro you will find others must do more for you now.

Take care.