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TinkL *.
on 11/22/10 4:55 am - Columbia, SC
Topic: RE: Tapering Off Of Lyrica

I was on 300mg of Lyrica twice a day.   60 mg of Cymbalta twice a day.  I have gained back 40 pounds.  When I was taking the Lyrica I had a lot of short term memory loss.  I am known for being able to be give a single word topic and I can recite conversations about it from months ago.

This severly impaired my ability to continue my job.  One day the doc took me off the Lyrica and put me on Trazadone 50 mg at night only. 

I now have a bit more pain.   But I also have my memory back and I don't feel as though I am moving through a fog all the time.

Honestly I aged 20 years in brain power in 2 months of Lyrica.

 

 

TinkL *.
on 11/22/10 4:48 am - Columbia, SC
Topic: RE: Lyrica post surgery
I was given Lyrica last Jan for fibro.   It caused me to crave carbs and I gained weight.  Then I had some heart issues and now I'm being treated for Graves disease.

All of the above isn't solely Lyrica, but I'm doing better on other meds
TinkL *.
on 11/22/10 4:30 am - Columbia, SC
Topic: RE: Queston

Pre op I was dx'd with polymyalgia.   Just the hips and shoulders. 

Pre op I had low thyroid levels and was taking 88mcg of synthroid.

Post op - at 4 years - full blown fibro.  Vicodin is the only drug that touches the pain.

Post op - I have been dx'd with Graves disease.   The meds they are using to control this are also wreaking havoc with my white blood cells.   I am currently in my 3rd week of a cold that has left me weak, hoarse, coughing 24/7.  The doc is calling in a 2nd script of something else to ease the cough but still viral so no antibiotics will work.

Vicodin use has been upped to 2 x a day from 1 time a day.  Because I work full time, I only take my pain meds at night.  

I think I would look at a surgery that does not create malabsorption.  I am also protein deficient, and take mega doses of Vit C and D3 (dry D) 

Iron is low side of normal. 

Do a lot of research - I don't know that the surgery made it worse, but it is very hard to deal with both pain meds and deficiencies since we don't eat much.

Tink

Leza F.
on 11/21/10 8:41 am - Wheat Ridge, CO
Topic: RE: Cortisone Shot?
That sounds like my shoulders.  I have fibro BUT, I have calcific tendonitis and bursitis in my left shoulder that was found by accident when my rheumatologist was looking for changes consistant with psoriatic arthritis.  I would ask about getting it x-rayed.  It is VERY painful.

Steroid injections have worked very well for mine, although I'm not sure if we can have them post op...?
http://lezabug.blogspot.com/
http://barigurl1976.blogspot.com/  Going Bariatric on a Budget!!

 

amystone
on 11/21/10 5:13 am
Topic: RE: Cortisone Shot?

I agree with the others. Thank your lucky stars that it's probably not Fibro.
I hurt all over. With the weather changing, mine has flared, and the worst of it is in my shoulders, and radiates down my arms and up my neck.
I have had a headache for weeks. When the headache first hit me, I thought I would die. It really was debilitating. It hurt so bad...I cried.
I hurt all over all the time, but when I say I have a flare....I still hurt all over, but it gets really bad in certain parts of my body. I have not had a pain free day in so long, I couldn't tell you when. When mine first started I would have some pain free days, but not anymore.
I sure hope you get this figured out, and I sure hope it's not Fibro. I don't think it is, but I'm not a doctor.

Take Care,
~Amy~
OregonGal
on 11/20/10 6:56 am - Beaverton, OR
Topic: RE: New to the board
Welcome, Leza, to the board!  Diagnosed with FMS/CFS 25 years ago, I have tried a smorgasboard of treatments, meds, acupuncture,, natural supplements,you name it.  After losing 185 lbs., I wish I could tell you the pain is lessened, but for me it has not.  The most important thing, though, I've learned is water workouts, stretches,and laps brings me the greatest relief, even if it's short term, as long as I don't overdo it, but keep moving. Thankfully, I live near a pool that's set at 89 degrees which makes the difference too.  I would highly recommend you to start this before surgery, not only for the fibro, but to get into a routine with it.  The hardest part for me, are my 12 hour workdays where I can't make the pool.  I can really tell the difference on my days off when I can go consistently.  You mentioned psoriasis - funny thing is, I had a mild case for years, prior to surgery, but it went away after.  Don't know if it's related to a food allergy and I'm no longer eating whatever food caused the problem?

All the best on your upcoming surgery ~
Anne
        
(deactivated member)
on 11/19/10 6:34 am
Topic: RE: Cortisone Shot?
thanks guys that does sound promising hopefully next time i see my doc she can send me to a specialist...
Hislady
on 11/19/10 6:21 am - Vancouver, WA
Topic: RE: Cortisone Shot?
I agree with Rejoyce doesn't sound like fibro (thank your lucky stars!) sounds more like arthritis or bursitis. I think the best place to start would be a rheumatologist they treat all of the above so they can tell the difference. I truely hope it's arthritis because fibro is body wide and constant. If worse comes to worse you may be able to get a shoulder replacement. Good luck to you!
anewlyfe
on 11/19/10 2:28 am
Topic: RE: Hi, seeking a fibro friendly dr in Rhode Island.
 Found one... Wendy Silversmith.  I asked my surgeon, since I figured a good number of people with the band probably had fibromyalgia.  

She's started me on Savella.  Way too early to notice a difference yet, but here's hoping!
Rejoyce
on 11/19/10 2:14 am - Dayton, OH
Topic: RE: Cortisone Shot?
This doesn't really sound like fibromyalgia to me.  Sounds more like an injury, bursitis, tear, something like that.  Fibro is more wide spread.  Cortisone shots don't really work for fibro, because you would need shots in too many places, and it would cause the muscles to atrophy with prolonged use.  Good luck with your doctor!  Hope you find some relief.

Joyce
Life is just a stage I'm going through...
HW:253  SW: 230  CW: 170  GW: 140

    

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