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(deactivated member)
on 11/18/10 2:07 pm
Topic: Cortisone Shot?
Do cortisone shots work for fibro?...i havent been officially diagnosed but ive had a constant pain in my shoulder blade that moves up towards my collar bone...its been there for the last 12 years it started out slowly like a stinging now its like a hot needle and it always starts in the same place in just at the tip of my shoulder blade...then when it finally relaxes my whole neck is sore like the muscles in my neck where twisted up to tight while the pain was digging and stinging at my on my shoulder...ive had xrays ive been to physcial thereapy i go to the chiropractor who gives me a massage therapist and it releives the pain only temporarily but as soon as im at work or i work at home or work out or any other activity it starts to flare...my primary care has so far ingored me but im going to insist for her to get me diagonesed next time i see her...i shouldnt say she has ignored me i think she was more concerned with my vitamin d deficency and my weight loss surgery plus my low thyroid and high blood pressure...so i think that was more her priority...
Kristy
on 11/18/10 12:02 am - ID
Topic: RE: Queston
With my experience of being almost 5 yrs post op RNY, it is actually any surgury (not weight loss related) that could cause a flare up of Fibro.  I had a partial hysterectomy 3 yrs ago, and that is what set my Fibro thru the roof.  PLus any trauma whether physical or mental, can cause a flare of Fibro.  Physical being a car accident and mental being a death in the family.  During my flare, I had a couple of deaths around 2 months apart, so I had a triple whammie.  I also take a thyroid supplement and have for about 15 yrs.  I use the Fentanyl patch since I don't absorb all of my meds, and I use Norco as a break thru med.  I do find that my thyroid dose changes but it does that anyway due to changes in your body.  Perhaps the Duragesic Fentanyl patch is a good choice for you if you do have wls.  I use the 50mcg.
Sara E.
on 11/17/10 2:08 am - Pennsylvania Furnace, PA
Topic: RE: Lyrica post surgery
I had to be taken off lyrica immediately following surgery due to endocrine issues.  I don't  care...I am so much healthier now.
Sara


 

 
 


Crysti S.
on 11/16/10 2:14 am
Topic: RE: does wls help any at all?
A  BIG nope.  I wish.  I put off anymore "maybe it's this.. or that" until after my surgery to see if it was weight related but unfortunately it wasn't.  Sorry. :(
Highest: 245 / Surg Day: 233 / Now: 166 / Dr's Goal: 130

divadruid
on 11/16/10 12:43 am, edited 11/16/10 12:43 am - WA
Topic: RE: Help.. New fibro diagnosis- How am I suppose to handle this?
First off, I would like to thank you call for posting. I realize I do need the support from others suffering this condition. My kids are empathetic to the pain I feel, they just don't seem to understand why I am in pain all the time.

I am on several medications to try to control it. I guess it's just not quite there at the levels I need to quiet the pain and allow me to more good days than bad. I am taking Lyrica twice a day, Baclofen three times a day. I take a medication for my migraines that also affects my blood pressure. Sometimes it gets very dangerously low. ( 89/42 is the lowest it has been). That is on top of taking my vitamins, calcium, magnesium oxide, and protein shakes.

My days seem to have three different types. I have my good days. Those are few and far between. My bad days which seem to be tolerable for the most part. Then there are the really bad days. These days are REALLY bad. The pain gets to be so bad I am curled up and have to walk with a care just to make it to the restroom. These are the days I am crying a lot.

And I am rambling on.....
I really appreciate you sharing your plight with me and what is working for you. I see my doctor quite frequently.
I have friended those that said I could and I hope to talk to you. I will be visiting this forum more frequently. Thanks again for the support.

Sofia

Rejoyce
on 11/15/10 7:49 pm - Dayton, OH
Topic: RE: Help.. New fibro diagnosis- How am I suppose to handle this?
I too am sorry that you have joined these ranks, but I want to encourage you that in time you'll find a way to have a modified quality of life.  I agree with the previous posters about seeing out a specialty clinic or a rheumatologist.  I have found considerable relief from the following things:  1) Lyrica, a prescription drug, some people can't tolerate it and I had to very, very slowly increase the dosage.  I was at the lowest dosage once a day for a couple of weeks before we could increase the dose and it took about 6 months to get me to a therapeutic dose. But, it was worth it, because I am now able to work again.  It helps my sleep and has greatly reduced the pain and fatigue.  2) an antidepressant, I take cymbalta now, but that is after trying multiple other medications.  It does more than treat depression, it has a direct impact on the Fibro.  3)  I've found yoga and other stretching exercises greatly reduced my pain and migraines.  4)  I use tennis balls to apply pressure to tender spots, it hurts, but if you can stand it, it will help release the muscles and reduce the pain (learned this at a pain clinic).  If you want more specifics, please let me know.  5)  Give yourself a lot of room to grieve and to just take care of yourself...this is extremely important, for as much as other people will judge us, because they don't understand, we tend to be our own most critical judge.  We expect ourselves to be able to do more, be more.  The more you do this, the worse your situation will get, so love yourself and forgive yourself for not going to that family event or important meeting when you just can't do it. 

These are some of what helped me, but like a previous poster stated, we are very individual and all you can do is try some suggestions and see if they work for you.  By the way, I have no idea why this is suddenly underliming my text, so please excuse it, as I don't know how to turn it off.

Please call on some of us, you do need support, we will not judge you and can listen and perhaps offer useful suggestions, but most important just be there for you.  Please feel free to "friend" me and to keep in touch.

Joyce
Life is just a stage I'm going through...
HW:253  SW: 230  CW: 170  GW: 140

    

Janet Pratt
on 11/15/10 1:41 pm - Parry Sound, Canada
Topic: RE: Tapering Off Of Lyrica
The other things I find that has drastically happened is my vision. blurry blurry, I never reached for magnify glasses until I used Lyrica and didn't put the two together. I have read the package info and found a side affect is blurriness and its all the time. I didt have this when I was not taking it. One more reason to discountinue the use.
Hislady
on 11/15/10 12:00 pm - Vancouver, WA
Topic: RE: Help.. New fibro diagnosis- How am I suppose to handle this?
I'm so sorry you have joined our ranks. My best advise is to educate yourself on our horrid disease. There are lots of fibro support groups on line and hopefully you can find one near you. As for the pain heat often helps but the biggest problem with this disease is what works for me may not work for you, everyone is so different in what helps them. Yes, do see either a rheumatologist or pain clinic to get treatment, there are several new drugs that help, myself I take cymbalta and it helps alot. You ask how to continue work and daily life, well you will have to learn to take advantage of your good or at least better days. There will also be stretches where you may not be able to live a normal life. Some folks even have to retire and go on disability. You will need to accept that your life will never be the same and learn to adapt and change how you live. If you have any other questions feel free to PM me and I'll be happy to chat with you, it's a devastating diagnosis and you need to talk and share with friends and family so they will understand you aren't being lazy that you do have a disease. Keep in touch here and we will all help you with this new life.
battlyn
on 11/15/10 7:04 am - NY
Topic: RE: Tapering Off Of Lyrica
my doc blames part of my not being able to loose weight on the lyrica and tried to take me off of it we had to go back on a low dose.  It can cause water weight gain.
battlyn
on 11/15/10 7:00 am - NY
Topic: RE: I've join the group
after my husband died I had to move many many years of things a lot that the kids had left when they moved so I got large dumpster- twice and a lot went to the dumpster( some that I would have kept otherwise)I went from a huge farm house with 4 bedrooms, huge living room dining room and kitchen 1 bathroom and 3 large halls to a single story 2 bedroom house with a roomy living room smaller dining room and kitchen and 1/3 of the garage space. I had lots of help but hurt more on days I worked hard on packing.
I did find out that plastic tubs work better than boxes for many things especially if you can unpack it and go back to repack the tub.
remember hot showers are our friend spend a lot of time in it to get the heat deep into those sore muscles!
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