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battlyn
on 11/12/10 5:29 am - NY
Topic: Queston
I went to my fibromyalgia MD this week, my visit went very good (she was very pleased that my pain is under control so much I do not use my cane) I asked her about the malabsortion and the medication after surgery. She advised me against the surgery (RNY) due to there is a good chance that my symptoms will really worsen again.  She also encouraged me to do diet and excersize as tolerated to loose weight, now we have the thyroid medicine corrected .  I am now on the fence, so my question is what are your experances ith this.  I was not expecting the pain to get better but had not concidered that it would worsen  due to not being able to absorb enough of my medicine.
Thanks ,
Lyn
Janet Pratt
on 11/8/10 12:30 pm - Parry Sound, Canada
Topic: RE: Tapering Off Of Lyrica
I've been on Lyrica now for 2 years and the doc has reduced the dosage.  I want to get off of it.  I blame it for making me hungry!  I have put 25 lbs and I'm very frustrated.  I'm going to have my nerve tested in my legs again......... and tell them I want to stop lyrica.  I was doing fine with my weight loss and its gone down hill since this.  I would rather take more oxycocet instead of the lyric.    I'm glad to know I'm not the only one who experienced weight gain onthis med.  
idatate
on 11/8/10 10:51 am - Ferriday, LA
Topic: RE: ugh, paying for it today..
thanks for your reply...i was still recuperating today and slept in for a long time....wow, we are having rny surgery on the same day!!!! yipeee!!! 12/14....5 more weeks....so very ready to have this surgery

Ida Tate

MainePam
on 11/8/10 5:55 am - Bucksport, ME
Topic: RE: ugh, paying for it today..
Yes thats what gets me when we do have a good day, and do things we pay for it!!
Even when the weather changes to good, I hurt...

Hope you feeling better..

Pam
Leza F.
on 11/7/10 2:12 pm - Wheat Ridge, CO
Topic: RE: ugh, paying for it today..
I know what you mean.  The weather here in Denver has been GREAT, especially for this time of year and I've been working on the house...hoping to get everything done before my surgery on 12/14.  Just when I think I'm getting ahead of the game....I get slammed by a flare up and it takes me 5 minutes to walk upstairs. 
http://lezabug.blogspot.com/
http://barigurl1976.blogspot.com/  Going Bariatric on a Budget!!

 

Hislady
on 11/7/10 11:43 am - Vancouver, WA
Topic: RE: ugh, paying for it today..
Sorry you're having a rough day. That's one of the things I really hate about fibro that when we do have a few good days we try to get as much done as we can then end up paying for it for another few days. Just know you aren't alone in that, I'm sure we all do the same thing! Gentle hugs coming your way.
idatate
on 11/7/10 12:39 am - Ferriday, LA
Topic: ugh, paying for it today..
after having very busy last 2 days, woke up today hurting everywhere...friday and saturday the weather here in northeast Louisiana was beautiful and i felt very little pain...so i was out running errands, cooking, going out to visit friends, hanging with my soon-to-be 15 year old son, and going to football game; but today i am paying for it...arthritis pain and FM pain has kicked in hard, pressure point areas are flared up and hurting, aching all over, knees/shoulders/hips/back hurting like crazy....have to stay home and relax today.......

Ida Tate

TV2Night
on 11/6/10 9:47 pm - Hackettstown, NJ
Topic: RE: does wls help any at all?
I've got one for you... Prior to my WLS I missed 3 months of work in a year and then 6 months the next year.... I woke up in discomfort EVERY DAY and many days it was just down right Miserable Pain.  I was taking 15 meds a day and my anti-inflamatory 9 pills a day ... my life was spent in the Physical Therapy office trying to get some relief...
GOOD NEWS.... I had Gastric Bypass 6 years ago... dropped 110 pounds and got a HUGE RELIEF of my Fibro pains.  My Pain Management Docs specialize in Rehab Medicine as well... and they are Great!  I went from 15 meds a day to 3 meds a day.... the weight loss truly gave me a new start.... No longer diabetic, no more sleep apnea, no more heart issues... My sleep disorder and IBS are still here but much more manageable.
We as the patient do have to take an active role in our own care and learn to listen to our bodies.  When my IBS flares or my sleep starts to get affected I'm at Gastro doc or my sleep specialist (who happens to be my Primary-bonus).  I also feel you need to work with docs that Believe we do have a "real Condition" and will take us seriously.

I still have Fibro.... but I wake up many days pain free.  when I have a flare I call the doc and address it.  Two years back Dr. Burak Alptekin started treating me with Lidocaine Infusions when I got a flare.  It's an IV treatment done in office , takes about 45 minutes and we do it 3 - 5 treatments two weeks apart.  When my body flared two xmas ago... we did it and it lasted about 6 months.  Then we did it again and here we are going on 18 months and still feeling Good!  I do have arthritis and have a bad knee and currently have a torn rotator cuff.... these we treat with PT, but still haven't kicked off one of those god awful flares.

So my quick answer is YES.... My WLS... definetly helped me to get refief from my Fibro.  It is much better controlled now and I'm more trained in how to handle it before it gets to out of whack! 

If you live up in Northwest NJ and need some good Doctors to help:  Dr. Michael Gutkin, Dr Burak Alptekin are part of THE ORTHOPEDIC INSTITUTE of NJ 908-684-3005.  Dr James Smith is in Budd Lake NJ and he is a Primary Care and a Sleep Specialist AND HE UNDERSTANDS FIBRO 973-426-8484 Gastro doc is Dr. Daren Blumberg 973-401-0500 and my LIFE SAVER.... Dr Alexander ABKIN -Advanced Laparoscopic Surgeons he did my Bypass with Dr. Bertha 973-410-9700.

Good Luck on your jourmey!  Pat
battlyn
on 11/4/10 1:44 pm - NY
Topic: RE: Three Supplements that seem to help my FM
Every one has different causes and responses with FM, that is why my fibro MD does a barrage of labs to check hormones, blood counts, thyroid, heavey metal, infectious processes plus many more.  She explained to me that starting a good sleep pattern was a key to begin and gave me a natural mixture.  You make HGH while you sleep that repairs cells.  I started at a low dose and slept 12 hours only getting up x1 for go to the bathroom.  I usually woke up every one to two hours to turn because of pain so it was a great difference !  The blood work has brought many more things to light and I know can walk ith out my cane for the first time in over a year!!  My GP is so pleased he ants to talk to her to learn more about treatment of fibro.  I had thought my life was only going to be about pain now I have days that are with little to no fibro pain and the artheritis pain is down also . 
I am in the process of getting an RNY  so I can loose some weight to help.
Leza F.
on 11/3/10 9:19 am - Wheat Ridge, CO
Topic: RE: Three Supplements that seem to help my FM
I think fibromyalgia affects everyone DIFFERENTLY, therefore cookie cutter treatments don't work for everyone.  There is a clear deficiency somewhere with fibromyalgia that has yet to be found in the overall population.  I think some people respond well to homeopathic treatments while others respond to western medicine. 

Mine responds well to SSRIs (zoloft, wellbutrin and the like), zyrtec/benadryl (chronic itching b/c of a mast cell issue and sleep) and the occasional flexeril or vicodin for the breakthrough pain.  Cymbalta/Lyrica/Savella don't work for me as they cause horrific weight gain and dizziness.  Many of my patients responded well to them but not the medications I take.  I responded well to acupuncture, but it didn't work for my friend Jessie that has fibro and lupus.  

I respond to the magnesium, but have never tried the others.  Thanks for the suggestions!
http://lezabug.blogspot.com/
http://barigurl1976.blogspot.com/  Going Bariatric on a Budget!!

 

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