Recent Posts
Topic: RE: Suboxone or Plaquenil anyone?
Took Cymbalta for a while then I was driving down an express way one day and every time I blinked I had a new hole in my vision. I was terrified and kept trying not to blink as I got off at the first exit. I figured out it was peaking so took a knapp in a hospital parking lot for two hours and was better. Never took that again - it scares me I though it may blur my vision not out holes of nothing in it. It was not improving my pain either.
Topic: RE: New to the board
try to look up a fibro specialist, make sure you are on a good amount of B vitimins and vit C to help your immune system. My fibro was extreemly helped by the Fibro and Fatigue Center inc because they know what they are doing- did all the right test and found out what is wrong in my body chemistry. I knew that any surgery excerbates my fibro pain severly so I am trying to get a head of it now. I am putting my cane down for the first time in a year, my primary MD was so pleased with my peogress when I went to his office last time.
I have many allergies I would suggest that you have them checked as hen I get nice and cosy warm under the blankets I will ich. It is better when I stay away from the foods(10) and things (10) that I am allergic to. It sounds like an immune system responce I guess. try to sleep "cooler" if you can- it sometimes helps me when I am not to warm.
For your diet think organic, raw veg and fruits, decrease yeast products to start keep your food diary note when you ich more or ich less, repeat it see if stays true. kind of a trial and error thing. When you get your allergy results see if those were the tings that you elemated to feel better.
Good Luck !
Lyn
I have many allergies I would suggest that you have them checked as hen I get nice and cosy warm under the blankets I will ich. It is better when I stay away from the foods(10) and things (10) that I am allergic to. It sounds like an immune system responce I guess. try to sleep "cooler" if you can- it sometimes helps me when I am not to warm.
For your diet think organic, raw veg and fruits, decrease yeast products to start keep your food diary note when you ich more or ich less, repeat it see if stays true. kind of a trial and error thing. When you get your allergy results see if those were the tings that you elemated to feel better.
Good Luck !
Lyn
Topic: interstitial cystitis?
Does anyone here who suffers from fibromyalgia also have interstitial cystitis aka painful bladder syndrome? I do not have fibromyalgia, but I do have IC and know that they are sometimes linked. If so, how do you manage your IC? I have just been diagnosed and would like to hear others´experiences.
Thanks!
Thanks!
Topic: Spinal stimulator
Boy I just had a spinal stimulator trial and I don't know if they ever thought about using this for fibro or not but it sure gets rid of the pain where it is working. Maybe it won't work body wide but it sure has helped my back and legs. I have it for degenerative spine but maybe something to consider for fibro pain. Just my feeble 2 cents worth. Gonna ask my doc about it tomorrow when I see him.
Topic: RE: does wls help any at all?
My mom and I both have fibro and arthritus. I also have neurological pain, feels like someone is cutting me with an electrified scalpel, thank goodness it lasts only a few seconds. I know it hurts to move but I have to tell you, when you stop exercising, the pain is soooo much worse. I refuse to take pain meds, don't want to trade food addiction for being a drug addict. I do have a type of tens unit, an interferential unit. It sends electrical signals through your muscles. I use it constantly and in several different areas. It really helps the major pains but it still hurts when someone touchs me.
Good luck and keep moving, you stop moving and you stop living.
Good luck and keep moving, you stop moving and you stop living.
Topic: RE: New to the board
No real suggestions just best wishes and hope the weight loss will help with the arthritis. It won't help the fibro but just getting some weight off should help in general. I can't imagine keeping up with 4 yr. old twins, I'd be crazy trying too. So kudos to you!!! Just take it easy and don't push too hard or expect too many changes right away and do post here if you have more questions!
Topic: New to the board
I was diagnosed with fibromyalgia in 2002 along with arthritis of some kind (can't figure it out even now). The thing that stands out for me (aside from the pain and insomnia if I don't take benadryl) is the ITCHING. I have psoriasis which was diagnosed MUCH later (09), but it is mild. Since childhood, I have itched the skin off my body. It's worse when the humidity is up or if I'm in the sun too long. I have to take 2 Zyrtec every night or I itch til I have blisters and no skin left in between my fingers/toes and the palms of my hands and feet. No one really knows what it's from or why it happens. It drives me crazy, though.
I have tested negative for lupus, RA (even though my father has it), gout, etc. The only abnormal lab I had was back in 2007 when my anti-phospholipid antibody was positive, but then negative at a retest. I have had multiple miscarriages and a stillbirth at 25 weeks (97). I now have calcific tendonitis at my shoulder and both achilles tendons, for which the rheumatologist took me off exercise for. BIG mistake. I have gained 25 pounds in the past 6 months and it made the fibro worse. I can't chase after my 4 year old twins, I can't even bathe them on my own. It takes everything I have to do their hair every morning before preschool.
I am scheduled for RNY surgery on 12/14/2010...the day after my fal semester is over. My partner and a few friends are helping out with the girls after surgery and they will be in preschool (which will be paid for outside of myself!!!) for about 4 weeks after I'm discharged!
My surgeon is quite familiar with fibromyalgia as is the rest of his staff and he's working to prepare me for the first month or two, which he tells me are the hardest. I'm not a huge narcotic user, given that I have two parents with addictions. I'm a little scared of becoming hooked on narcotics after surgery.
I am signing up with the Rec Center or YMCA here PRIOR to my surgery to start with water excercise...at least until my tendons can heal and I can go back to walking. I used to walk 3+ miles a day and it was my stress outlet and pain management.
Any suggestions from those who have been through this already??
I have tested negative for lupus, RA (even though my father has it), gout, etc. The only abnormal lab I had was back in 2007 when my anti-phospholipid antibody was positive, but then negative at a retest. I have had multiple miscarriages and a stillbirth at 25 weeks (97). I now have calcific tendonitis at my shoulder and both achilles tendons, for which the rheumatologist took me off exercise for. BIG mistake. I have gained 25 pounds in the past 6 months and it made the fibro worse. I can't chase after my 4 year old twins, I can't even bathe them on my own. It takes everything I have to do their hair every morning before preschool.
I am scheduled for RNY surgery on 12/14/2010...the day after my fal semester is over. My partner and a few friends are helping out with the girls after surgery and they will be in preschool (which will be paid for outside of myself!!!) for about 4 weeks after I'm discharged!
My surgeon is quite familiar with fibromyalgia as is the rest of his staff and he's working to prepare me for the first month or two, which he tells me are the hardest. I'm not a huge narcotic user, given that I have two parents with addictions. I'm a little scared of becoming hooked on narcotics after surgery.
I am signing up with the Rec Center or YMCA here PRIOR to my surgery to start with water excercise...at least until my tendons can heal and I can go back to walking. I used to walk 3+ miles a day and it was my stress outlet and pain management.
Any suggestions from those who have been through this already??
http://lezabug.blogspot.com/
http://barigurl1976.blogspot.com/ Going Bariatric on a Budget!!
http://barigurl1976.blogspot.com/ Going Bariatric on a Budget!!
Susan001
on 10/24/10 1:48 am
on 10/24/10 1:48 am
Topic: RE: My dr's all said thry just plain give up
So sorry for your pain. I, too have FM; was diagnosed in '95, so what I'm going to tell you comes from fifteen years of trial and error, countless doctors, numerous pills and endless days of suffering in bed feeling hopeless and misunderstood.
The only thing, and I mean ONLY thing that really helps and lasts throughout the day is regular exercise (I prefer daily walks outside, weather permitting). When I am inactive for more that a day or two, I hurt like hell all over my body and the pain level just builds from there to the point of being intollerable. Start out at a liesurely stroll for 15-20 minutes and build up to 30-60 minutes per day at a vigorous pace, at least 4-5 times a week. Try not to miss more that two days in a row. A treadmill is okay for when the weather is bad, but try to do most of your exercise outside.
I know this flies in the face of modern medicine and the drug pushers (doctors/pharmacutical companies) but it works (at least for me). In addition to helping with my pain, It does four things very nicely: (1) it elevates my mood and clears my mind, (2) it gives me sunshine (vitamin D) and fresh air, (3) it improves my curculation and flexibility and relieves my body stress and (4) helps me sleep better (I'm and insomniac, too). Oh, and as an added benefit, it helps me loose weight! Oh yeah, there are NO nasty side effects, NO worries of addiction, NO judgemental doctors to deal with and NO appointments to keep (unless you are walking your dogs like I am--they do not let me miss an "appointment"). AND IT'S FREE!
I swear to you that it is as simple as that. I have tried all the drugs there are and suffered through all the nasty side effects of them before I gave up on doctors in disgust. Now, I can literally feel it when I haven't been walking regularly. I feel it in my muscles, bones, and my mood. When the weather is cold and damp and I can't go out on my walks, I inevitably have a flare up; so, I just stay in and suffer the pain under an electric blanket with a good book; but, it is a much more tolerable level than where it was when I was on the witch doctors' magic pills. And, besides, the sun always comes out eventually!
Please give a try for a month or so. What have you got to loose?
The only thing, and I mean ONLY thing that really helps and lasts throughout the day is regular exercise (I prefer daily walks outside, weather permitting). When I am inactive for more that a day or two, I hurt like hell all over my body and the pain level just builds from there to the point of being intollerable. Start out at a liesurely stroll for 15-20 minutes and build up to 30-60 minutes per day at a vigorous pace, at least 4-5 times a week. Try not to miss more that two days in a row. A treadmill is okay for when the weather is bad, but try to do most of your exercise outside.
I know this flies in the face of modern medicine and the drug pushers (doctors/pharmacutical companies) but it works (at least for me). In addition to helping with my pain, It does four things very nicely: (1) it elevates my mood and clears my mind, (2) it gives me sunshine (vitamin D) and fresh air, (3) it improves my curculation and flexibility and relieves my body stress and (4) helps me sleep better (I'm and insomniac, too). Oh, and as an added benefit, it helps me loose weight! Oh yeah, there are NO nasty side effects, NO worries of addiction, NO judgemental doctors to deal with and NO appointments to keep (unless you are walking your dogs like I am--they do not let me miss an "appointment"). AND IT'S FREE!
I swear to you that it is as simple as that. I have tried all the drugs there are and suffered through all the nasty side effects of them before I gave up on doctors in disgust. Now, I can literally feel it when I haven't been walking regularly. I feel it in my muscles, bones, and my mood. When the weather is cold and damp and I can't go out on my walks, I inevitably have a flare up; so, I just stay in and suffer the pain under an electric blanket with a good book; but, it is a much more tolerable level than where it was when I was on the witch doctors' magic pills. And, besides, the sun always comes out eventually!
Please give a try for a month or so. What have you got to loose?
Topic: RE: does wls help any at all?
I find that I have less flare ups because I am not carrying around as much weight but FM is an inflammatory disease so as the others have said weight loss won't relieve it. I live a very sedentary lifestyle. Exercise is really supposed to be good for it but a walk around the mall can leave me hurting for several days and I just refuse to work through the pain. I take medication and hate doing it but do get some relief that way.
Jamy V.
Houston Texas
TT 11/2008 178 lbs
CW 04/2008 175 lbs
DS 07/2005 272 lbs
RnY 03/2002 290 lbs
Houston Texas
TT 11/2008 178 lbs
CW 04/2008 175 lbs
DS 07/2005 272 lbs
RnY 03/2002 290 lbs
Topic: RE: Feet hurt so bad.......
If you're feet don't hurt as much once you start walking then might I suggest getting orthotics custom made but they will take time to make the problem better. I have used splints inthe past when I am sleeping, they keep the foot stretched out as if you were walking on them and prevent the inital pain from recurring when you first stand up. I also found that when mine are really bad I use a walking boot. You can wear it inside and out and it's used like a cast for sparains and breaks but once you have it on you pump air into it so it fits snuggly and keeps you walking on a cushion. Sometimes the added rest it gives you is all you need for a week or 2. The are quite bulke though, like a ski boot but it is comfortable!
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