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Topic: RE: does wls help any at all?
I do not think it makes the fibro better. In fact I have wondered if it made mine worse as I did not get my diagnosis until a year after WLS. But, I will tell you that I believe that I do more since I had WLS & tend to over do it...which causes pain flares. I have to pace myself & really listen to my body. When I do, I think in some ways I am better than I would have been pre-op. But, I still would not say that it got rid of the pain associated with fibro or the chronic fatigue. It is sometimes worse than ever.
I know I still have a lot to learn about the condition. I have wondered for many years if I had it, but it was not until about a year ago (after getting skinny) my doctors too took me seriously. No more blaming it on my being over wt at least!
Good luck!
I know I still have a lot to learn about the condition. I have wondered for many years if I had it, but it was not until about a year ago (after getting skinny) my doctors too took me seriously. No more blaming it on my being over wt at least!
Good luck!
Gina Farrell 
Passion Parties Consultant
RNY 9-18-08
HW-260 Consult Wt-246 SW-218 GW-150
CW-148 5'8" BMI 22
9-27-10 LBL & BL/BA- Dr. Sauceda, Monterrey, MX :-)
Passion Parties ConsultantRNY 9-18-08
HW-260 Consult Wt-246 SW-218 GW-150
CW-148 5'8" BMI 22
9-27-10 LBL & BL/BA- Dr. Sauceda, Monterrey, MX :-)
Topic: RE: does wls help any at all?
The groundwork of all happiness is health.
WLS did not take my Fibro away but I believe the weight loss and the exercise I am doing has really helped. I still have flare-ups but I don't think the ones I have are as bad. I do water exercises and try to walk at least 2 miles everyday (sometimes more and sometimes a little less). I still have to take several meds but they haven't changed since before surgery so something has helped and the only thing I can attribute it to is the WLS and exercise.
The groundwork of all happiness is health. 
Topic: RE: My dr's all said thry just plain give up
well, i found out i am severly anemic that other blood counts are down but all my doctors all say they aren't the right dr to prescribe the iv infusions WTF? i won't be back to my primary. i found another dr. I am on vicodin for breakthrough through my pain dr who i have stuck with all along, it does help some. I can do a little more, i am so grateful fo even that, thank you God.
I couldn't stomach the herbal stuff from the vitamin shop like tumeric. they made me sick. the magnesium was all that didn't. i can't stomach iron pills. they cause cramping. i have found that the seasonale birth control pill has helped my fibro. i take it so that i won't get period flare ups and now i don't. thank you all for your advice, i still continue to struggle but its nice to know i'm not alone.
I couldn't stomach the herbal stuff from the vitamin shop like tumeric. they made me sick. the magnesium was all that didn't. i can't stomach iron pills. they cause cramping. i have found that the seasonale birth control pill has helped my fibro. i take it so that i won't get period flare ups and now i don't. thank you all for your advice, i still continue to struggle but its nice to know i'm not alone.
Topic: RE: How bad before retirement or disability?
I had to stop working 8/2009 when I got part way down the hall and could not move.. I have fibro, artheritis in back, hands, knees and feet, burcitis shoulders bilateral severe Valgus ( basically walk on my ankles) had to walk with a cane. It took 6 months for SSD and 7 months for the retirment disability to kick in ( brought my retirement up $80 a month. I had gotten to the point I was so tired and in such pain I had to talk myself into going in each day and so tired I had to stop to take a short nap on the way home two to three times a week ( my comute was 30 minutes. I worried about falling a sleep driving someday ( parttially due to the medications) I tried to move some of my meds to bedtime so I would be more awake during the day ( worked 3-11) I had peolpe double check me on many things so I would not make a mistake.
When I stopped working I slept 12 or more hours a day for weeks untill I got caught up a little. When I feel lonely and want to go back to work I try to remember how I felt that last month and how I never want to feel like that again. Talk to your doctor, see a Rheumotolgest, go to a fibro clinic They can help you decide. My Rheumotolgest told me " your body is ready when your head and heart are let me know" I did and he helped me with all the documentation needed as he had ordered the xrays , MRI,slab work even before my mind and heart were ready.
I had co-morbidities of asthsma. artheritis, hypothroidism severe valgus so I did not need a lawyer and got approved the first time, if you are in doubt contact a disability lawyer he will know what you need to get approved.
I am now feeling so much better with the ability to paced myself as I need I am glad I am retired on disability at 57 in two years I will be able to get medicare until them I pay $830 each month for health Insurance. I just found out that I will not need to pay for my life insurance after I get paperwork filled out as I have a disability rider on that also !!
Good luck, hope you feel better
Lyn
When I stopped working I slept 12 or more hours a day for weeks untill I got caught up a little. When I feel lonely and want to go back to work I try to remember how I felt that last month and how I never want to feel like that again. Talk to your doctor, see a Rheumotolgest, go to a fibro clinic They can help you decide. My Rheumotolgest told me " your body is ready when your head and heart are let me know" I did and he helped me with all the documentation needed as he had ordered the xrays , MRI,slab work even before my mind and heart were ready.
I had co-morbidities of asthsma. artheritis, hypothroidism severe valgus so I did not need a lawyer and got approved the first time, if you are in doubt contact a disability lawyer he will know what you need to get approved.
I am now feeling so much better with the ability to paced myself as I need I am glad I am retired on disability at 57 in two years I will be able to get medicare until them I pay $830 each month for health Insurance. I just found out that I will not need to pay for my life insurance after I get paperwork filled out as I have a disability rider on that also !!
Good luck, hope you feel better
Lyn
Topic: RE: Kinda bummed and having some issues (x-post)
Ask you doctor to check you T3 and reverse T3 levels ( reverse T3 will tie up your T3 and you will be low even if T3 is wnl. Have your D level looked at also ( it can be suplemented with sub lingual drops so you do not need more pills) Try to do things that help you sleep better as poor quality sleep will exerbate pain leg cramps can be calciun, Potassium or the need for quinine( tonic water or pill) talk to your doctor. I would try a long hot shower before bed time to out heat deep into your muscles ( or anytime you pain flares)
See someone that specialses in Fibromyalgia.
Good luck
See someone that specialses in Fibromyalgia.
Good luck
Topic: RE: Fibromyalgia& WLS linked???
you can get Vit D drops for under the tounge if the pills do not work as well as they should. I also have a low D level with all the milk I drink never thaought I would but I do use a 40 or above sun screen due to getting sun poisioningwhen exposed.
I am disabled for multiple reasons the fibromyalgia, my feet and ankles have colasped now walk with help of braces, arthur in many joints and low spine. My medical chart is almost a heavy as I am ! I have had surgeries and my fibro got worse after each one - the anesthesia is a trigger for me. I have had this for well over 15 years and anything that stresses your body can trigger flares. Surgeries, death of loved ones, loss of jobs like in a diabetic stress can cause sugar to elevate in fibro our pain can elevate especially if anything causes sleep disturbance. Even good stresses like traveling. Getting up early to go somewhere or getting overtired due to a long day of activity. We have to plan better and more thoughly than the persons with out our fibro.
One thing I do is try to increase my rest for a few days before I leave, I travel with a flash light as darkenss causes me to be dizzy so I have a light to go to strange bathrooms with. I plan a down day the day after I get home because I know I will need it or I will have a longer recoup period with out it.
Living with fibro is a challange one we are up to ( I know you are as stubron as I ) !!
I am disabled for multiple reasons the fibromyalgia, my feet and ankles have colasped now walk with help of braces, arthur in many joints and low spine. My medical chart is almost a heavy as I am ! I have had surgeries and my fibro got worse after each one - the anesthesia is a trigger for me. I have had this for well over 15 years and anything that stresses your body can trigger flares. Surgeries, death of loved ones, loss of jobs like in a diabetic stress can cause sugar to elevate in fibro our pain can elevate especially if anything causes sleep disturbance. Even good stresses like traveling. Getting up early to go somewhere or getting overtired due to a long day of activity. We have to plan better and more thoughly than the persons with out our fibro.
One thing I do is try to increase my rest for a few days before I leave, I travel with a flash light as darkenss causes me to be dizzy so I have a light to go to strange bathrooms with. I plan a down day the day after I get home because I know I will need it or I will have a longer recoup period with out it.
Living with fibro is a challange one we are up to ( I know you are as stubron as I ) !!
Topic: RE: Fibromyalgia& WLS linked???
Try hot showers for the pain ( stay in as long as you can) Start meditation or breathing and relaxation excerises ( remember child birth classes??)
Thin people can have fibro also so don't let your doc make you feel it linked only to over weight people. Fibro is very close to chronic fatigue I have been told it is so close that after you have one for 10 or more years you will have both :(
Ask your doctors to help you sleep better so your body can repair its self ( during REM sleep)
Your body releases hormones to help repair muscles during the deepest part of sleep( or REM sleep) when you wake up constantly during the night with pain you do not release these and you only get worse. Try hot shoers before bed time and look into somthing to assist your sleep. You also need to be worked up for other contributing factors to fibro. Remember fibro is not a disease but a syndrome ( a collection of symptoms and problems) I have all the tender points plus the brain fog, dizzyness,hypothroidism, sleep disturbance,several arthritis symptoms, low iron, low vit D, elevated epstien bar, hormone inbalances just to say a few. You need to be worked up by a professional that knows fibro and what they need to look for. Most Doctors do not my Rhuematolgist told me that the Docror treating me has to really understand endrochronolgy as well as every thing else. Google Fribomyalgia and chronic fatigue doctors in your area look for a specialist you will be glad you did ! I sure am as I feel SO much better now !
Good luck
Lyn
Thin people can have fibro also so don't let your doc make you feel it linked only to over weight people. Fibro is very close to chronic fatigue I have been told it is so close that after you have one for 10 or more years you will have both :(
Ask your doctors to help you sleep better so your body can repair its self ( during REM sleep)
Your body releases hormones to help repair muscles during the deepest part of sleep( or REM sleep) when you wake up constantly during the night with pain you do not release these and you only get worse. Try hot shoers before bed time and look into somthing to assist your sleep. You also need to be worked up for other contributing factors to fibro. Remember fibro is not a disease but a syndrome ( a collection of symptoms and problems) I have all the tender points plus the brain fog, dizzyness,hypothroidism, sleep disturbance,several arthritis symptoms, low iron, low vit D, elevated epstien bar, hormone inbalances just to say a few. You need to be worked up by a professional that knows fibro and what they need to look for. Most Doctors do not my Rhuematolgist told me that the Docror treating me has to really understand endrochronolgy as well as every thing else. Google Fribomyalgia and chronic fatigue doctors in your area look for a specialist you will be glad you did ! I sure am as I feel SO much better now !
Good luck
Lyn
Topic: RE: Fibromyalgia& WLS linked???
The last thing I heard was they do not know what causes Fibro or cfs but there was a suggested link between chenicals in our food supplt ( like preservtives) When I have anesthesia my fibro goes out of control, so I sought out a center that speciales in Fibro. I found that the Fibromyalgia & Fatigue Centers Inc had a office 5 hours away in Pittsburg PA ( they have several in the US) I went and I am so glad I did. Dr. Loya did much teaching and I could make sence out of a lot she was saying. The good news is I feel better now than I have in years, the bad news is insurance will not pay for most of her visits and only some of the treatments. I am lucky as I can pay for them and I have found out many contributing factors that caused my fibro to be out of control- correcting them brings it under control . The best news is I am not using my came indoors anymore !! Never thought I could get away with out it !
I am not looking forward to the anticipated flare after my RNY surgery but I at least have hope I can handle it.
I am not looking forward to the anticipated flare after my RNY surgery but I at least have hope I can handle it.
Topic: I might as well have Fibromyalgia
I'm a long time sufferer of whacked out plastic surgery by supposed world experts in the field of Lower Body Lifting. They paid no attention to my medical history and just cut off everything.that could have held me together in any type of correct functional manner. I have no hips, no pelvic slope, no pelvic floor. Just a bungee cord of connective tissue holding me together.rThis is hell on earth. Please don't ever have any of the new , sounds too good to be true plastic surgery procedures. I keep waiting for someone to blow the whistle but so far I'm the only one who ever rants and raves about this topic.
I read about Fibromyalgia and pain medication for it on this board and wonder why I have not been able to get any pain medication for my painful condition. Just because it was caused by doctor error or oversight doesn't mean it doesn't hurt terribly..
I read about Fibromyalgia and pain medication for it on this board and wonder why I have not been able to get any pain medication for my painful condition. Just because it was caused by doctor error or oversight doesn't mean it doesn't hurt terribly..
Leech
Topic: RE: Feet hurt so bad.......
I too have severe pain on the tops and bottom of my feet. My pain dr has given me lidoderm, lidocaine, patches and they seem to help the tops of my feet.
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