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Topic: RE: Fibromyalgia& WLS linked???
WLS could be a trigger for fibro because anything that stresses the body can be a trigger to get it started, however it's not just WLS that can cause it. Anything that causes stress or trauma to your body can be a trigger. I've had fibro since I was in my late 20's and that's over 35 yrs ago. Your fibro is not apt to get better, unfortunately it tends to get worse as time goes on. This is a chronic condition with no cure. It has caused many of us on here to gain or not lose as well as we could otherwise. I would suggest you do some investigating on the internet and see what books are available on Amazon.com so you can study up on this condition. Knowledge is your key to living the rest of your life with fibro. There are several meds available to treat the symptoms such as Lyrica, Cymbalta and Savella which sometimes help, but everyone is so different it just depends on which meds work for the individual. The best thing you can do to help yourself is stay as active as you can, even if it's just walking. Most of us find heat helps some but you can't spend your life wrapped in a blanket either. Hopefully some of the others here will pop on and give you more advise. If you have specific questions feel free to ask.
Topic: RE: My dr's all said thry just plain give up
LMAO, but, I have to agree with likki12, I'm at my last straw too, I've tried all kinds of meds also, and I live in severe chronic pain 24/7, I've had it and am now on my last plan of action, if the Fentanyl patches don't work and give me enough relief, I will have no other choice but to refer to my "My Final plan" and that is to take some hits off of some All Natural Medicine...LOL...I'm 53 yrs. old and have to resort to this, now you know that there is relief for our pain somewhere, we just have not found the right doctor.
Come on this is the 21st century.
Good Luck Dear,
Lady Lin
Come on this is the 21st century.
Good Luck Dear,
Lady Lin
Topic: RE: So freaking MAD and frustrated
I totally agree with everything that Hislady wrote, This doctor needs to be dealt with, don't forget everybody has a Boss...you need to find out who her boss is and set up a meeting with that person along with your pain doc, therapist, etc and your PC doc, get everything out in the open and let the others vouch for you, and they will. Don't let her get away with this please don't. Also, make sure the derrogatory statements get removed like Hislady said. Find you a new doc after this is all said and done. Time to pack up and move on, that's what I'm
about to do with my PC whom I've only had since July, my doc left in June, loved her, she cared about me...and that's what we need, someone who genuinally cares.
Praying for you hun, keep me posted...
Lady Lin
about to do with my PC whom I've only had since July, my doc left in June, loved her, she cared about me...and that's what we need, someone who genuinally cares.
Praying for you hun, keep me posted...
Lady Lin
Topic: RE: Kinda bummed and having some issues (x-post)
I too, have Fibro...diagnosed a few years ago, but, I know I had it way before then...Lots of docs don't really deal with it. I am 8wks. out and I also did pretty good the first week after surgery, I was able to get in and out of bed and was not suffering too much. However, after that first couple of wks., all Hell broke loose in my body, I have been completely bedridden for the last 5 wks...talking about bummed, well, I am PISSED OFF. I've had it. The PC doctor that I have now has not really taken me serious, I took matters in my own hands and asked for in home health care. The RN that assessed me is going to request Fentynal patches again, physical therapy and aid for bathing etc. I have really been suffering. Yes, I have been told that this surgery can trigger Fibro...and for me, it has. Not at all what I expected, thought that I would be feeling better, not worse.
I pray that you will get some relief before it gets too bad, don't let it.
Let me know how you make out,
Lady Lin
I pray that you will get some relief before it gets too bad, don't let it.
Let me know how you make out,
Lady Lin
Topic: Fibromyalgia& WLS linked???
I had WLS in 2003. Since then, Ihave been diagnosed with Fibro. Could there possibly be a link between WLS & Fibro? Post-op, we do not get all of the nutrition that we need,therefore we are anemic in certain nutrients. So just wondering if that can cause Fibro! If so, what can I do to help my Fibro get better? Also, the Fibro causes less movement, therefore leading to weight gain! Please help!!
Topic: RE: My best friend has Fibromyalgia
You can help by:
1) Believing her when she says she is in pain.
2) Not comparing your pain with hers or finding explanations for her pain.
3) Understanding when she does not feel like "doing" anything or going any place.
4) Offering to run errands, cook meals, etc
5) Continuing to be her friend.
1) Believing her when she says she is in pain.
2) Not comparing your pain with hers or finding explanations for her pain.
3) Understanding when she does not feel like "doing" anything or going any place.
4) Offering to run errands, cook meals, etc
5) Continuing to be her friend.
Topic: RE: My dr's all said thry just plain give up
Firts off I hope I dont scare you with my story.I hope you get to a neurologist soon.I have fibro hydrocephalus and pseudotumor cerebri..I was fine and in march of 2008 I started loosing my vision it was blurry and severe headach pain in my arms and legs and nauseua I also had sweat dripping from hands and feet.I waited and kept hoping to feel better but it got worse.I went to ER and they did a CT scan of my head.That is when they found I had ICP and it was Pseudotumor cerebri and I had to get a vp shunt to drain the fluid off my brain.
The fibro came after my surgery.
Im not trying to say whats wrong or diagnose you by any means.I just wasnt to urge you how important it is to get into a neurologist. I was hesistant about going to ER but I am glad I did it saved my life.Before that day I didnt even have a primary care I was healthy but slightly overweight.
Please feel free to message me.Also if you are having a hard time with doc and refferals, not always but sometimes a call to your insurance can help.I also belong to another support group daily strength.Hope you feel better
The fibro came after my surgery.
Im not trying to say whats wrong or diagnose you by any means.I just wasnt to urge you how important it is to get into a neurologist. I was hesistant about going to ER but I am glad I did it saved my life.Before that day I didnt even have a primary care I was healthy but slightly overweight.
Please feel free to message me.Also if you are having a hard time with doc and refferals, not always but sometimes a call to your insurance can help.I also belong to another support group daily strength.Hope you feel better
Topic: RE: Living with Fibro and husband
Try fibromyalgia for dummies on amazon. You can hi-light your symptoms for him.
Topic: RE: Kinda bummed and having some issues (x-post)
You should be the change you wish to see in the world
I do have fibro, for years
and I am going through the same thing with the aches and pain esp the leg cramps in the night.
I had surgery 8/25, so I am too wondering if this has been caused by the surgery.
good luck to you
LILRED
and I am going through the same thing with the aches and pain esp the leg cramps in the night.
I had surgery 8/25, so I am too wondering if this has been caused by the surgery.
good luck to you
LILRED
You should be the change you wish to see in the world
Topic: RE: Preparing for Gastric BP with Fibromyalgia
I can't speak to the RNY issue because I haven't had surgery yet.
However, for myself, I completely ruled out RNY as a surgical option:
1. The only meds that have every given me consistent control of my fibro are timed released meds. I was told by my surgeon that RNY patients cannot use time released meds.
2. NSAIDS are another staple of my fight against fibro pain. These too are not allowed post RNY,
3. Some vitamin and mineral def can exacerbate fibro and worsen flares. A few of these are Vit D, magnesium and some sources also say selinium. The malabsorptive issues of RNY might make it difficult to control these def.
You might want to read the post today from 22 BAD FIBRO and a mommy too HELP.
She has two posts. It sounds like having limited medicine choices (or not being able to absorb some meds that might've helped) is an issue for her.
You might want to consider a two step process: Have VSG first, see if you lose weight and it works for you, if not, you can convert to the RNY. At least that gives you options. Once you have the RNY you might not be able to reverse.
Please don't think I am a RNY hater.......I am not. I think doing what's best for YOU is the answer and I applaud and support those that have had RNY. It's just that for me, my fibro was one of the reasons I didn't choose RNY.
Hope this helps.
However, for myself, I completely ruled out RNY as a surgical option:
1. The only meds that have every given me consistent control of my fibro are timed released meds. I was told by my surgeon that RNY patients cannot use time released meds.
2. NSAIDS are another staple of my fight against fibro pain. These too are not allowed post RNY,
3. Some vitamin and mineral def can exacerbate fibro and worsen flares. A few of these are Vit D, magnesium and some sources also say selinium. The malabsorptive issues of RNY might make it difficult to control these def.
You might want to read the post today from 22 BAD FIBRO and a mommy too HELP.
She has two posts. It sounds like having limited medicine choices (or not being able to absorb some meds that might've helped) is an issue for her.
You might want to consider a two step process: Have VSG first, see if you lose weight and it works for you, if not, you can convert to the RNY. At least that gives you options. Once you have the RNY you might not be able to reverse.
Please don't think I am a RNY hater.......I am not. I think doing what's best for YOU is the answer and I applaud and support those that have had RNY. It's just that for me, my fibro was one of the reasons I didn't choose RNY.
Hope this helps.
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