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figure0156
on 8/10/10 3:20 pm
Topic: Please help me and give me advice please..all who view please give advice??
I am now 22 yrs old and have been with you guys since i was 18 yrs old and had my surgery. This past year has been a NIGHTMARE for me but it should have been wonderful considering i had a baby. My fibromyalgia kicked in , in high gear. I am rittled with so much pain i cry all the time. I am only human. I feel as if i am getting worse by the month. I don't know what to do. My body pounds with pain. I have a team of doctors, a family dr, a pain dr, a rheumatologist, and a chiropractor. Soon to add a psychotherapist and physical therapy.  I do every dance , prayer, jig and everything else my doctors tell me to do. I am faithful to my plans. They keep prescribing tramadol and darvocet. I refuse to pick them up from the pharmacy, they don't help me anymore they don't touch my pain anymore. I apologize to my pain dr that the meds don't work but he just keeps giving them to me. He now questions my mental status...Are u kidding me??? I feel as if i am being tortured. My body hurts so badly. I take Lyrica and Midrin too. I tried the Savella and i couldn't pass gas or stool the whole time i was on it so i stopped. At one point my dr gave me an extended release drug...um HELLO???? My family dr and the rheumatologist don't get why even with maalox to coat my pouch an infants dose of Ibprofen makes my pouch hurt and pinch for 48hrs. I know that my crying often is why they want me to work with the psychotherapist but i tell the therapist i cry because the pain is so severe. Our bodies are different then the regular people but the  dr's don't get that. They don't get the severe fibro pain. I feel bruised all over. I am stiff. I walk with a limp, i get lost in public , my hands feel arthritic and the dr's do throw lots of tylenol and sedatives at me...HELLO..?? I have a baby. I don't know what to do they would rather send me around to a bunch of dr's and keep making me do dances, jigs, and prayers, and i do. I do all they ask me to. Then they come up with somethign else for me to do then that fails. What can i do? Where can i go? Who can i see? I am tired? I am rittled with pain. I am a 22yr old woman who can only bathe every 7-9 days because its so difficult and takes so much out of me. I do go into my dr's appts now and just burst into tears everytime. I know i look crazy or like a junkie but at this point i am in so much pain and i know they are going to come up with so crazy new thing to avoid helping me. What can i do? Who can i see???? HELP...I am in so much pain....PLEASE????
Please answer my prayers ladies...help me...what do i do. I am starting the Fibro support group too but i am just rittled with pain.
Sherry55
on 8/8/10 1:17 pm - Inman, SC
Topic: RE: 22 BAD FIBRO and a mommy too HELP
Hon, I am sorry you are in so much Pain. Most Drs. don't even believe in Fibro and if People can't see something then they don't believe in it. I am having gastric bypass done on August 31 .Drs. are also going to fix my Acid Reflux that is 4X higher then a normal persons. I am 100 lbs over weight and pray I don't go into a Flare after the surgery. I was told I had   Fibro 18 yrs. ago after my dr visits, tests, etc.
My mom had Lupus, my cousin MS and other family members with lupus, etc.
  I take it one day at a time and Never Plan anything with anyone. I have let so many ppl down telling them I would go and do so and so and then wake up with panic attack or Fibro pain so sever. If I do over do my body will shut down and I will sleep for days.
  I will keep you in my prayes. If you ever want to talk you can email me, [email protected]
GOd Bless,
Sherry, South Carolina
Sherry Emory
beth21181
on 8/8/10 1:00 pm
Topic: RE: Living with Fibro and husband
I have had and still have major issues with my husband understanding what I'm going through. He often feels that I use it as an excuse just not to do stuff. What he doesn't realize is that the more rude comments he makes me the more I get stressed and then the more I hurt. It's a hurtful cycle emotionally and physically. About a year ago I was ready to leave and I went for a check up with my doctor and had an emotional break down on my nurse practitioner. She actually sat and talked to me for about two hours so she could get a good handle on the situation at home. Then she wrote a letter to my husband explaining some of the broader effects of fibro and inviting him to come into see her. He went in and came home feeling very ashamed of himself. She basically talked to him a lot and then she pressed into some of his pressure points- HARD. She said this is a small idea of what your wife feels when you yell at her for her fibro. She explained that he would cause me less pain if he punched me than if he yelled at me and got me all tensed and stressed. I still struggle with him and his attitude, but he is much improved. My NP is awesome. We have made a new rule about "Mommy needs a break!" and I get to go out once a week to just destress. It really just takes time and prayer.
        
MainePam
on 8/8/10 6:58 am - Bucksport, ME
Topic: RE: 22 BAD FIBRO and a mommy too HELP
I can't offer any brilliant help either. My doc is very reluctant to give me stonger med's too. They act like it is our fault. Gee ya I like to hurt all the time and try different med's and being hopeful they will help !! I also took Relefen before my RYN but ofcourse can't take it now. I take fexeril and vicoden 4x day. I am still in a lot of pain... I do take Lexapro too.
Good luck and prayer your way
Pam
Thorney
on 8/7/10 5:42 pm - Seattle, WA
Topic: RE: pain meds what works for u?
i take Cymbalta, and I wear a Fentanyl 72 hour patch.  I have percocet but I rarely take it as the Fentanyl really handles the pain.  I see arheumatologist for care who sent me to a pain manager for the medication, and they coordinate my pain management
    
Thorney
280/132
            
Thorney
on 8/7/10 5:35 pm - Seattle, WA
Topic: RE: Living with Fibro and husband
I am so sorry you are having a difficult with getting the support you need at home.  Has your husband ever gone to a doctors appointment with you so he can hear what your doctor has to say about FB?  That may be a place to begin with him.  There are a lot of good books out there on the subject of FB, you go to Amaon.com and find a lot, look through the list, read the descriptions and select the one that you think will your husband might read.

I take Cymbalta and I also wear a 72 hour pain patch which is my miracle worker.  For pain I am treated by a doctor specializing in pain management.
    
Thorney
280/132
            
Thorney
on 8/7/10 5:29 pm - Seattle, WA
Topic: RE: Question
I take cymbalta and I also wear a pain patch which I change out every 72 hours.  Between the two I am able to live pain-free for the most part and I don't ever feel drugged from the meds.

I also have Minere's Disease which is harder for me to manage than the Fibro.
    
Thorney
280/132
            
Hislady
on 8/7/10 9:20 am - Vancouver, WA
Topic: RE: 22 BAD FIBRO and a mommy too HELP
Your case sounds very severe, one of the worst I've ever heard of. Something did jump out at me when you said your feet and hands are cold, that also happens with I believe Reynauds disease which also causes lots of pain. You may even be dealing with multiple pain issues. it's hard to tell. I'm glad you are seeing a rheummy and pain specialist that's a good start if you could find another bariatric surgeon maybe they can confer with the other docs and explain the malabsorption issue and help them understand that you may need to take frequent smaller doses to get relief. I really don't have any brilliant tada info for ya but know that we all understand and you are welcome here always even just to vent. You are indeed fortunate to have a mom who can help! Just keep pushing the docs till they can get something acceptable. I can't say I have 100% pain relief (I don't think any of us do) but I at least can function most days if I plan well. Wish you the best and keep us posted how things go!
brooklynbrenden
on 8/7/10 12:08 am - Wellston, OH
Topic: RE: Question
I was on Lyrica a few years and I felt I gained weight and became dizzy with a dose high enough to help.   I was put on Savella and it was wonderful.  The only downside is I had to eat with the pill or I had nausea.  Bread seemed to help the best with the nausea.  So, I quit taking it before I had my lap band surgery and will get back on it once my diet is not restrict.  I know I won't be able to eat the bread so I will have to experiment.  Right now I am taking 150 mg Ultram and 750 Relefan in the am and 100 mg Ultram around 3.  I can't take the meds at night because I can't sleep so I am sore in the morning but get relief within 1 hour.  Just a suggestion.
brooklynbrenden
on 8/7/10 12:03 am - Wellston, OH
Topic: RE: 22 BAD FIBRO and a mommy too HELP
Not sure if I can be much help but I have found that 150 mg Ultram in the am and 100mg around 3 pm works for me.  I don't take it at night because I can't sleep.  So, I wake up sore but within 1 hour I can function.  I also take a 750 mg Relefan with it.  I think it is a NSAID but you may check.  I was on Savella and it worked well but I had to eat with it to prevent the nausea so I quit taking it before getting my band.


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