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Hislady
on 8/3/10 7:34 am - Vancouver, WA
Topic: RE: Question
Oh yeah lyrica is notorious for causing weight gain. I take cymbalta and that works pretty well for me, not pain free but tolerable. There is another new drug savella that is also supposed to work well. Talk to your doc about changing. Good luck!
Meganlnewton
on 8/3/10 12:58 am
Topic: Question
Does anyone know if Lyica causes weight gain?
I had RYN about 6 weeks ago and have lost about 33lbs and feeling really great about that, however my fibro is aweful and my doc just upped my Lyica to 300mg a day....feel so drugged in the morning it's hard to care for my 1 yr old.
Does anyone know of anything that helps, that DOESN"T make a person feel so sleepy all the the time? 
        
southernlady5464
on 8/2/10 7:47 pm
Topic: RE: Living with Fibro and husband
Cybalta side effects:
http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0000274

What side effects can this medication cause?

Duloxetine may cause side effects. Tell your doctor if any of these symptoms are severe or do not go away:
nausea
vomiting
constipation
diarrhea
heartburn
stomach pain
decreased appetite
dry mouth
increased urination
difficulty urinating
sweating or night sweats
dizziness
headache
tiredness
weakness
drowsiness
muscle pain or cramps
changes in sexual desire or ability
uncontrollable shaking of a part of the body

Lyrica: http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0000327

tiredness dizziness headache dry mouth nausea vomiting constipation gas bloating "high" or elevated mood speech problems difficulty concentrating or paying attention confusion difficulty remembering or forgetfulness anxiety lack of coordination loss of balance or unsteadiness uncontrollable shaking or jerking of a part of the body muscle twitching weakness increased appetite weight gain swelling of the arms, hands, feet, ankles, or lower legs back pain

Vicodin: http://www.rxlist.com/vicodin-drug.htm
The most frequently reported adverse reactions include: lightheadedness, dizziness, sedation, nausea and vomiting. These effects seem to be more prominent in ambulatory than in nonambulatory patients and some of these adverse reactions may be alleviated if the patient lies down.
  Gabapentin also known as Neurontin usually prescribed for Epilpsy. It's most common OFF label use is Peripheral Neropathy pain. How it got to be used for Fibro???? I use warm water for my fibro. I use Topamax for my PN and Tramadol/Amytriptyline for the breakthru pain.

Neurontin needs to be tritated up to rather large doses for MOST (not all) patients to even notice an effect. And then your body has a bad habit of getting use to that dose, which develops into an upward spiral of ever increasing doses. 

It's typically given to patients with Peripheral Neuropathy 

MedlinePlus Drug Information: Gabapentin

In the three years that I was on Neurontin, I had all of these:
drowsiness
tiredness or weakness
dizziness
headache
shaking of a part of your body that you cannot control
double or blurred vision
unsteadiness
memory problems
diarrhea
dry mouth
constipation
weight gain
swelling of the hands, feet, ankles, or lower legs

What they don't mention is that the memory issues NEVER go away once you've had them. 

Drowsiness/tiredness/weakness did not come even close to describing what I felt and most of my PN friends experienced. 

When I first started and every time I tritated up in dosage, I would be absolutely and completely useless to my family. I started at 1800 mgs (felt no relief) and got to 2100 mgs before feeling a difference. By the time I finished I was taking 4800 mgs a day. Some people I know were taking 7000 mgs with no relief.

I got off the neurontin finally in 2006 after coming down to 300 mgs between 2003 and 2006. 

I was at 195 when I started neurontine, and hit my highest weight of 250 while on it.

The only one besides Vicodin that I have ever had was the neurontin.

Now, I will say in fairness to the drug that my husband takes neurontin and has not had the same side effects. 

So it looks like you about split half and half on the drugs causing an increase and those causing a decrease in appetite.

While I doubt it is accurate for a sleeve, you could do the 5 day pouch test that is for RNY'ers. If nothing else it will focus your eating properly and give you a five day push. 

Liz





Duodenal Switch (Lap) 01-24-11 | Surgeon: Stephen Boyce | High weight: 250 in 2002 | Surgery weight: 203 | Lowest weight: 121 | Current weight: 135 | Goal weight: 135






   

carogrl
on 8/2/10 6:58 pm - Murrells Inlet, SC
Topic: RE: Living with Fibro and husband
I'm taking Lyrica 100mg 3 times a day, Neurontin 600mg at bedtime, Cymbalta 60 mg at bedtime, Vicodin 10/325 usually 3-4 a day, Soma 250mg 3-4 a day.  I know Lyrica can cause weight gain but I think I just have so much pain I'm not following any good eating habits at this time.  I need to get back to the basics but want some ideas how to jump start getting back to dropping pounds........any suggestions?
Hislady
on 8/2/10 3:47 am - Vancouver, WA
Topic: RE: Living with Fibro and husband
I have a couple of books that are pretty informative The First Year, Fibromyalgia and Fibromyalgia and Chronic Muscle Pain. You might see if you can find them on Amazon.com. Also there are lots of websites he can go to for more info. As for weight gain it usually helps to go back to basics and start journaling what you are eating and weighing and measuring your amounts.
Good luck!
southernlady5464
on 8/1/10 11:39 pm
Topic: RE: Living with Fibro and husband
No books but a website. The Invisible Disabilites Advocate

They may have books listed.

Also, what meds are you on? Need to check them for the side effect of weight GAIN.

Liz

Duodenal Switch (Lap) 01-24-11 | Surgeon: Stephen Boyce | High weight: 250 in 2002 | Surgery weight: 203 | Lowest weight: 121 | Current weight: 135 | Goal weight: 135






   

carogrl
on 8/1/10 8:15 pm - Murrells Inlet, SC
Topic: Living with Fibro and husband
Does anyone have suggestions of books that I could get for my husband so he can understand what fibro is like?  Besides the fibro I also have back problems and currently have 3 kidney stones I'm dealing with.  Hopefully, I will be having lithotropsy this week....I can't seem to pass the stones on my own.   I had VSG 2 years ago.....also am starting to gain a few unwanted pounds back.  Any suggestions how to get a jump start back to losing weight?  I really need support.  Thanks for your help. 
southernlady5464
on 7/31/10 8:42 am
Topic: RE: How bad before retirement or disability?
I stopped working when my memory got so bad from the pain meds that I couldn't think.

Now, I take tramadol, amytriptyline, and ultram...the ultram is suppose to be as needed, I've needed it every day. That mix leaves me functioning for the most part.

I take Mirapex for the Restless Legs as that is not, supposedly, related to the fibro. The shocks sound like the beginning of Periperal Neuropathy.

The hands, have your doctor check you for the RA factor. That will tell you if it's plain old athritis or the RA kind.

Now, Cymbalta made me nuts...it would drop me into an absolute stupor at the oddest times. I ended up in one in the doctor's waiting room and he immediately took me off it.

Neurontin is another one my body couldn't handle. My husband does well on it but me...I was totally different.

I posted this a couple of months back now:

Gabapentin also known as Neurontin usually prescribed for Epilpsy. It's most common OFF label use is Peripheral Neropathy pain. How it got to be used for Fibro????

Neurontin needs to be tritated up to rather large doses for MOST (not all) patients to even notice an effect. And then your body has a bad habit of getting use to that dose, which develops into an upward spiral of ever increasing doses.

It's typically given to patients with
Peripheral Neuropathy

MedlinePlus Drug Information: Gabapentin

In the three years that I was on Neurontin, I had all of these:
drowsiness
tiredness or weakness
dizziness
headache
shaking of a part of your body that you cannot control
double or blurred vision
unsteadiness
memory problems
diarrhea
dry mouth
constipation
weight gain
swelling of the hands, feet, ankles, or lower legs

What they don't mention is that the memory issues NEVER go away once you've had them.

Drowsiness/tiredness/weakness did not come even close to describing what I felt and most of my PN friends experienced.

When I first started and every time I tritated up in dosage, I would be absolutely and completely useless to my family. I started at 1800 mgs (felt no relief) and got to 2100 mgs before feeling a difference. By the time I finished I was taking 4800 mgs a day. Some people I know were taking 7000 mgs with no relief.

I got off the neurontin finally in 2006 after coming down to 300 mgs between 2003 and 2006.

I was at 195 when I started neurontine, and hit my highest weight of 250 while on it.


Like I said, my husband does well on it but it was the worst thing I ever did.

Tink, I have a pdf I created years ago based on the postings of another forum that deals with neurological/brain/spine issues. It has helped many deal with getting on SSDI. If you would like it please PM me with your email address and I will send it to you.

Liz






Duodenal Switch (Lap) 01-24-11 | Surgeon: Stephen Boyce | High weight: 250 in 2002 | Surgery weight: 203 | Lowest weight: 121 | Current weight: 135 | Goal weight: 135






   

bowser
on 7/30/10 7:54 am - joplin, NC
Topic: RE: energy
i couldnt imagine working a 12hr shift you are more woman than i am   ill ask my dr about deplin      thank you
OregonGal
on 7/30/10 5:32 am - Beaverton, OR
Topic: RE: energy
My rheum prescribed Deplin (massive dose of folate) and Nuvigil.  I can say that I get some help from these, I work 12 hour shifts and help me get out the door in the morning.  I try to swim 3 days a week, which helps - you move too much = more pain and fatigue, or don't move enough = more pain and fatigue.  I have tried a gamut of different meds, but nothing has worked for any length of time, without increasing side effects.   I hate how the pain and fatigue rule my life and how much or little, I am able to do on any given day.

All I can say is you're not alone.....
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