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ginny1226
on 6/25/10 12:18 pm - Hartford City, IN
Topic: RE: I HURT
You are right about the excersise. I think that some good cardi, yoga, or pilates helps me the most. I do receive messages sometimes which is really painful the first couple of times, but they really do help after that. I also refuse to let fibro get me down. I have had it for about 10 years now and am very curious about the disease. I wish there were more studies on this. They believe that magnesium may be a factor.
SlynnD
on 6/25/10 5:32 am - Pasadena, CA
Topic: RE: Does fibro affect the tummy?
I, too, suffer pain in my sides, chest, abdominal area. When I eat I have pain in my middle back. The pain in my sides occur like clockwork, seriously. So sorry for your pain.

I hate fibro, but I hate lupus even more. What's the saying: Fibro will not kill you, it only makes you wish you were dead.
I've had fibro since 1998.
    
indykitty
on 6/24/10 11:52 pm
Topic: RE: Anyone Had A Medial Spinal Block?
I haven't had that shot, because chiropractic eased mine up.  It took me a while to figure out what it was as I thought it was my knee and ankle until the muscle down the back of my thigh got involved. I had some relief after the first few visits and it's been quiet a long time now.  Now, I've got a pinched nerve in my neck.  Let me know if the shot worked. 
beth21181
on 6/24/10 12:22 pm
Topic: RE: New on this forum
I have been dealing with fibromyalgia for two years. I have two three year olds and that adds to my struggle. So anyway, I took Lyrica for almost nine months and it was definately not the med for me. I became very forgetful (I mean to the point that it scared me) and I lost a lot of my math function. Apparently this is a rare, but possible, side effect of the drug. I made the choice that I would rather be in pain than look things I use every day and not remember the names of them. After ending the Lyrica I regained most of my memory abilities, but the math skills never did come back.

What I do to ease my pain is to try to keep my stress to a minimum (which I am not very successful at). I also am sure not to overwork my muscles. I have purchased a 4" pillowtop mattress and added a feather bed on top, which has helped a great deal. I also limit my sugar intake. The intake of high sugar/carb foods is proven to irritate fibro. I take some narcotics, but try to keep them to a minimum.

Just make sure you find out what works for you and do what you need to do. People will tell you all sorts of things and give you a hard time, but try to ignore that. Look at some of the t-shirts on cafe press about fibro, they'll really give you a laugh and understand some of what you will go through.

Good Luck and prayers!
Darlene W.
on 6/24/10 7:02 am - Arcata, CA
Topic: RE: pain meds what works for u?
my dr sent me to a pain clinic 10 yrs ago for my fibro and they put me on Methadone and vicoden for break through pain.  Last Oct, I decided i didn't want to be on that because it was affecting my memory and I never wanted to do anything.  I take Lyrica but it doesn't seem to do much either.  I am going to have a nerve block done for my left leg. It hurts so bad and goes numb.  It took them years to say it really was an illness.  I had to fight to get what I had but then it was just too much.  People do not understand how we feel all of the time.
Darlene W.
on 6/24/10 6:58 am - Arcata, CA
Topic: RE: Does fibro affect the tummy?
I have the same symptoms.  I have had Fibro for years and I hurt in my intestines or stomach even tho I eat or not eat, drink or not drink.  I think maybe it is a flair up.  I hurt all over today.  but what to do...
Kristy
on 6/24/10 1:18 am - ID
Topic: RE: New on this forum
I use the Fentanyl patch and Norco as a backup.  The patch is 50mcg, which is just right.  This combo works well for me, but try to start out in a pain clinic as pcp don't like to prescribe narcotics because of the federal law.  But some of us need them, as reg meds don't touch it.  I can't even tell I am using the patch I don't feel "high" or anything.  Just no pain, or at least not as much.  The Norco knocks out any lingering pain left.  Some people have problems with the patch sticking to them.  I put it where my bra straps are or where a tank top would be, by my breastbone sometimes.
Saababy
on 6/23/10 10:28 am - Templeton, MA
Topic: RE: Does fibro affect the tummy?
Hi there!
Reading your post sounded just like the questions I have.  I have suffered with stomach pains when I eat almost anything since I had my RNY surgery in Dec. 2008.  My doc has done every test known to him including MANY endoscopies.  I have been hospitalized for dehydration due to these pains, but I can't take the pain right now when I try to drink.The past few days have been even worse than usual, I have been in a great deal of pain whether I have eaten, not eaten, drank anything or not!!!!! Could I be suffering a Fibro flair and the pain is from that too??   
I wonder, now that I have read your problems, if there is a connection between Fibro. and RNY surgery.  My doc says Fibro could make my days tougher to deal with but that he doesn't see how the two could effect each other in the horrible way I suffer.  I wonder...   
TTFN (TAA TAA FOR NOW)   SAABABY!
Hislady
on 6/23/10 3:07 am - Vancouver, WA
Topic: RE: Does fibro affect the tummy?
I'm not gonna be a big help here but yep fibro can present in all kinds of crazy and seemingly unrelated symptoms. On the other hand don't let the docs just chalk everything unknown up to the fibro. There are also a gazillion other things it could be. Have you seen a gastroenterologist, I think they would be the doc to see for tummy troubles. I feel for ya, it's hard enough having fibro but to have other stuff going on too is frustrating.
hartmac
on 6/23/10 1:14 am - AR
Topic: RE: Does fibro affect the tummy?
I don't know the answer to your question, but what I am finding out (and I was recently dx with fibro) is that it can affect so many areas of our lives and that everyones symptoms are different.  I have some stomach problems but I think they are caused by taking pain meds.  I try to make sure I've eaten before I take any medicine and that seems to help me.  From what you said, it doesn't sound like that's what you're talking about.  Do you have a doctor who treats you for fibro?  I would recommend talking the them about this and if you don't, you might want to see about finding one.  Hope you get answers and feel better soon.
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