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TinkL *.
on 5/16/10 10:43 pm - Columbia, SC
Topic: RE: fibromyalgia so much pain
On May 15, 2010 at 9:27 PM Pacific Time, hartmac wrote:
Tink!  A familiar face on here!!!  I was just dx with fibro and I am so full of questions - mostly that I don't even know.  Just wanted to say hello.

I'm glad you were finally dx'd for all the issues you have had, but sorry that it is fibro. 

I'll be glad to answer any questions I know the answer to and I've gotten some great information from the folks here on meds.

We also have some questions about absorption rates of the meds based on our surgeries.

Welcome aboar Margie.

 

Candy

figure0156
on 5/16/10 6:53 pm
Topic: RE: I HURT
I take Melatonin its an all natural supplement. i take that to help me sleep. I SOB the rest of the day. The doctors don;t believe me for some reason. I really do hurt though. I have been on these medications for a whole year before i got pregnant and now for the last 6 months so i think they just don't work anymore. Also, i have tried cymbalta and it gave me terrible migraines. The Lyrica seems to bug my stomach. I tried all of the homeopathic stuff like tumeric and curamin and they made my stomach so raw i am still in pain and yes i took them with food. I am going .    I went to a therapist and the ER to talk to someone and they didn't offer much support and didn't give me a script for a therapist because they said its not necessary. ( i got public aid)  .   I am not sure what else to try.  My pain dr told me to keep taking the stuff that doesn't do a damn thing for me. HELP!!!!!!!!!!!!!
figure0156
on 5/16/10 6:47 pm
Topic: RE: Neurontin-anyone taken it?
Neurontin did CRAP 4 me but every1 is different. . My prob is my age. Because i'm 21 the doctors don't believe my pain.
I think that these capsules are too hard for us to digest.
Hislady
on 5/16/10 1:37 pm - Vancouver, WA
Topic: RE: New To This Board - Just Dx With Fibromyalgia

You aren't stupid at all! With every diagnosis comes a million questions. If it is fibro it won't go away, ever. There are specific drugs for fibro such as lyrica, cymbalta and savella. The biggest problem is what works for one of us may not work at all for someone else, so there is alot of trial and error to find what works for each of us. I would suggest you get on Amazon.com and get a few books on fibro, stick to ones by docs not the miracle cure ones cause they are bogus. There are also several websites on fibro, so look at those too.
One thing to try at night and first thing in the AM is to stretch all your muscles as they tend to tighten up as we sleep. The first thing I do is pull my legs up to my chest (or close to it) and just hold it for 20 seconds or so because my back is the worst part for me. Also heat seems to help me so I use an electric blanket. Also Icy Hot rub helps sometimes, just don't use it with the blanket or heating pad as that can cause severe irritation. If you have more questions feel free to post here or I'd be glad to answer any PM you might want to send. Good luck and you may want to see a pain specialist or rheumatologist for more help.

hartmac
on 5/15/10 2:46 pm - AR
Topic: RE: What pain meds do you take?
I've been off and on the OH website for 4 years. I've just found this forum and I'm so thankful.  I am taking:
Cymbalta - 30 mg 2 x daily (I've been on this for my depression for about 6 years.  After WLS doctor changed to the 30 mg 2 x daily - instead of 60 mg. 1 x daily.)
Buspirone - 10 mg 2 x daily (added about six months ago to boost the effects of the Cymbalta for my depression.)
Norco - 10-325 mg 2 x daily (just started on this last week.  I take it when I get up because I'm in so much pain.  Then I have to take it 6 hours later.  I need it sooner, but I wait.  Problem is, then I don't have anything to take at night and that is a problem.  I have intense pain that will wake me up and I'll be in tears.)
Ultram - 100 mg. (I've had this medication for about 6 months to help with headaches.  Since we can't take NSAIDS and Tylenol does nothing for me, my PCP prescribed this.  My pain doctor said they are fine to take for a headache as long as it's at least 3 hours after the Norco.)

I'm worried about becoming addicted.  I'm also worried about what the pain meds will do to my liver.  I am just in the process of getting things to a place they are managed.
Margie
hartmac
on 5/15/10 2:27 pm - AR
Topic: RE: fibromyalgia so much pain
Tink!  A familiar face on here!!!  I was just dx with fibro and I am so full of questions - mostly that I don't even know.  Just wanted to say hello.
hartmac
on 5/15/10 2:25 pm - AR
Topic: New To This Board - Just Dx With Fibromyalgia
I'm not sure if I'm relieved to have an actual diagnosis or if it is an actual diagnosis or just a "we don't know what it is so we'll say it's fibromyalgia".

What I do know is that I have been through so many tests and scans to rule out other things like cancer, arthritis, etc.  I also know that I have 14 of the painful pressure points.  I know I've been in pain off and on for two years.  In the last six months it's been chronic and just kept getting worse. 

So, I just went to a doctor this week and am taking Norco 2 x daily.  I have to take it when I first get up.  I am in so much pain when I first get out of bed.  Then I usually have to take another mid afternoon.  The medicines help most of my pain.  The pain in my lower back isn't completely gone but much better.  The problem is that I wake up in pain through out the night.  I just end up in tears from it.  I am going to call my doctor this week and see if there is something I can take at night that is stronger that will help the pain all night long.

I guess this is a long intro but I am trying to figure all this out.  I have so many questions.  Like, are pain meds the only treatment?  If so, how do we protect our livers from taking so many?  I'm hoping that this is a temporary pain and that I can go off the pain meds for periods of time.  Are there medicine that are just for fibromyalgia?  I am going to read as many posts as I can to glean information and knowledge from you all. 

I apologize is I sound weird or stupid.  This is all just so new to me.  Thanks, if you read this far, for sticking with me.  All information is welcome!
amystone
on 5/15/10 12:26 pm
Topic: RE: fibromyalgia so much pain

I am already a heavy sweater, in fact, I have been diagnosed with hyperhidrosis, and one of the side effects of Lyrica and Cymbalta is excessive sweating. I have been taking Savella for a little over a week, and the past two days, I have been sweating so bad, even in the AC, that I have to peel my clothes off. Have you had this side effect?

Thanks,
~Amy~
mommateresa
on 5/15/10 7:16 am
Topic: RE: Anyone on Savella?
I have been on Savella since some time last summer (after many go rounds with the insurance company).  I found really good results in the beginning.  Unfortunately, the Dr. believes the fibro has been spawned from lupus so the flares from both can be a struggle.  The savella does not seem to have much of an effect on the lupus flares.  I often wonder though if being able to take the anti inflammatories would be helpful.  I am 3 year out from WLS. I started at 292 and am now at 148.  The savella did cause additional weight loss once I started it. (I had leveled off but then started losing again.)

I hope all things so well for you. 


mommateresa
hope24
on 5/14/10 2:35 pm - Conway, AR
Topic: RE: Anyone on Savella?
I tried Savella and did not do well at all.  It is (my dr says) one of those that either works really well, or not at all and has been known to raise the blood pressure.  Be sure to keep an eye on that.  I felt much the way you describe your reaction.  My blood pressure went nutts and I felt so awfull.  At one point I was so frightened that I almost went to the ER.  Then DUH! I thought to check the BP and I quit taking it and contacted my DR. 
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