Recent Posts

Hislady
on 5/1/10 9:26 am - Vancouver, WA
Topic: RE: notes from the fast lane - tues
If you are in that much pain there is no reason not to take pain meds. Have you been diagnosed with fibro and are you getting any treatment for it? Not sure if you were asking for help or venting, let us know and we'll help any way we can.
Kathleen T.
on 4/30/10 1:29 pm
Topic: RE: Anyone on Savella?
I tried several of the new ones and felt as though I want to go to the nearest bridge and jump. 
"A Man's heart plans his way, But the Lord directs his steps. 
Proverb 16:9
May not be where I want to be but I glad to be where I'm at.
Working at getting the rest of the way.

12/10/2012 I'll be having LBL, BL/BA, thigh & arm lift, eyelid
Body by Dr. Sauceda    booked to 12/9--12/22
finallyhere
on 4/29/10 3:28 pm - Niantic, CT
Topic: RE: Neurontin-anyone taken it?
 Hi, my fibromyalgia is so much worse in the winter months. I was taking Neurontin, didn't gain weight, but my vision became blurry and sure enough, my eyesight had changed. I am now taking Cymbalta, Lyrica, and flexeril. I also have Trazadone for sleep on my bad nights. I also have neck dystonia, and received Botox injections into those muscles that are in constant spasm. That really helped a lot!!! I've read so much literature on Fibromyalgia, and I have to agree with most research that this syndrome is soooo individualized, no 2 people have the exact experience with the disease or its treatments. GOOD LUCK finding your personal solutions, stay well.
anna R.
on 4/29/10 2:19 am
Topic: RE: Neurontin-anyone taken it?
Hi I've had Fibromyalgia for four years. Until I started on Neurontin there was no relief. My Dr is a pain manager and prescribed and incleased until we got to the right mix. Over a year there was a 15lb gain. Went off for a while as a test, as I take many pain meds and wanted to be sure the gain came from the meds. It did.

Here is the truth not "this is what I heard". For me the pain was far worse so I went back onto the meds  and will not stop until there is something better.  I take a very large dose, daytime and  night to help with sleep.

If you have anyother questions please ask.

FEEL BETTER

Anna
                        

        

CeciliaM
on 4/27/10 10:53 pm - Newark, DE
Topic: notes from the fast lane - tues
weather was nice

volunteered for an hr or so.  so many volunteers and not enough work.  lol

what did i eat today:
cereal w milk
yougart
meatloaf (gr turkey, egg, oatmeal)
ice cream
4 cookies
fluids: about a qt

i hurt so bad - plz give me a pain pill.  i wanna cry i hurt sooooo bad. i ache from head to toe.  my legs hurt. i want to constantly move the legs to not feel the pain.  i want to see a doc but dont know where to start.  i dont want pain pills.  if there is nothing wrong w me y the pain.  y does my body feel as if i beat it up.   

only talked to one person the whole day for about an hr. 
CeciliaM
10cm band
amydolphin76
on 4/27/10 9:45 pm - Anaheim, CA
Topic: RE: Klonopin
My understanding from my doctor is that Klonopin aka Clonazepam is for panic/anxiety problems and generally does Nothing for pain. It is not a pain killer, but it helps by reducing stress and anxiety which in turn can lower the bodies pain responses.

I have been on Klonopin for at least 5yrs and I love it.

Good Luck.
Life is a journey to be shared. ~Amy~        
Hislady
on 4/27/10 9:44 am - Vancouver, WA
Topic: RE: Neurontin-anyone taken it?
I used it for awhile and didn't have any big weight gain. I just got to the point where it wasn't helping anymore, but as far as drugs go it has very few side effects and is a pretty good drug to start with anyway. I take cymbalta now and it is working well.
dodgerfan
on 4/27/10 8:46 am - Norwalk, CA
Topic: RE: Neurontin-anyone taken it?
I have heard the same thing.  My grandma tried it and that is what happened to her.  I actually heard of a few people who had a stroke while taking it.  IDK if it had anything to do w the drug or not. Good luck!!
mac1
on 4/27/10 1:15 am - Christiansburg, VA
Topic: Neurontin-anyone taken it?
Has anyone taken Neurontin?  If so, has it caused weight gain.  I have fibromyalgia and am trying to find something that will give me some relief.  I  have heard that Neurontin causes weight gain.  I tried Lyrica for a while, but that didn't seem to help and it caused me to gain weight.  Any responses would be appreciated.  Thank you!
Marsha 

 

 
HW 265/CW 127/GW 130  4/1/10

HW 265/CW 141/GW 125  6/22/11

Extended TT 2/10/10

Ann1962
on 4/22/10 1:18 pm
Topic: RE: Anyone on Savella?
I have been on Savella since July 2009.  It has saved my life!  You have to start very slow with it.  After about 6 weeks, I woke up one morning and didn't hurt quite so bad.  The next week I got a little better and a little better.  Somewhere in there I lost 10 pounds....I think just because I was able to move normally and didn'****ch out for moving too quickly.  I was able to enjoy Taekwondo again.  By January 2010, I was able to compete in a tournament and actually won in the Forms Competition.  Six months before that, I would come home from work, get on the bed and fight to get up to do anything.  Work was the only thing that I would do and I was struggling to get through the day.  I do still take pain meds, but now they actually take most of the pain away.  Last summer, they barely took the edge off.  I had WLS 2 months ago, am down 50 pounds and feel great.  I still have flares, but I would say that I'm 90% better.  Not very many "down" days.  My feet are my biggest problem.  I've been diagnosed with Neuropathy and Joint Effusions in them.  I would recommend staying on the Savella if you can.  My Dr did tell me that not every one can take it.  But I have done great on it.  Good luck!
 Ann          
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