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Topic: RE: Looking for a good doctor in Houston that treats Fibromyalgia
Wasn't sure if you had found someone, my rhemy is Qaiser Rehman, he has an office by Willowbrook Mall. 832.237.8585. A very good doctor. Katrina
Topic: RE: massage anyone?
Sounds like she was doing a massage to rid your body of toxins which really doesn't help fibro. In that case it can make you feel cruddy because she's releasing the toxins into your system. I've had some massage but it's so expensive I don't do it regular. It can be helpful to relax the muscles but you have to make sure they are gentle about it. It also depends on the massuese, not all are experienced with fibro. In my opinion the chair would be relaxing but probably wouldn't do anything for the fibro itself. I would give the neurontin a try and if that doesn't help there is also lyrica, cymbalta and savella for fibro treatment too.
Topic: RE: massage anyone?
lilredturtle,
Can you please tell me how you went about getting a jacuzzi prescribed for you? The one thing that feels awesome for me is a really hot bath. My husband and I have been researching hot tubs but there is just no way to afford one right now. We were wondering if this was a possibility, insurance paying for some of it, or even being able to deduct as a medical expense. Any info would be greatly appreciated.
Thanks,
Jennifer
Can you please tell me how you went about getting a jacuzzi prescribed for you? The one thing that feels awesome for me is a really hot bath. My husband and I have been researching hot tubs but there is just no way to afford one right now. We were wondering if this was a possibility, insurance paying for some of it, or even being able to deduct as a medical expense. Any info would be greatly appreciated.
Thanks,
Jennifer
Jennifer Louise
236/112/goal 125
236/112/goal 125
Topic: RE: massage anyone?
I can't tolerate massage, either. Also, I had p.t. for my arthritis (spinal) that was fine, except for the guy who runs the place managed to hit every single trigger point during his first assessment. I dang near died!
Topic: RE: massage anyone?
I personally cannot tolerate massage's... I did get a jacuzzi prescribed for me about 8 yrs ago sometimes I can not even tolerate the water moving in the spa... I did recently try acupuncture that was bad the first time out I thought it was more me being on the massage for a long time for the acupuncture that did me in more than the needles. Good luck and I hope you feel better too 
Topic: massage anyone?
Okay, does anyone with Fibro see a massage therapist? I went to one last Thursday, today is Monday and I still ache. I felt fine when she was doing it and even a little relief, I drank all the water that she told me to drink when she was done, and about an hour later I started to ache all over, it's been almost 4 days and I am still achy and in pain.
I just started Neurotin about two weeks ago and was begining to feel some relief and now I feel as though I am back to square one and I'm not sure if it's from the massage or not.
also, I was interested in getting a vibrating, heat, massage chair but now I'm reconsidering that also.
Anyone with any insight in to massage...do or don't....I wouldn't love to hear your experiences with it.
thanks a bunch,
I just started Neurotin about two weeks ago and was begining to feel some relief and now I feel as though I am back to square one and I'm not sure if it's from the massage or not.
also, I was interested in getting a vibrating, heat, massage chair but now I'm reconsidering that also.
Anyone with any insight in to massage...do or don't....I wouldn't love to hear your experiences with it.
thanks a bunch,
Jennifer Louise
236/112/goal 125
236/112/goal 125
Topic: RE: New here
Hello Greeleygirl
I guess an good attitude can never really hurt, but rose colored glasses can only get you so far when you are in pain.
I don't know what my pcp will say at my next visit, but with 4 kids I cannot be tired during the day. I too take my full dosing of gabapentin/neurontin in the evening before bed and I currently am on 900mgs. This dose knocks me out, it's great to sleep so soundly, but when my husband goes out of town I don't realy know that it will be wise for me to take the full dose. I am very new to this disease also, but I have been researching a lot and was able to find some articles from neurologists, my doc said this isn't an issue for a rheumatologist any more so she works with the neurologist, but any way there were articles about patients *****sponded very well to using the same types of meds that are being used to treat ADD/ADHD. They are administed at the lowest doses during the day to help combat fibro fog and fatigues that goes with this illness. There is also some thought that patients also find some additional pain relief due to the receptors in the brain that these types of drugs work on.
i plan to show my doc these articles at my next appointment and get her take on that. I know there have been some posts on here with others that ADD meds but i'm not sure if it's because they also have ADD and Fibro, but I feel at this point that anything is worth a try. I can't focus for one minute to the next and forget everything. it makes me look like such a bad mother when I continually forget to put my kids lunch in their backpack...the sad part is that it's made, but it's just sitting on the counter when he goes for the bus. I try so hard with lists and everything but I always end up forgetting something and feeling overwhelmed and frustrated.
Good luck with your meds and your doc and this is a great place for questions and answers.
I guess an good attitude can never really hurt, but rose colored glasses can only get you so far when you are in pain.
I don't know what my pcp will say at my next visit, but with 4 kids I cannot be tired during the day. I too take my full dosing of gabapentin/neurontin in the evening before bed and I currently am on 900mgs. This dose knocks me out, it's great to sleep so soundly, but when my husband goes out of town I don't realy know that it will be wise for me to take the full dose. I am very new to this disease also, but I have been researching a lot and was able to find some articles from neurologists, my doc said this isn't an issue for a rheumatologist any more so she works with the neurologist, but any way there were articles about patients *****sponded very well to using the same types of meds that are being used to treat ADD/ADHD. They are administed at the lowest doses during the day to help combat fibro fog and fatigues that goes with this illness. There is also some thought that patients also find some additional pain relief due to the receptors in the brain that these types of drugs work on.
i plan to show my doc these articles at my next appointment and get her take on that. I know there have been some posts on here with others that ADD meds but i'm not sure if it's because they also have ADD and Fibro, but I feel at this point that anything is worth a try. I can't focus for one minute to the next and forget everything. it makes me look like such a bad mother when I continually forget to put my kids lunch in their backpack...the sad part is that it's made, but it's just sitting on the counter when he goes for the bus. I try so hard with lists and everything but I always end up forgetting something and feeling overwhelmed and frustrated.
Good luck with your meds and your doc and this is a great place for questions and answers.
Jennifer Louise
236/112/goal 125
236/112/goal 125
Topic: RE: New here
Hello, I am new to this forum and this diagnosis as well. I got my "good" news the day after my birtday two weeks ago and I just turned 37. I can tell you this much, I am relieved that this pain has a name and I know what it is. I had been everywhere and had tried everything. I'm going to be 5 years post op from my RNY in October. I was very concerned about going on any type of medication due to the absorption issues. The Rheumatologist reassured me that everything will be fine. The medication that I'm on, I take at bedtime and like clockwork runs out by the time I get home in the afternoon. I try and stager things by taking extra strength tylenol to help take the edge off of the achy pain. I am just so concerned because I feel so darned tired all the time and I really haven't felt like myself in a very long time.
I've also been wrestling with a chronic sinus infection since last march....the ENT specialist that I have been seeing told me this....with Fibromyalgia he said sometimes how you feel depends on what color glasses you decide to wear for the day.
I've also been wrestling with a chronic sinus infection since last march....the ENT specialist that I have been seeing told me this....with Fibromyalgia he said sometimes how you feel depends on what color glasses you decide to wear for the day.
Taking one day at a time.
Topic: Looking for a good doctor in the Atlanta area
I have a PCP that just likes to refer me out, and a Neurologist limiting my pain meds to 15 Vicodin per month, with no understanding of the malabsortion issues of post RNY patients.
If you have any positive experiences, please private message me.
If you have any positive experiences, please private message me.
Topic: RE: Klonopin
I don't take Klonopin, but I do take Zonegran which is another anti seizure medication. I take it to reduce the severity/frequency of migraines, and it's definitely helped with that. Bonus - weight loss due to appetite suppression.
As far as reducing the pain of FMS, I don't think so. My physical therapist swears that the only thing that will help is to keep moving with very light exercise. Too bad I can't seem to break my couch potato ways after 53 years.
As far as reducing the pain of FMS, I don't think so. My physical therapist swears that the only thing that will help is to keep moving with very light exercise. Too bad I can't seem to break my couch potato ways after 53 years.
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