Recent Posts
Topic: RE: I am so glad i found u!!!

Glad you found our board. Seems like we all stumbled upon.
Pain management that is the real hard for us all. Some doc are getting afraid of giving anyone anything. For those of us that NEED it is scary. We need relief. We sure understand each other here.
So welcome and gentle hugs your way and keep us posted how you are doing.
Pain management that is the real hard for us all. Some doc are getting afraid of giving anyone anything. For those of us that NEED it is scary. We need relief. We sure understand each other here.
So welcome and gentle hugs your way and keep us posted how you are doing.

Topic: RE: I am so glad i found u!!!
Welcome! That is my life verse too, I especially used it during my breast cancer.Yep God does indeed know about fibro, in fact I believe He uses it to keep me in constant contact with Him cause I sure do pray alot about the pain and getting thru it.
As for your prescriptions that are only for 30 days, I found out from my pharmacist that when it says that, I can always call and have the doc reissue the Rx. That is just so they can keep an eye on how much we are using so we don't use too much at a time. So you might try that approach.
I hope you can get into the pain clinic because they seem to be more willing to prescribe narcotic type meds. Also can you ask your bariatric doc to suggest a doc that does understand about your malabsorption. It truely amazes me how ignorant some of these docs are, especially about fibro. There is soooo much info on it yet none of them can be bothered to read it.
I'm pretty fortunate that my PCP is good about giving me pain meds and I have a pain specialist I can see if I'm still having problems. He has no hesitation to give me narcotics for pain.
I wish you luck on the job search and hopefully you'll find something that isn't too tiring.
As for your prescriptions that are only for 30 days, I found out from my pharmacist that when it says that, I can always call and have the doc reissue the Rx. That is just so they can keep an eye on how much we are using so we don't use too much at a time. So you might try that approach.
I hope you can get into the pain clinic because they seem to be more willing to prescribe narcotic type meds. Also can you ask your bariatric doc to suggest a doc that does understand about your malabsorption. It truely amazes me how ignorant some of these docs are, especially about fibro. There is soooo much info on it yet none of them can be bothered to read it.
I'm pretty fortunate that my PCP is good about giving me pain meds and I have a pain specialist I can see if I'm still having problems. He has no hesitation to give me narcotics for pain.
I wish you luck on the job search and hopefully you'll find something that isn't too tiring.
Topic: I am so glad i found u!!!
i have me been on the obesity site for prob 6-7 months now. my fibro is at an all time high - today is the first time i logged onto the Fibro message board - I am so glad i found you all!
I have been fighting my reg dr for pain meds - i see her again on monday- its like when we are in person she gets it and then when i have to call to change or reorder she forgets
i have requested the liquid lortab - which worked - yeah! but she gave me a 30 day supply no refills and lasted 2 weeks
i was on the patch once - then she wouldnt give me the refills cause she said they were really for cancer patients
even once she suggested i call my surgeon - what -she was treating me for pain way before my surgery
so i have done lots of research on my own - i found a rheumatalogist but they dont have an opening till may and they dont give pain meds
i found a pain dr who needs to read my regular dr files to decide if he will see me or not - so i faxed them and i am still waiting...
i am also trying to find a job - the job interviews have flared my IBS and anxiety
i feel so worn out so depressed - oh yeah cymbalta was working wonders and on monday i am asking for prozac liquid instead
my family is so done with my fatigue and depression - my friends think i am comptelelty hopeless since my surgery(and maybe i am)
seems that in addition to the fact that i used food for most everything and now i cant - my pain and depression were managed before surgery and i cant get a hold of it now - due to the malabsorption
I truly am so happy to have found this blog - i pray for monday - i had a hair appt because my hair fell out - again!!! but i couldnt get to it today - too much pain
so monday morning i hope to get new meds and i pray that monday afternoon i can throw on a wig and a smile and get to my job interview!
speaking of jobs - pre WLS and I guess pre obesity - I could do and loved to keep 3-4 high pressure never stopping always using my brain to the fullest jobs - now - i know i am capaple of a highly demanding corporate job however sometimes i feel as if being a greeter at walmart is all i can physically do - and partime at that. WTF!!!
My life verse is "I can do all things through Christ" I can do all things through Christ" I can do all things through Christ" I can do all things through Christ" I can do all things through Christ"
does God know about Fibro???
I have been fighting my reg dr for pain meds - i see her again on monday- its like when we are in person she gets it and then when i have to call to change or reorder she forgets
i have requested the liquid lortab - which worked - yeah! but she gave me a 30 day supply no refills and lasted 2 weeks
i was on the patch once - then she wouldnt give me the refills cause she said they were really for cancer patients
even once she suggested i call my surgeon - what -she was treating me for pain way before my surgery
so i have done lots of research on my own - i found a rheumatalogist but they dont have an opening till may and they dont give pain meds
i found a pain dr who needs to read my regular dr files to decide if he will see me or not - so i faxed them and i am still waiting...
i am also trying to find a job - the job interviews have flared my IBS and anxiety
i feel so worn out so depressed - oh yeah cymbalta was working wonders and on monday i am asking for prozac liquid instead
my family is so done with my fatigue and depression - my friends think i am comptelelty hopeless since my surgery(and maybe i am)
seems that in addition to the fact that i used food for most everything and now i cant - my pain and depression were managed before surgery and i cant get a hold of it now - due to the malabsorption
I truly am so happy to have found this blog - i pray for monday - i had a hair appt because my hair fell out - again!!! but i couldnt get to it today - too much pain
so monday morning i hope to get new meds and i pray that monday afternoon i can throw on a wig and a smile and get to my job interview!
speaking of jobs - pre WLS and I guess pre obesity - I could do and loved to keep 3-4 high pressure never stopping always using my brain to the fullest jobs - now - i know i am capaple of a highly demanding corporate job however sometimes i feel as if being a greeter at walmart is all i can physically do - and partime at that. WTF!!!
My life verse is "I can do all things through Christ" I can do all things through Christ" I can do all things through Christ" I can do all things through Christ" I can do all things through Christ"
does God know about Fibro???
Topic: RE: all these meds...and work?
DORTHE
AGING IS INEVITABLE
GROWING UP IS OPTIONAL!
hi again sue:
thanks for all the add'l information. when i saw my dr today she referred me to a rheumatologist and a psychiatrist - hopefully to get some resolution on my back problems and to deal with the meds i'm on and the fact that they're not working as well as they should.
it would be such a blessing to get the brain fog lifted. my job was fairly blunt about my needing to be 100% at work and right now, that's not happening, so i guess i'll be on fmla for awhile. at least until i get my meds back under control.
i had a sleep study done b4 surgery - yes. i was waking up 60 - 65 times a minute. who knew? doesn't really seem possible but that's what they said.
i'm gonna hang on to your email info, sue. once the dr reviews what i'm on and what i may need, i'll share your information with her. so thanks again for the helpful information.
take care. someday i'd like to feel 'fantastic' again, too.
thanks
dorthe
thanks for all the add'l information. when i saw my dr today she referred me to a rheumatologist and a psychiatrist - hopefully to get some resolution on my back problems and to deal with the meds i'm on and the fact that they're not working as well as they should.
it would be such a blessing to get the brain fog lifted. my job was fairly blunt about my needing to be 100% at work and right now, that's not happening, so i guess i'll be on fmla for awhile. at least until i get my meds back under control.
i had a sleep study done b4 surgery - yes. i was waking up 60 - 65 times a minute. who knew? doesn't really seem possible but that's what they said.
i'm gonna hang on to your email info, sue. once the dr reviews what i'm on and what i may need, i'll share your information with her. so thanks again for the helpful information.
take care. someday i'd like to feel 'fantastic' again, too.
thanks
dorthe

AGING IS INEVITABLE
GROWING UP IS OPTIONAL!

Revision on 08/21/12
Topic: RE: all these meds...and work?
One other thing, I'm sure you had a sleep study done prior to surgery, but if it is not recent get another one. My sleep specialist grinned as soon as mentioned fibro but didn't say anything, just ordered the study. When I went back (this was a few years before I got fat enough fto have apnea) he told me my results were just as expected. Fibromyalgia patients have strange results, but basicly we don't get down into the lower levels of sleep where true rest and regeneration takes place, I was only in level three for 30 min. all night, never level4. To add insult to injury, in level 2 I had spikes to level 1 and to nearly awake umpteen times a minute. We are not aware of any of it, but there is no true rest, hence another reason we are only "half there". My specialist put me on an old antidepressant, Deseryl, or trazedone. There are many meds that can be used to find the right one. The dose I had to figure out by myself, there was a range between 50 mg. and 150 mg. A 300 lb. football player may need only 50 mg. yet a 90 year old woman weighing 90 lbs. may need 150. I have been amazed at the difference. Someone turned the lights on. I may have periods of fibro fog but not like before, and I don't feel so tired after a full nights "sleep". However, if I forget to take it or am out I spend the longest and most boring night you can imagine, half in and half out, waking and checking the clock 3 times in 5 minutes, etc. That is now, after I have bee treated for a while. It took me a while to settle in on the right dose because initially 1 would put me down. After I adjusted and got to 2 while I had a few weeks off work I felt better yet. A couple of years later I began to feel like it wasn't the whole answer and went to the full 150 mg and I feel fantastic, most of the time. You might consider discussing this with you doctor. If he is not familiar with this syndrome he might do a phone consult with my sleep Dr. I'd give you the name and # if you needed it.
If this helps solve another piece of the puzzle then I'm glad. Fibro is tough enough to deal with without one more thing.Take care and God Bless, Sue
If this helps solve another piece of the puzzle then I'm glad. Fibro is tough enough to deal with without one more thing.Take care and God Bless, Sue
Topic: RE: all these meds...and work?
DORTHE
AGING IS INEVITABLE
GROWING UP IS OPTIONAL!
hi granny:
got a hour long meeting today with hr because i'm not able to work at 100%. they suggested i talk to the doc about a medical leave - so i moved my appt to tomorrow and i'll have to see what she says when i see her. i'm not on narcotics now, maybe it's just the fibro fog. guess i'll try to find out tomorrow.
good luck to you - thanks for your reply.
hugs
dorthe
got a hour long meeting today with hr because i'm not able to work at 100%. they suggested i talk to the doc about a medical leave - so i moved my appt to tomorrow and i'll have to see what she says when i see her. i'm not on narcotics now, maybe it's just the fibro fog. guess i'll try to find out tomorrow.
good luck to you - thanks for your reply.
hugs
dorthe

AGING IS INEVITABLE
GROWING UP IS OPTIONAL!

Revision on 08/21/12
Topic: RE: all these meds...and work?
I know what you mean about having problems with focus at work, etc. I have ADD as well as fibro! I have to leave the narcs for when I am not at work and use tylenol and 2 Ultram when I am. I still hurt, but I don;t need to scream. The little man who has the redhot poker with whick he is trying to pry my pelvis apart with is at least calmed a bit. Also, frequently my a** hurts (wow what a BIG pain) so I use a product called Biofreeze that will give me some relief for a while, maybe long enough for something else to take over. I like the roll on, and it doesn't stink like some products. I wish you well. I battle the work issue too.
Revision on 08/21/12
Topic: RE: Freaking DYING
The cymbalta (90mg) has worked well for me for both my depression and the fibro, but if it doesn't work for you then contact your doc and insist on a change. My sleep specialist told me that fibro patients have an almost typical sleep pattern that is very disrupting to quality sleep. My test showed an almost textbook case. I never got below type 3 sleep, (of 4)only spent 30 total minutes in stage 3, and my brain waves spiked into levels 2 and 1 every few minutes. Stage 3&4 are where real rest takes place as well as nonessential things like, oh say, cellular regeneration. I was placed on trazedone and it works great. (except for the sleep apnea). There are many meds that can be used. Sleep is one of the most essential things for a fibro patient, yet, the fibro sabotages it. Get that checked out, you may get some relief.
Also, I work at a job where taking a narc or anything like valium is absolutely out, so I got an Rx for Ultram. It doesn't do much for me by itself, but add 2 of those to 1000 mg. of tylenol and it will bring the pain down to a dull roar. Good luck, you'll be in my prayers.
Also, I work at a job where taking a narc or anything like valium is absolutely out, so I got an Rx for Ultram. It doesn't do much for me by itself, but add 2 of those to 1000 mg. of tylenol and it will bring the pain down to a dull roar. Good luck, you'll be in my prayers.
Revision on 08/21/12
Topic: RE: Surgery causing flare in fibro
I am currently waiting for my surgery, but I can tell you that yes, surgery of about any type will cause a flare. I had a bunionectomy a few years ago and my pain was way worse than other pts. usually experience, so I required a lot more pain medication than a "normal" person. Then I had a flare that was the mother of all flares, lasting 2 months. (I was working and attending college at the same time, thought I'd die). Every person with fibro reacts differently and I hope you do well, but I decided I would hope for the best and prepare for the worst. I figure the surgery is worth any amount of pain. I won't die from pain, I will die from my obesity. Good luck.
Topic: RE: all these meds...and work?
DORTHE
AGING IS INEVITABLE
GROWING UP IS OPTIONAL!
thanks for the input. i see the doc on friday. we'll see what she can tell me.
take care
dorthe
take care
dorthe

AGING IS INEVITABLE
GROWING UP IS OPTIONAL!
