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Thiamin deficiency isn't something doctors test for unless you ASK FOR IT. I had pain, burning, tingling sensation in my feet, top and bottom, for years. If my pants brushed across the top of my feet, it was agonizing! However, about a month after starting the B-1 replacement, the pain was all but gone!! I was absolutely amazed. It seemed just absolutely too simple, so I started doing some reading and found out that B1 deficiency can cause severe nerve pain/sensitivity. Pain killers usually don't work on it either.
B1 is water soluable, which means you can't overdose on it. Your body will just eliminate what it doesn't need. If you want validation, then get your level tested by your doctor. If you just want to get started to see if it helps, go get yourself a bottle of B-1 (usually comes in 100 mg tablets) and take it faithfully each day for a month or so to see if your symptoms improve. Mine certainly did! I hope it works for you!!
Highest: 297 lbs/Lowest 127 lbs/Maintaining at 140-145 lbs 
RNY Nov 2009/Perforated Ulcers Jan 2010/Revised to modified VSG Dec 2011 
on 2/10/10 5:57 am - UT
Hang in there everyone. It will be warmer some day.
We're all in this together and we can make it through (except those days when we really can't)!
on 2/10/10 5:51 am - UT
It is hard and it will continue to be hard. But, there are sunny days ahead as well.
I have been ill for 15 1/2 years. I have tried a lot of different meds and alternative stuff--all with varying success.
I know it is hard to move, think or do anything. But, try to do research as much as you can. You can take ideas to your dr. I like the mayo clinic's website and fibrotalk.com. Educate yourself and the people around you as much as you can. It is essential to have good support.
I have found that it works best to take on one symptom at a time. I always start with my sleep disorder. If you are constantly changing meds and therapies, you don't know what is really helping and what is not.
Hang in there. You are not alone.
Take care
I have been through a ton of different meds...what is working for me right now is: 60 Cymbalta (no problems with it other then upset stomach for the first few weeks), 5 mg of baclofen for my long muscle spasms(it is used for many MS folks) and I started Tramadol 50 every 6 hours as needed. The Tramadol has been a great new thing for the pain. I also take 3 tylenol at night too....bedtime can be my worst time. When I had my VBG 9/29/09, I had to stop all of my meds for a few weeks...it was horrible....it made my hospital stay awful. I have had 3 different rhuemo's, they were quite belittling except for the last that started the baclofen. My primary is a doll and will work with me within reason...as I said, I have done the muscle relaxers, valium and such....I wish you the best..it stinks to be in such pain.....also remember you should not be taking motrin as much...I have been told not to take at all....that was an issue because I ate 1000's of mgs a day when flairing.
Be well!
My PCP saw me yesterday and we worked out some new meds to see if they would help. I have severe insomnia- so he started me on Ambien. I took it last night and got the best night of sleep Ive had in years! I feel so much better today already. He also prescribed me a new pain med called Midrin- so we will see how that works... And Im sticking out the Cymbalta, at least until the script is done and its time to revisit my Rheum to reevaluate.
You are not failing....you are in pain and that is exhausting in itself. I am new to the fibro portion of this site...but my docs have all told me that fibro is what they believe I have and I have accepted it. I feel your frustration. There are only a few things that work for me. I dumped my rheumatologist in late 08 when she wanted to prescribe me fentynol patches and another new high narcotic patch....I mean really strong meds and all I was asking for was the occasional vicodin or valuim. Lyrica made me like a comotose zombie. Valuim really helps me and would only take it when I really needed it. The same with vicodin. My docs are very much against these two meds. why I still don't know.
Last year when I started my lap band process I had to see a shrink and I told him that the most depressing thingaside from my weight was the constant pain from the fibro. I would feel relief if I moved like they asked but we all know how hard it is to get the first step going. He asked me to try Cymbalta...I was very hesitant. We tried many doses...30, 60..then 90...all the way up to 120. He kept asking me to stick it out. Well after 1 year I can say...it has saved me. I am very lucky I do not feel depressed. I do have stints of extreme tiredness...just wanting to sleep and sleep and sleep. He has now lowered my dose back to 60 which I am now taking at night to try to shake the sleepiness. But the pain has improved drastically.
Keep trying. Don't give up. What works for one does not work for another. I do hot soaks.... massages....accupunture.
I know pain is my friend but one I wish I could get rid of.
