Recent Posts
Topic: anyone with burning on the top of their feet?
Ive been dx with fibro for 12 years now. Just wondering if anyone has had the burning sensation on the top of their feet? Never had that symptom before. Its always been on the bottom. Any suggestions or recommendations? i Have a pain pump with fentanyl and baclofen. Take soma, norco and lyrica for fibro. And recently have lidocane patch for burning sensation but no relief yet.
Topic: RE: Is is me or is this the WORST winter EVER for us with Fibromyalgia?
Collinsmdzia
I hear you! I know dogs are better than boyfriends-but boyfriends shovel! We have over a foot on the ground now (8 AM) and it's still snowing and blowing! I too don't think I know what being pain free feels like anymore. We can only hope and pray for something soon! I appreciate your support. Hugs to you and your dog!

Topic: RE: Is is me or is this the WORST winter EVER for us with Fibromyalgia?
Dogs are always better than boyfriends!
I don't know if it's worse or it's just me getting older. It does seems fewer things help that used to. I just pray some brilliant scientist comes up with a complete cure, can you even imagine what a relatively painfree life would be like?! I can't even remember the last time I was pain free. Best wishes to you and gentle hugs.

Topic: Is is me or is this the WORST winter EVER for us with Fibromyalgia?
Collinsmdzia
My Dear Fibro Sisters,
I hope this finds you in better health and spirits than I find myself. I am sorry to "vent." I live in the Washington Metro area-we have had several "small" snow storms and are expecting 24 inches today into tomorrow! I am sore and tired and just in the foulest of moods. I am dog sitting for dear friends who have a great house-but my apartment the super does the shoveling. My go to meds and "fixes" are not working. I may just head to bed with my dog, my heating pad and remote.
I took the dog for a walk thinking it might help-not so much! The dog was happy! Times like this makes me wish I had a boyfriend!
Love to all!
Sue
I hope this finds you in better health and spirits than I find myself. I am sorry to "vent." I live in the Washington Metro area-we have had several "small" snow storms and are expecting 24 inches today into tomorrow! I am sore and tired and just in the foulest of moods. I am dog sitting for dear friends who have a great house-but my apartment the super does the shoveling. My go to meds and "fixes" are not working. I may just head to bed with my dog, my heating pad and remote.
I took the dog for a walk thinking it might help-not so much! The dog was happy! Times like this makes me wish I had a boyfriend!
Love to all!
Sue

(deactivated member)
on 2/4/10 12:32 pm - UT
on 2/4/10 12:32 pm - UT
Topic: RE: Great quote about CFIDS/FM
What kind of detox are you doing? It sounds like something I need to do.
I love your t-shirt idea. Make a bunch and make them big and sell them. I would buy one. Who knows, maybe you could make a fortune.
I love your t-shirt idea. Make a bunch and make them big and sell them. I would buy one. Who knows, maybe you could make a fortune.

Topic: RE: Just wondering how you all are ??
Thanks Nabby, people always say oh if I could just go to bed for a week or 2. However when it actually happens it really sucks! I'm so lucky I have an awesome hubby and he keeps house better than I do, so things shouldn't be too thrashed. I plan to take it slow and easy, take the doggie for some short walks and work my way up cause I know I'm super out of shape. I also have lung disease so I can't go very far or fast, one step at a time. Hope you have a wonderful birthday too!
(deactivated member)
on 2/3/10 11:55 am - UT
on 2/3/10 11:55 am - UT
Topic: RE: Just wondering how you all are ??
Dear Hislady-
I am so sympathetic to your plight!
Two years ago, I dislocated and broke my ankle. (8 weeks with my foot above my heart and in the cast from hell).
Last year, that ankle joint became so diseased, it had to be fused (10 weeks with my foot above my heart and in the cast from hell).
Now I'm so fat and unfit, I am not moving very well.
However, there truly is light on the other side. I think once we improve from the stress of the break and the anesthesia and the pain, life gets much, much better.
Hang in there and take it slowly. After being in bed so long, you want to do everything that has fallen by the wayside. Remember, you are really deconditioned. But, slowly, but surely, you will improve.
I, too, just got a dog. When I am anxious, I hold him and pet him. It really helps---pain and anxiety. Now, of course, this dog was for my special needs son. I was NOT excited about him. But, my son calls him his little brother and loves him so much. When I see the bond they have, I am so glad we got him. Now, I wasn't going to get attached. Of course, I am in love. The little stinkers really tug and the ole heart strings. He is such a good companion.
Hang in there--you're at the bright end of the tunnel! Good luck.
I am so sympathetic to your plight!
Two years ago, I dislocated and broke my ankle. (8 weeks with my foot above my heart and in the cast from hell).
Last year, that ankle joint became so diseased, it had to be fused (10 weeks with my foot above my heart and in the cast from hell).
Now I'm so fat and unfit, I am not moving very well.
However, there truly is light on the other side. I think once we improve from the stress of the break and the anesthesia and the pain, life gets much, much better.
Hang in there and take it slowly. After being in bed so long, you want to do everything that has fallen by the wayside. Remember, you are really deconditioned. But, slowly, but surely, you will improve.
I, too, just got a dog. When I am anxious, I hold him and pet him. It really helps---pain and anxiety. Now, of course, this dog was for my special needs son. I was NOT excited about him. But, my son calls him his little brother and loves him so much. When I see the bond they have, I am so glad we got him. Now, I wasn't going to get attached. Of course, I am in love. The little stinkers really tug and the ole heart strings. He is such a good companion.
Hang in there--you're at the bright end of the tunnel! Good luck.
(deactivated member)
on 2/3/10 11:40 am - UT
on 2/3/10 11:40 am - UT
Topic: RE: Just wondering how you all are ??
Happy Birthday! 
I'm almost 47. (My b.day is this month)

I'm almost 47. (My b.day is this month)
Topic: RE: Just wondering how you all are ??
HAPPY BIRTHDAY PAM! I know how you feel, I planned on being a much more active oldster but with the fibro and back problems it just ain't working out that way. Our weather has been unusually warm so winter hasn't been too bad so far. I'm very excited because I get the pin out of my toe from foot surgery and I've been stuck in bed for 6 weeks!! In Aug. I broke my leg and spent another 6 weeks in bed, so in the last 5 mos. I've spent 3 mos. in bed! Not as fun as it sounds. So Fri. I should be able to get up and walk again, I'm sooo looking forward to that because I recently got a darling ****er spaniel and look forward to walking her. Hope everyone else is doing well, gentle hugs to all!

Topic: Just wondering how you all are ??

I went with my neice this morning to the Bangor mall. I only walked into Sears about 100 ft shopped right there in the imediate area and back out. The cold just that long made my bad arm and neck just ache afterwards. The cold and our muscles is not good.
Which with the fibromyalgia ALL our muscles are affected.
How is all my fibro sisters??? My 63 rd Birthday is tomorrow. I am OLD.....
Which with the fibromyalgia ALL our muscles are affected.
How is all my fibro sisters??? My 63 rd Birthday is tomorrow. I am OLD.....
