Recent Posts

MainePam
on 5/30/11 5:19 am - Bucksport, ME
Topic: RE: New to board, glad to have found it.
Welcome julie and glad you found us.
One thing you will find here is true understanding. We all know what fibro pain is and all the other stuff that goes with it.
pain pills do not make the pain go away. they just help take the edge off. You have to do what you can and not feel guilty what you can't do.
I am 64 and have severe arthritis with the fibro. I have two knee replacements asnd had a right shoulder replacement last year.
I HURT all the time all over.  BUT I try to stay as active as I can. never could do exercises  though.
keep us posted how you are doing.
Pam
Hislady
on 5/28/11 6:41 am - Vancouver, WA
Topic: RE: New to board, glad to have found it.
Welcome jujube! So glad you found us. Yes trauma of any kind can start the ball rolling and usually causes a flare anytime you have stress or trauma whether it's physical or emotional. There are some drugs specifically for fibro treatment such as lyrica, cymbalta and savella. I think many of us have to take the narcotic pain meds to really get relief. I've been on morphine and oxycodone for several years and they seem to be what helps the most.I also take cymbalta but that doesn't work as well as the narcotics. I feel that as long as a person isn't abusing the pain meds and using them to get high rather than just for pain relief then there isn't a problem. I haven't had to increase my dosage at all since I started taking them and take them according to my docs directions. I don't want to get where no pain meds work for me so I try to stay on a low dose and use as little as I can and so far that seems to work for me. You might try seeing a rheumatologist or pain clinic for help, they both treat fibro. I wish you luck and gentle hugs. Please feel free to ask any and all questions, we have a pretty knowledgable group here!
jujube123
on 5/28/11 5:59 am
Topic: New to board, glad to have found it.
 Hi, I am so glad to have just noticed the fibro forum.  I am 39 and have had fibro symptoms for several years, just couldn't put it all together and realize it had a name.  It seems to have started out with arthritis symptoms which I also have and has progressed over the last several years.  I was wondering if anyone else has noticed a corelation with traumatic events and fibro.  I have tingling and numbness, shoulder, hip and knee pain as well as widespread pain and sensitivity and body aches.  The hip pain and achiness became bad enough to mention to my doctor around 2002, but the widespread pain where I cringe when my kids want a "bear hug" became a huge problem in the last 4 years.  My balance has been affected as well.  I feel weak when I had always been such a strong person both physically and mentally.  I cant get to sleep at night and sometimes sleep til noon.  I feel so guilty for not getting things done.  No one can see what's wrong with me and I think sometimes my husband just thinks I am lazy.  I want to be normal so badly.  I used to be so outgoing and just loved to be out and about.  Not anymore.  I had the gastric sleeve in March of this year and was so hopeful weight loss would help.  Strangely, the initial shock to my body of a 48lb weight loss seemed to help so much, but shortly after that, even though I have lost a total of 69lbs, my fibro and arthritis pain caught up with me and I am still in the same pain as before.  I am very leary of pain killers although my Dr. has prescribed loratab.  It doesnt do much for me at all.  Even when I have something as painful as a kidney stone, even morphine doesnt work.  Other pain meds do work such as percocet but I have never wanted to take pain meds due to my mom being addicted to loratabs.  I am at my wits end with this way of life.  Now I know how my mom felt and I really hate that she was dealing with the same thing while I was growing up and no one knew how bad she felt.  Sorry for the rambling, that's also part of my fibro.  I thought it was ADD but I guess that just ties into the fibro diagnosis.  I have also begun to believe that fibro may be like a physical form of a nervous break down??? Just trying to figure out where the traumatic part ties into the physical ailment, but I do know that my symptoms increased dramatically around the same time I lost my job of 15 years and got divorced the same year.  Any thoughts on traumatic events and fibro association?  Thanks for letting me spit all that out, it seems no one understands.... Julie
     
mandajolyn
on 5/28/11 2:30 am - Tallahassee, FL
Topic: RE: Help just had gastric bypass may 16th
It can cause a flare up in the Fibro. I know I was in a world of pain after surgery. It gets better! Just walk as much as you can, make sure you're getting your fluids in and rest! Take care of yourself and you'll heal and hopefully the pain will calm down. The pain med will cause nausea. If it gets to bad call your Dr.
"Be present for your journey, get to know who you really are and then be your authentic self with NO apologies"
You can follow my journey at mandaschange.blogspot.com
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Hislady
on 5/24/11 1:17 pm - Vancouver, WA
Topic: RE: New diagnosis to add to the list
Go up to right under where it says fibro forum to where it says member list and fill in as much info as you can and it should show her. I'm curious abot the fish oil because I also take coumadin and was told to take 1000 mg a day of fish oil to keep my blood system supple and loose.
Miss_Kitty
on 5/24/11 8:17 am, edited 5/23/11 8:18 pm - New Bedford, MA
Topic: RE: Flare 4 days and counting
Oh, honey........you are singing my song! I also suffer chronic pain and can't really take any meds for it. I am allergic to most pain meds, (even Tylenol and asprin) and can't take ibruprofin because I am on blood thinners. The only pain med I can take is Dilaudid, and I can't find a doctor anywhere to give it to me because it is a narcotic. Even my PCP doc won't give it to me and she knows I am not a druggie! The druggies make me mad because they make it so difficult for decent people like us to find adiquit pain relief! The bad guys make the good guys suffer! Try looking into the homeopathic meds like fish oil supplements and stuff. But check with your doc first. Fish oil may be natural and stuff, but you can't take it if you are on blood thinners, and if you are allergic to aspirin (like me) don't take Willow Bark. (that is basicly aspirin) Hope you find relief soon.

Do you see the glass as half empty or half full? I say, what difference does it make--I paid for a full glass,so either way I am getting jipped!!!

Miss_Kitty
on 5/24/11 8:06 am - New Bedford, MA
Topic: RE: New diagnosis to add to the list
How do we contact certain members? Vita Lady may be able to help me since I cannot take allot of meds and have been looking in the homeopathic and vitamin stuff. I am even having trouble with that too. I heard that ginger helps with GI upsets and inflamation. However, I can't take it because I am on a blood thinner. (Coumadin) Same is true for fish oil caps. I hear such wonderful things about fish oil, but once again.....can't take it because of the Coumadin.

Thanks for any help you can provide.

Do you see the glass as half empty or half full? I say, what difference does it make--I paid for a full glass,so either way I am getting jipped!!!

Miss_Kitty
on 5/24/11 7:58 am - New Bedford, MA
Topic: RE: Elivil??
Be careful of the amitryptaline. I am on it for headaches. I started at 25mg tabs in November and am up to 150mgs because the headaches keep coming back. Since November, I have gained 75lbs. Sorry but your doc is a complete azz for saying that the pills don't put food in your mouth. What happens is that you get an increase in appitite and a craving for sweets. At least that's what it did for me. Meds work differently in different people, but I would be aware of that side effect. It has actually caused me with a difficult dilema............live my life thin with deplorable headaches, or live obese and have headaches that are at least somewhat manageable. I also suffer chronic pain, and the amitryptaline hasn't done a thing for the pain. Best of luck to you.

Do you see the glass as half empty or half full? I say, what difference does it make--I paid for a full glass,so either way I am getting jipped!!!

Hislady
on 5/24/11 7:19 am - Vancouver, WA
Topic: RE: New diagnosis to add to the list
It always helps me to have an answer, then I can deal with whatever it is. Try contacting Vita Lady here on OH she seems to have lots of knowledge on vitamins etc., maybe she can help out with your labs. Good luck!
MainePam
on 5/23/11 11:44 pm - Bucksport, ME
Topic: RE: New diagnosis to add to the list
Well let me tell u on the vit D I was taking 5 5,000 pills a DAY and 1 50,000 a week and brought up my D from 30 to 70 so I have cut back. BUT that is scary to me that I was taking that much and still within range.
At least you have some answers to work on now, good luck.
Let us know how you are doing.....
Pam
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