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Topic: RE: R U tired of people blaming your weight for your pain?!!!!
I completely understand where all of you are coming from! I had my Gastric on 01/13/10 I was 348lb now I am down to 181lbs. I feel really good. Except for the fybro. When I decided to have the gastric I was so tired of the constant pains I had and the sleepless nights. I was on every Kind of Med that you can think of for Fybro. I got almost all the side effects from everyone. SO I was told to lose weight! I did. ALLOT I am here to tell you. FOR ME IT MADE NO DIFFERENCE!!! I am in even more pain now then when I was 348 lbs! I work 2 Jobs and walk back and forth to my 2nd job 4 days a week I go to the park with my daughter and am constantly going. The walking helps. While I walk. When I stop I feel it all. I laugh when I go see my doc now and he cant say. Well lose weight! I have a nurse at my job and now she looks at me and says. I am so sorry. When it used to be Lose weight! I hate to say this But I think this is just something I am going to have to live with. I cry allot about it. My family life suffers because some days I just go home and go to my room and shut the door and cry. My husband is beside himself he just does not know what to do for me. And really there is nothing that can be done. SO long story short WEIGHT DOES NOT MATTER when you have fybro. I will say it helped my back! I was not able to walk at all before I lost this weight Now I walk everywhere. My back pain is gone. So that was weight. But everything ells. FYBRO! Much love to you all! I wish you all the best!! HUGS!!!
Topic: RE: A LIGHT AT THE END OF THE TUNNEL...MAYBE?
Unfortunately, you may have to make a critical decision.......do you lose weight, or be pain free? I haven't been on this site for quite some time, only because I am ashamed at myself for gaining 50 lbs since November. The reason.......Amitryptaline. This is an older type of drug that was used for depression, but they also use it for headache sufferers too. So, I had to make the decision.....gain weight, or live with debilitating headaches. As soon as I can find pain relief, (and my weightloss did not help with pain relief) I want to start walking more, especialy with the weather finally getting warmer. (no more snow....Puhleeeeese no more snow!!!) (I live in Massachusetts, so we've seen plenty of it this winter!)
I am allergic to allot of pain meds, so I have been looking more into the homeopathic remedies. I heard garlic is good for an anti-inflamatory which may help with pain. I hope you find relief soon, pain relief as well as your up-coming surgery. You can always chat with us on this board. Trust me, I have left plenty of posts in the past when I had my surgery, (I had a panni removal/hernia repair.) and this is a good site to find caring friends that soon feel like family.
I am allergic to allot of pain meds, so I have been looking more into the homeopathic remedies. I heard garlic is good for an anti-inflamatory which may help with pain. I hope you find relief soon, pain relief as well as your up-coming surgery. You can always chat with us on this board. Trust me, I have left plenty of posts in the past when I had my surgery, (I had a panni removal/hernia repair.) and this is a good site to find caring friends that soon feel like family.
Do you see the glass as half empty or half full? I say, what difference does it make--I paid for a full glass,so either way I am getting jipped!!!
Topic: RE: R U tired of people blaming your weight for your pain?!!!!
I think too many people watch The Biggest Loser, and think that we fat people just need hard core workouts like they do. Notice you don't see the pain they are in the following day. (or later that evening!) They probably edit all that stuff out. The problem then is that many people (doc's included) see this show and think if we lost weight the same way, we would feel better just because the contestants do. Hmph! Only on TV people! That's only on TV!
Do you see the glass as half empty or half full? I say, what difference does it make--I paid for a full glass,so either way I am getting jipped!!!
Topic: RE: Sex and chronic pain
No. I didn't consider that inappropriate. It's hard to talk about how to have sex when everything causes pain. Thanks for the advice.
Do you see the glass as half empty or half full? I say, what difference does it make--I paid for a full glass,so either way I am getting jipped!!!
Topic: RE: Sex and chronic pain
Without being too graphic I can share the position that has the least amount of discomfort for me. Because my hips and lower back are where the majority of my pain is I have found that once there is penetration in the missionary position he can let me put my legs down (one at a time) so that my legs are straight and he is still on top of me. Not only did it relieve the pressure off my back and hips, but the outer stimulation that occurred made it even more enjoyable.
Please, please forgive me if you feel this is inappropriate. I only want to offer help. Being in a similar situation I understand how important intimacy is without leaving us in pain for days on end.
Please, please forgive me if you feel this is inappropriate. I only want to offer help. Being in a similar situation I understand how important intimacy is without leaving us in pain for days on end.
Julie 
Topic: RE: A LIGHT AT THE END OF THE TUNNEL...MAYBE?
I only strive to be, the kind of person my dogs think I am! 
Of the choices we are given, it's no choice at all....
-Patty Griffin
OMG, dont tell me that. I was so pumping myself up to not have this affect me. Yes, I'm on Cymbalta already for about 2 years. So, this pain has started WITH being on it. So, now I will be on both. I probably will gain weight then because I had been put on the mood stabilizer Seroquel that is supposed to cause major weight gain(but at that point in my life I had no choice, kinda like right now) and my psych told me the same thing about that. It makes you hungry but you're the one putting the calories in your mouth. And at the time he was right! I would go on complete binges, even in the middle of the night. I gained 40 lbs in 6 months!!! All I can do is hope and fight every step of the way!! I forgot to mention in my OP that I will also be starting intensive aqua therapy in hopes it will improve my mobility. Maybe one day I will be able to go to a real gym!!! Yeah right, seems kind of bleak right now!!
I only strive to be, the kind of person my dogs think I am! Of the choices we are given, it's no choice at all....
-Patty Griffin
Topic: RE: A LIGHT AT THE END OF THE TUNNEL...MAYBE?
Glad your pain doc is working with you, it is always nice to not have to fight every step of the way. Cymbalta is a fibro drug also, I take it but it's effects have gotten weaker over time. Are you taking them both now? I took Lyrica but immediately statred gaining weight and that was after my WLS and was following the diet diligently. So I kinda have to take exception to your docs statement that it merely increases the appetite. I was eating less than 1000 calories a day and still gained weight which is why I switched to the Cymbalta. I hope it does work for you and it may because we are all so different. At least you have a doc on your side now that will work with you and that is worth it's weight in gold for a fibro patient!
Topic: A LIGHT AT THE END OF THE TUNNEL...MAYBE?
I only strive to be, the kind of person my dogs think I am!
Of the choices we are given, it's no choice at all....
-Patty Griffin
I WAS FINALLY ABLE TO GET IN TO SEE MY PAIN MANAGEMENT DOC YESTERDAY. I USUALLY GO ABOUT MY SPINAL OSTEOARTHRITIS BUT, THIS TIME I DECIDE TO MENTION ALL MY PAIN ISSUES THAT I BELIEVE IS FIBRO. I WAS NOT SURE WHETHER TO TELL HER OR NOT BECAUSE WHEN I WAS FIRST GETTING STARTED WITH THE IDEA OF RNY SURGERY SHE WAS FIRMLY AGAINST IT, FOR HER OWN REASONS WHICH I DIDNOY AGREE WITH. BUT, I'M SOO GLAD I DECIDED TO TELL HER. SHE DECIDED TO KEEP ME ON MY MUSCLE RELAXERS AND SAID THAT SHE KNOWS THAT MINE ARE ALOT STRONGER THAN FLEXORIL BUT, IF IN THE FUTURE THESE STOP WORKING WELL THEN WE'LL CHANGE THEM AGAIN. THEN WE DISCUSSED PAIN MANAGEMENT FOR THE PROBLEM AND SOME DOC ARE USING ,EXPERIMANTLY(SP), MY PAIM MED THAT I AM ALREADY ON. IT IS SUBOXONE WHICH THE FDA APPROVED FOR GETTING HARD OPIATE USUERS OFF THEIR DRUG. IT IS ACTUALLY A PAIN MED THAT HAS BEEN USED IN EUROPE FOR AROUND 30 YEARS. ANYWAY, IT IS ABOUT AS STRONG AS A NARCOTIC AS THEY MAKE. I AM EXTREMELY PAIN MED RESISTANT. I TOLD HER THAT THE SUBOXONE WASNT EVEN HELPING WITH THE BODY PAIN. SHE SHOOK HER HEAD AND SAID THAT, THAT WAS CONCURRENT WITH THE CONDITION AND THAT, WHILE THEY DO HELP SOME PEOPLE, OPIATES AN SUCH ARE NOT THE BEST WAY TO TREAT THE SYMPTOMS. SHE ASKED ABOUT CYMBALTA AND I TOLD HER I WAS ALREADY ON IT FOR MY DEPRESSION AND THAT I WAS ON 120MG FOR THAT SO MY PCP RAISED IT UP TO 180MG A DAY. SHE SAID TO STAOP AND GO BACK TO THE 120MG BECAUSE TECHNICALLY CYMBALTA IS NOT THERAPEUTIC OVER 90 MG, BUT TO STAY AT 120MG BECAUSE MY PSYCH PRESCRIBED THAT. THEN SHE SAID THAT SHE WANTED TO PUT ME ON LYRICA. I COULD NOT BELIEVE THAT SOMEONE IN THE MEDICAL PROFESSION FINALLY DECIDED TO GO WITH FULL ON FIBRO TREATMENT, I'M SOOO HAPPY! ALTHOUGH I AM A LITTLE TREPEDATIOUS(SP) ABOUT IT, IAM EXCITED FOR THE POSSIBILITY OF SOME PAIN RELIEF. I ASKED HER ABOUT THE WEIGHT GAIN ISSUE AND MY RNY AND SHE SAID THAT THE LYRICA ITSELF DOES NOT MAKE YOU GAIN WEIGHT, IT INCREASES YOUR APPETITE AND SO ULTIMATELY IT IS MY DECISION WHETHER I DECIDE TO OVER EAT OR NOT. SO, I'M JUST GOING TO HAVE TO BE VERY STRONG AND NOT GIVE IN TO URGES TO STUFF MY FACE AND MAKE SURE I AM MAKING THE CORRECT FOOD CHOICES, AS I AM ONLY JUST STARTING MY WLS JOURNEY, AND I CAN NOT LET MYSELF FAIL. I AM JUST SOO EXCITED THAT I AM BEING TREATED ACCORDINGLY!! THANKS EVERYBODY FOR LISTENING TO ME DRAG ON AND ON AGAIN. IT JUST FEELS SO GOOD TO HAVE A GROUP OF PEERS WHO UNDERSTAND! IF ANY OF YOU HAVE ANY EXPERIENCE WITH lYRICA AND WLS I WOULD LOVE TO HEAR IT. ESPECIALLY IF YOU WERE ON IT BEFORE YOUR WLS OR PUT ON IT PRETTY SOON AFTER, SO I CAN HEAR WHAT HAPPENED IN THOSE SITUATIONS. ANYTHING YOU HAVE TO SAY WILL BE GREAT. I ALWAYS RESEARCH AND STUDY ANYTHING THAT I AM BEING PUT ON, SO ANY SIDE EFFECTS, EXPERIENCES YOU HAD/HAVE WILL BE APPRICIATED.
TAKE CARE OF YOURSELVES!!!!!
TAKE CARE OF YOURSELVES!!!!!
I only strive to be, the kind of person my dogs think I am! Of the choices we are given, it's no choice at all....
-Patty Griffin
Topic: RE: Do I have fibro?
I am also wondering if I have fibro too mainly because of the FATIGUE. It's terrible, and unpredictable. I also have low vit D which I am taking huge prescription doses to get it back up. Last round didn't raise it one bit for some reason, and I tested negative for celiac. I don't have that much pain, except for in my neck, but when I go to the chiropractor on a regular basis it keeps it pretty much gone. I do think I am a little more tender than average and feel sore sometimes, too. My grandfather has fibro, but he has nothing but PAIN PAIN and more PAIN and I'm not really like that. I thought the vit D was helping but now I don't think that anymore - must have been a coincidence and like someone else said, D deficiency is quite common, but most of those people don't suffer the same type of fatigue. I am really sick of it - I am going to ask my PCP to check me for it when I go back about the vit D! Good luck to you!
- Autumn
Topic: RE: New here---wondering what he heck is going on?
With no insurance it is difficult but you might try seeing a chiropractor which should be much cheaper than a doc and all of their tests.Actually it was a chiropractor that diagnosed me and then it was confirmed by my doc. Most chiros will know about the pressure points to test. I hope you are able to get some help, it's a rough disease to deal with. Feel free to come here and we'll help all we can, best of luck to you!!
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