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Hislady
on 4/8/11 1:50 pm - Vancouver, WA
Topic: RE: Went to Dr today....

Hey we need to get together you're a young person in an old person's body and I'm a old body with a young person inside. Yep if you still feel the same you might see a rheumatologist or a pain clinic, both usually treat fibro. There are pressure points they should be able to test on you and come to a more definate conclusion. That's what my chiropractor did when he diagnosed my fibro. He kept asking does this hurt, does that hurt. I told him yes and if he did it again I was gonna smack him! Then he told me why he was pressing on those spots. I told one doc about it and she just said well nothing we can do about it, no meds back then. I told my doc I have now and he sent me to a rheumy for an exact diagnosis because he didn't feel well enough informed to make the diagnosis himself. The rheumy said absolutely it was fibro and was surprised I didn't have the chronic fatigue that so often goes with fibro. However I think I have developed it in the last year or so, no matter how much sleep I get I never feel rested. So the saga continues. I'm so fortunate that I don't have to work or take care of kids, I don't know how some of these younger gals do it with jobs and kids! Me I can just tell hubby he's on his own, fix food or starve the choice is his! Bless his heart! Anyhoo hope they get some conclusive  diagnosis for you and some pain relief. Good luck!

ANNI D.
on 4/8/11 9:22 am
Topic: Went to Dr today....
Well. I went to my recheck today, to see my real Dr, not the P.A. I told himabout all my symptoms and all the new things that have happened since I had last been there a week ago. I told him that at my yearly gyno appt yesterday that my doc there, asked my if fibro had been discussed, I told him no but, that is why I'm going to the Dr tomorrow. He was glad to hear that. I couldnt lay my arm all the way back for him to check my breasts, because ny shoulders felt like they were going to break and just would not let me. Anyway my PCP did an xam and got me on the table and poked and felt around, 9 10ths of it being painful or at least uncomfortable. I think he is wary of diagnosing fibro, which he should be, but he kind of swooshed past my mention of fibro. He then said that he thought I had Polymyalgia Rheumatica, which is a disease that 99% of the time strikes people over 50 but, usually around 70. I am 32. The normal age for fibro. It has some of the same characteristics of fibro but some of the stuff does not make sense and I have SO many of the illnesses that are concurrent with fibro like depression, anxiety, dry eyes, insomnia thats not helped by Any sleep medication,swelling of hands and feet, the feeling of swelling, sensativity to light, fatigue, symptoms of "fibro fog", and the list goes on and on. The best med for his dianosis is steroids but, not so soon after I had surgery. He then said to try to find some Tylenol arthritis, since they have been recalling some brands of tylenol, he said its and 8 hour release tab. I then told him that I was crushing all my tabs and breaking open all my capsules, because I have RNY, time released formulas wont work. He said, and I quote, "oh yeah!" He then said that some other meds might work and started naming some, and said that they were anti-inflammitory. I, once again, said well, if they are n-saids then I cant take them. He said, oh well you can take them for a short course, I just looked at him. So now what I'm doing is bumping up my Cymbalta to 180mg a day, because I was already on an extremely high 120mg a day just for depression, and to continue with the muscle relaxers. He said that this polymyalgia Ruematica could hang around for another couple of weeks, and I now have an appt in 2 weeks to follow up. WhenI go back, if things are not remarkably better, I will be forcing the issue of fibro once more and if he brushes it under the table, I will be asking for a referal to a Dr that possibly specializes in such illnesses, if he doesnt go ahead and refer me himself. What a mess!! I just dont think this "old person" disease is what is doing this. Although my orthopedist has told me that my spinal osteaarthritis looks like that of a 75 yr old, so maybe i'm really a geriatric on the inside!!! Thank you guys sooo much for listening to me again. I really do appreciate all the kindness I have found here!!
I only strive to be, the kind of person my dogs think I am!                               

Of the choices we are given, it's no choice at all....
                                             -Patty Griffin
 
ANNI D.
on 4/8/11 8:55 am
Topic: RE: Finally asking for Dr's help

I am so angry for you!! I cant believe the man that married you, can look in the face and say something like that! I have very little patience for men and there insensativity towards some things, so forgive me if I cross the line but, I would have been pissed and I would have let him know that in a hurry. He probably would've made another remark and then there would have been a full blown fight. It takes alot to make me mad. I hardly ever raise my voice, but jeez! I am so sorry you have to hurt and then made to feel like you caused your fibro. That's just idiotic!
 

I only strive to be, the kind of person my dogs think I am!                               

Of the choices we are given, it's no choice at all....
                                             -Patty Griffin
 
ANNI D.
on 4/8/11 8:49 am
Topic: RE: R U tired of people blaming your weight for your pain?!!!!

Forget walking a month in our shoes, I would give it 2-3 days tops....Maybe even less for men!!!

I only strive to be, the kind of person my dogs think I am!                               

Of the choices we are given, it's no choice at all....
                                             -Patty Griffin
 
Hislady
on 4/8/11 8:20 am - Vancouver, WA
Topic: RE: Finally asking for Dr's help
Hugs to you!I hope your doc will be able to get you some results. It's hard enough to deal with, without our families giving us a hard time. I'm so sorry you have no support at home. Feel free to vent here anytime you want, we understand!
Hislady
on 4/8/11 8:15 am - Vancouver, WA
Topic: RE: R U tired of people blaming your weight for your pain?!!!!
Another thing they don't get is that we have a very delicate balance in how much we can exercise. Too much and we are in pain for days, not enough and it doesn't accomplish anything. If we go gungho one day we may pay for it for a week. They seem to think if we just work thru the pain that it'll be OK, not so! Also they have no concept of how severe the pain is, they seem to think we are big babies that can't take a little muscle ache. They don't understand it isn't a minor ache it is excruciating pain! I wish all of them had to live with the pain for a month, maybe then the would have a small idea of what we live with everyday.
MainePam
on 4/8/11 6:34 am - Bucksport, ME
Topic: RE: R U tired of people blaming your weight for your pain?!!!!
well I have arthritis so bad in my neck, shoulders elbows,plus I have 2  artitifical knees and one shoulder. I do NOt walk on my shoudlers or neck; so how does weight affect it??? But yes they say that all the time weight is blamed for everything. it stops them from finding the "real" problem.
MainePam
on 4/8/11 6:27 am, edited 4/8/11 6:28 am - Bucksport, ME
Topic: RE: R U tired of people blaming your weight for your pain?!!!!
I know what you mean. I hurt to walk even 20 steps!!!! No one understands when we say we are in pain we mean PAIN. They are thinking like a minor headache.
We here all understand you.

Vent all you want we do understand.
Pam

Jennifer M.
on 4/8/11 3:12 am - Goodyear, AZ
Topic: Finally asking for Dr's help
 I went to the doctor on Wednesday. I creid a lot, she almost cried with me. She asked the usual questions, like why am I not on meds. I explained my saga as I did on our board. She had blood work done to check basic levels, partly for pre-op info. When the med assist was taking my blood pressure it hurt sooooo badly that I actually began to cry!!!!   She started me on a diuretic due to the SEVERE swelling and gave me some Vicodin, ordered for every 8 hrs which doesn't help much.  The labs came back, my sodium was actually low!! So the swelling is not simple water retention, its inflamatory, not a surprise. Im peeing up a storm but still swollen.... Still in pain..... taking naps so I can get rested before surgery on Wednesday. I think its the best I can do. 
Last night I was out with my husband and mentioned the whole blood pressure actually hurting so badly that I cried and they took it 3 times. I started to say "you would think they would stop trying on the arm after a couple times since I was crying." But he got irritated and said, " thats enough I don't want to hear it! Maybe if you had taken better care of yourself over the years you wouldn't be in this situation." I told him that has nothing to do with my illness and injuries and just didn't talk to him anymore that night. He is clue less about what he says! He is all understanding with his patients but an ass to me. 


Sorry, just needed to vent a bit.....
 ...a work in progress...    
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