Recent Posts

jane235
on 1/12/18 6:48 pm
Topic: RE: Lupus flares

Lupufree, omega-3 fish oil and vitamin D. Have you ever taken them? I wanna know your experiences before taking. Thank you!

jenniferla
on 1/12/18 2:37 am
Topic: RE: Lupus flares

If vitamin b12 complex supplement doesn't work for you, you can consider to take lupufree, omega-3 fish oil or vitamin d. These are effective and help to prevent flare ups. But you maybe need 3-4 months to have good results as supplements aren't medicines. They just support your health, don't cure your disease.

jane235
on 1/11/18 7:57 pm
Topic: RE: Lupus flares

thank you for your reply!

I try to exercise, but it seems to be difficult for me. I'm exhausted whenever walking for 20 minutes. But now, my husband encourages me to do Tai Chi, he also practices with me every morning. I don't know whether the exercise helps reduce lupus flares. Besides, I focus on diet but I can't eat vegetables. I asked many lupus people, they told me should take supplements to boost my health and try to eat vegetables. Asked my doctor, she only told me to eat omega 3s, vitamin D, E, A foods and change lifestyle, no suppl. I don't know should I take which one as b12 complex didn't work for me.

jenniferla
on 1/10/18 8:02 pm
Topic: RE: Lupus flares

hi, jane 235

Prednisone and Plaquenil may cause side effects. When taking them, you should drink more water and eat more vegetables, fruits. For lupus patients, flares often come and go. I sometimes have flares, but they will go if I reduce stress and focus on diet.

I think your flare ups can be reduced by changing lifestyle:

  • Avoid stress. Do anything you like, such as reading interesting books, listening to music, watching films or hanging out with your friends. Try to reduce your work if you're tired.
  • Get enough sleep. Sleep will help your body rests and gains more energy. Lack of sleep can trigger flares. You need to 8-9 hours each night to sleep.
  • Seek support. If you're under pressure, you should find trusted person to share your issues.
  • Eat healthy foods. Try to avoid processed, fried fruits. Instead, eat more salmon, broccoli, tuna, flaxseed and fruits.
  • Do exercise. You can try to exercises like Tai Chi, yoga, walking.

Lupus flares seem to be decreased when I change lifestyle and take supplements. If b12 complex doesn't work well, you can ask your doctor to take another one. But supplements often work after taking a long time.

jane235
on 1/9/18 7:25 pm
Topic: Lupus flares

Hi, everyone

I've been diagnosed with lupus for 2 years but flares often recur (about 3-4 times each year). I used to be prescribed with Prednisone, Plaquenil, vitamin D and turmeric in 3 months. But after taking them 1.5 months, I had hair loss and dry eyes. My doctor reduced the doses, so side effects are also relieved. Unluckily, lupus seems to develop flare ups frequently. I asked my doctor again, she just encouraged me to change lifestyle habits and gave me b12 complex supplement. I didn't see differences after 3 months though I tried to exercise and reduce stress. Who can recommend me medicines or supplements to reduce flares?

Thank you so much!

jhadsmith
on 10/16/17 7:59 pm
Topic: I need some advice

Hi,

my name is Jhadere i'm 23 years old a student in Toronto, Canada. I am currently going through the process of becoming a candidate for WLS. The hospital I'm doing the program with is Humber River Hospital in Toronto. I had my initial appointment with the surgeon on October 6th. After meeting with the surgeon he told me that I would have to do the Gastric Bypass instead of VSG. Prior to the surgery I did a bit of research as to the type of surgery I wanted and I was a lot more comfortable with the VSG. I also have lupus and take a variety of medications where before I take them I have to eat. The surgeons reasoning for not doing the VSG is that the risks of Acid reflux and ulcers. there was a point where I was having issues with acid reflux but that was due to my gallbladder that i had removed. I really want to have this surgery because I have struggled with my weight my whole life and this right now feels like its my last resort. I really dont want to go through with it if I have to do the Gastric Bypass. I guess what I'm asking is what should I do. Has anyone on here with Lupus (SLE) gone through with the surgery and still been able to take the medications.

The Meds I take are:

Prednizone

Imuran (Azathioprine)

Doxasozin

Lasix

Calcium

Vitamin D

Womens Multivitamin

Tumeric

Probiotics

Iron (Europher)

Tecta

Kathy S.
on 3/20/17 1:18 pm - InTheBurbs, XX
RNY on 08/29/04 with
Topic: Testing symbol

Member reported when using the

HW:330 - GW:150 - MW:118-125

RW:190 - CW:130

Mommy2bad
on 2/16/17 4:01 am
VSG on 03/09/17 with
Topic: RE: Sjogren's Syndrome and VGS

Thank you for posting.  I have Sjogrens, RA and Lupus as well.  This has been a concern of mine as well.

Kathy S.
on 1/18/17 8:01 am - InTheBurbs, XX
RNY on 08/29/04 with
Topic: RE: Test

system -- the part of the body that fights off invaders, such as viruses, bacteria, and other germs. Typically, B cells in our immune system produce proteins called antibodies that protect the body from these invaders.

HW:330 - GW:150 - MW:118-125

RW:190 - CW:130

cc583
on 10/31/16 3:13 pm - Middletown, CT
VSG on 09/28/16
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