Recent Posts

Batwingsman
on 3/12/09 8:42 am - Garland, TX
Topic: RE: Need Custom-Made Pants?
Another member of our men's LE group contributed the link to this co., too.   They even custom fit uniforms, including U.S. military:

    http://castclothingco.com./

Frank talk about the DS / "All I ever wanted to be was thin, like that Rolling Stones dude ... "

HW/461 LW/251 GW/189 CW/274 (yep, a DS semi-failure - it happens :-( )

Batwingsman
on 3/11/09 6:14 am - Garland, TX
Topic: Need Custom-Made Pants?
 One of the members of our Men W. Lymphedema Yahoo group (a/k/a  "The 'dema Dudes") passed along this website of a company that will custom-make a pair of jeans, slacks, etc. for you (guys and gals) for only about $70 per pair.  He had used them before and was quite happy with the workmanship of their tailors.   This is a great service for anyone who needs pants of a certain unsual size, that has limbs that are one size larger than the other, etc.:   

    http://www.makeyourownjeans.com/
    

Frank talk about the DS / "All I ever wanted to be was thin, like that Rolling Stones dude ... "

HW/461 LW/251 GW/189 CW/274 (yep, a DS semi-failure - it happens :-( )

princessmogan
on 3/2/09 5:05 am
Topic: RE: Edema
WOW!  Thats great....I'm jealous. 

Keep up the good work and keep me updated!
meauxmeaux
on 3/1/09 8:05 pm - Covington, LA
Topic: RE: Edema
Well, I found the solution to my problem - VSG!  

Seriously, unless I am on my feet for a LONG time now or sit with my legs cramped, I have not had edema since surgery!

GO TEAM VSG!

VSG with Dr. Michael Thomas on December 9th 2008
HW  236   Pre-SW  229  CW 145                                                                                
First Goal 200# DONE!   Second Goal 165# (BMI=30!)  DONE 
Third Goal: 150# DONE!!   FInal Goal - 135# (to lose 100#) - In Progress!!
     

princessmogan
on 3/1/09 3:38 am
Topic: RE: Big weight loss from night to morning ...
If you have edema you can fluctuate weight all the time.  I always have about a 5lb different between waking in the AM and going to bed in the PM......and it sucks!  I always weigh in the AM and at the same time.  However, you may also be losing some fat along with water, so good for you!!!  A loss is a loss...as I see it!  Good luck and keep up the good work!
princessmogan
on 3/1/09 3:33 am
Topic: RE: Edema
Good morning!  I too have horrible swelling in my feet and lower legs, especially, and sometimes in my hands and lower arms.  I do have a dx of pitting edema, but not lymphedema.  I have tried massage, which worked for about an hour and then as soon as gravity set in and I was up and walking around all the fluid settled back into my legs/feet. 

Currently I take Maxide (diuretic), and am horrible at remembering to take it, but it does help slightly, but not as much as I would like it to.  Also, I sleep with a pillow folded in half under my side of the bed mattress (between the mattress and box spring) to help elevate and redirect fluids through the night. 

I would suggest asking someone to massage your legs and ankles upward to help redistribute water and see if you can get on a low dose diuretic, just be careful if you already have low BP, as this can lower it even more.  I am hoping with surgery this will lessen a huge amount....  Right now it's the only comorbidity I have, so I'm keeping my fingers crossed.  Let me know if you find something that works for you and good luck!
bevsyarncrazy
on 2/23/09 5:29 am - Dover-Foxcroft, ME
Topic: RE: Too fat for therapy!
Great!  I hope that it can work for you!  Good luck.

Beverly
(deactivated member)
on 2/22/09 6:43 am
Topic: RE: Too fat for therapy!


Corliss-

Thanks for the info, and keep me in your prayers on Wednesday.  That's the day my new life begins!  I'm having a DS!
(deactivated member)
on 2/22/09 6:28 am
Topic: RE: Too fat for therapy!


I had a bout with celluitis this spring. My PCP took care of it.  3 sessions of IV antibiotics, and Keflex for maintenance, although, with my Ds surgery coming up on Wednesday, I have been off the Keflex for about three weeks now.

Ac tually, a trip to Fort Wayne would also be covered for me under Medicaid, so I could go there!
(deactivated member)
on 2/22/09 6:22 am, edited 2/22/09 6:22 am
Topic: RE: Too fat for therapy!


This would have been the PT in the Lymphedema Clinic.  The doctor has to approve or deny patients for treatment.  I will look around Indianapolis for treatment.  I just received my compression garment last week, and, it will fit for a while.

I've got 217 pounds to lose, and surgery is this coming Wednesday.  As long as I have medicaid, I can b e transported to and from treatment.

I also had ab out with panniculitis this past spring.  My PCP took care of that.
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