HELP Ugent info needed ~ How many/MOST Years Out!?
Okay I thought you may all be able to help me or point me in the right direction for more info?? My husband is trying to be supportive in my decision to have WLS but he keeps asking me how many years out is the most one has lived after Divided RNY (Open)? You see he only knows two people who have had surgery and he is basing his opinion on them one is 18mon out and has many complications (actually just had a repair done). The other is only about 12mon out and has had nothing but problems/complications too. He is worried I will give up my relatively okay health for this WLS and with 3 very young children (1,2 & 5) he worries that I may die in 2-4 years. I tell him if I do nothing I may die in 2-4 years but I do have to say the fear has crossed my mind and would also like to know who the longest grad is....(years out) I say someone on here who is I think 7? I see Rosanne Barr and Carni Willison had it done one in 98 and the other in 99 so 8-9 years
Hi there. I can certainly understand your husband's fears - it is a scary thing having this surgery. But sometimes it can be scarier not having it, too. I personally know (including myself) 8 people who have had this surgery, the first of whom had it in 2001, and the most recent person just had his surgery in April of this year. I work with four of these folks so I see them every day, and none of them have had major complications. My son is one of them too, and he's doing fantastic, as am I. The one gal who had hers in 2001 has had some issues with vitamin deficiencies (specifically iron and B12), but she has admitted to me that she isn't great about taking her vitamins. The most important part of the initial process is having a great surgeon - someone who has done ALOT of these surgeries and has a fabulous success rate. Make sure you find this stuff out - that is your best edge for having a successful surgery and post-op. I can't stress that part enough. Not every doctor who is doing these surgeries is a GREAT doctor, and that's what we want and need. Also you mention that you're in decent health now, and that helps too. People who start out with a lot of problems have higher risk.
You will also probably see a lot of debate about OPEN versus LAP surgery. Personally, I favor LAP because of the shorter recovery time and basically no incisions to be concerned about. I would not have had my surgery open. But I was lucky to find an extremely highly recommended and trained surgical team who only do these surgeries LAP. The woman surgeon I had trained under one of the best in the country at this (Dr. Philip Schauer-my son's surgeon). Keep checking things out to your complete satisfaction and dont' settle for less than the best. You have all my best wishes. Carlita
Nesidioblastosis is a controversial medical term for hyperinsulinemic hypoglycemia attributed to excessive function of pancreatic beta cells with an abnormal microscopic appearance. The term was coined in the first half of the 20th century. The abnormal histologic aspects of the tissue included the presence of islet cell enlargement, islet cell dysplasia, beta cells budding from ductal epithelium, and islets in apposition to ducts.
By the 1970s, nesidioblastosis was primarily used to describe the pancreatic dysfunction associated with persistent congenital hyperinsulinism and in most cases from the 1970s until the 1970s, it was used as a synonym for what is now referred to as congenital hyperinsulinism. Most congenital hyperinsulinism is caused by different mechanisms than excessive proliferation of beta cells in a fetal pattern and the term fell into disfavor after it was recognized in the late 1980s that the characteristic tissue features were sometimes seen in pancreatic tissue from normal infants and even adults, and is not consistently associated with hyperinsulinemic hypoglycemia.
However, the term has been resurrected in recent years to describe a form of acquired hyperinsulinism with beta cell hyperplasia found in adults, especially after gastrointestinal surgery.. From the New England Journal of Medicine.. http://content.nejm.org/cgi/content/short/353/3/249 That's a link to a study done by the New England Journal of medicine in regards to post gastric bypass patients developing Nesidioblastosis. From Wikipedia in regards to the Thiamine deficiencyBeriberi is a nervous system ailment caused by thiamine (vitamin B1) deficiency; its symptoms include weight loss, emotional disturbances, impaired sensory perception (Wernicke's encephalopathy), weakness and pain in the limbs, and periods of irregular heart rate. Edema (swelling of bodily tissues) is common. In advanced cases, the disease may cause heart failure and death. The origin of the word is from a Sinhalese phrase meaning "I cannot, I cannot".
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[edit] Causes
Beriberi is caused by a lack of thiamine. It is common in people whose diet consists mainly of polished white rice (which contains little or no thiamine because the husk, which contains most of the thiamine, has been removed) and in chronic alcoholics with an inadequate diet; it is also a known (though rare) potential side effect of gastric bypass surgery. If a baby consumes the milk of a mother who suffers from thiamine deficiency, the child may develop beriberi.
The disease has been seen traditionally in people in Asian countries (especially in the 19th century and before), due to those countries' reliance on white rice as a staple food.
[edit] Symptoms and effects
There are two forms of the disease: wet beriberi and dry beriberi.
Wet beriberi affects the heart; it is sometimes fatal, as it causes a combination of heart failure and weakening of the capillary walls, which causes the peripheral tissues to become waterlogged. Dry beriberi causes wasting and partial paralysis resulting from damaged peripheral nerves. It is also referred to as endemic neuritis.
[edit] Treatment
Treatment is with thiamine hydrochloride, either in tablet form or injection. A rapid and dramatic recovery within hours can be made when this is administered to patients with beriberi, and their health can be transformed within an hour of administration of the treatment. Thiamine occurs naturally in unrefined cereals and fresh foods, particularly fresh meat, legumes, green vegetables, fruit, and milk.
Read for yourself, research as much as you can. Ask your doctors, ask more doctors, remember, it's not because of non compliance or from not follwoing orders..lots of us are having problems because of malabsorption and because our digestive tracts were rearranged.
I'm happy to be thinner of course, but I wish I wasn't having to deal with this..it isn't fun for anyone dealing with this..it's scary...but by not talking about it doesnt mean it doesnt exist.
I'm not going to bore you all, and whine (not my style)..hell I don't even complain. But I wont allow people to treat me like a leper because I have issues.
none of us are immune. so for every person who thinks it cant happen to them..I sure hope thats true..but remember..we've all had this surgery which makes us all susceptible to these problems..just keep track and if you notice anything out of the ordinary..please get it checked out immediately!