lisa
Just when I think it's getting better...
Dec 15, 2013
I had a great weekend. I went down to stay with my BF for the weekend. He cooked but no matter how amazing it smelled, no appetite. When I came home, my daughter, who didn't hear about Friday's visit to the doctor, commented that I looked likeI had lost too much weight. Said my shirt was hanging on me. I don't think so; I still have that ugly little pooch from having kids and weight loss. But now my Ortho tells me I have RSD. The thing is, I haven't had any areas of burning pain. I have no appetite. I look at food and try to eat, but the only thing I can eat over and over is yogurt and cheerios. I know, it's weird. My BF wanted to know if I was on some kind of diet. The only thing that really supports the RSD is my hair grew 1" in 6 weeks, and a stabbing, burning pain that I've had for years that feels like it's a stab in the back that moves up the my neck and stops. But there is no discoloration or loss of movement. What did bother me was that if I stretched my hand out and moved my fingers, the entire hand went numb. If I bent my elbow, my arm and hand went numb. I've had 2 surgeries on the right elbow. It's had some swelling, and thin skin, no wrinkles. I guess I need to consult with another doctor. I've also had this bizarre sweating that started a couple years ago. I associated it with eating but it comes on even if I haven't eaten.
I don't mind the weight loss, but it seems rather rapid. Two weeks ago I couldn't get into smaller clothes - couldn't even get past my hips. Now I'm in the smallest jeans I've ever owned (7/8) and they're not even tight. This would put me under 150 and that can't be right. The last time I got on a scale I was 178. That's more reasonable. I guess I need to ask my rheumatologist about this. I should be thrilled that I'm losing weight, but I don't agree with the DX because the main symptom is absent. What if I don't get an appetite back - or worse, that if the nerve block works and I do get my appetite back? I supplement he hell out of everything, but I don't care that I am losing weight and don't want to eat. I may order a pizza, eat one piece and be done. When I think about eating, or if I feel hungry, as soon as I look at food, the hunger disappears. Some other boards, like RSD boards, say that's normal. So I have uncontrolled sweating that is outrageous, and my hair is growing too fast. But the burning pain - where's that? I've had that for more years than I can count and can't really associate it with any surgery or trauma except maybe gall bladder? I think I need another opinion or two or three, but I don't have the $$. Every doctor will cost me $45 and after January 1, I don't know.
I guess it's time to dig for more research. I don't need this. I really don't. How'd I go from a size 12 jeans to 7/8 in just like a month? The new bra that was tight and gave me backfat isn't tight anymore and I have no back fat. I should be happy right? I don't want to be sick anymore. Wasn't the Sjogren's enough? Isn't it bad enough that I wake up with the Saraha desert in my mouth and can't swallow anything and even water hurts and burns for the first drink of the day. Now this. I'm divorced, life is good, I'm happy, I have a very caring new BF. Why does this happen to me now?
Nothing good to say, that's what I get for going to the doctor on Friday the 13th. I knew better too.