Recent Posts

robert
on 4/10/06 3:01 am - gadsden, AL
Topic: Lymphedema painful
IS there a way to gain more movement and reduce the swelling and pain of a leg (lower)with lymphedema. I am over weight but have not gave much thought on surg. to correct it . I guess weight loss would be a great idea but the will power is lacking at times.
Amy Williams
on 4/8/06 9:30 am
Topic: RE: Why isnt this board being used ??
Hi Robert, Sorry I wasn't more clear. I was wondering if you were going to have weight loss surgery or if you had? I know before my surgery my legs would have the hardest time staying down because the weight was stopping the movement in my legs, stomach area. My legs would swell up very quickly. The only thing that really helped me was losing this weight, I still have lots of swelling if I don't keep them up, but it's much more manageable. Amy
robert
on 4/8/06 7:36 am - gadsden, AL
Topic: RE: Why isnt this board being used ??
Pre-surgery ?? I do manual Lymph drainage morning and night, wrap at night and use support stocking during the day but if I do to much I still get swelling and pain. I can prop my leg up and the swelling goes but get up and moving for a bit then it is the same. I did go to my doctor this last week she set me up with the doctor I saw before that does MLD/rehab to try to help the pain and swelling and range of movement.
Amy Williams
on 4/7/06 11:49 am
Topic: RE: Why isnt this board being used ??
Hi Robert, I think that many more people have Lymphedema but just don't realize it and this board is still very new. I hope we get more people posting. I did have problems with pain at one point and now things are better. Are you pre-surgery? Amy
robert
on 4/5/06 1:46 am - gadsden, AL
Topic: Why isnt this board being used ??
Hi I am Robert ( I am new to the message board) I was wondering why this board isnt being used much. I have lymphedema in my left leg below the knee , I have to do MLD on a daily bases and wear a 50mg stocking to support my calf. Does anyone else have problems with pain,swelling and basic dicomfort due to lymphedema ?
swtpeach
on 3/23/06 11:58 am - Cambridge, Canada
Topic: RE: slippers
Hi Donna, Boy, I hear ya about slippers! My feet are always cold! I found that slippers that open up wide and then fasten with velcro are a good choice.. easy to get on, and adjustable for swelling. Hope these links help. http://www.gyfootwear.co.uk/wholesale_slippers_ladies4.htm http://www.veganline.com/comfylux.htm http://www.footsmart.com/Storefront.aspx?productCategoryId=21 Try doing an online search for: velcro slippers, diabetic slippers...there are many more links out there, I'm sure. *hugs* peach
swtpeach
on 3/23/06 11:45 am - Cambridge, Canada
Topic: RE: need help cant get out of house have lymp
Hi Donna, First let me say that I completely understand what you are going through! I am not sure how things work there, but I would not accept that your doctor can't do anything for you! I'm not sure how things work there.. I live in Canada, but I have a nurse that comes to my house each day and wraps my legs with compression bandages, treating any wounds as necessary. There are also resources available for people to come to your home to help with housework, specialized furniture to help with mobility (such as chairs that lift up to help you get in and out)... I'm sure these things would be available. Please contact your doctor and ask if there are community services like this available in your area. If you are unable to get out of the house because of the lymphedema and weight, then perhaps they can get someone to come to you, to treat your diabetes, lymphedema, etc. If your doctor won't help, find another. I know that our heathcare differs from Canada to the US, but surely something can be done for you. You should not have to endure being put off like that because your doctor does not want to dig around for ways to help, or thinks you can't be helped. YOU ARE WORTH HELPING! *big comfy hugs* peach
ohnodonna
on 3/5/06 9:18 am - fall river, MA
Topic: slippers
does anyone know where i can get slippers to fit these big feet online? any stores that sell special slippers...thanks donna
ohnodonna
on 2/24/06 10:30 am - fall river, MA
Topic: need help cant get out of house have lymp
hi my name is donna i weight 495lbs i have 13 stairs outside my house..i have two children six and seventeen and they are watching me slowly die..my big problem is my legs i have severe lymp in my legs and i cant get nobody to do anything my dr says he cant help me has anybody ever had somebody come to their house and help? ...im going to be on that discovery thing in england they are going to film in march its about obiesity they are doing a couple of people they are channel five in england is anyone else doing it? well i would appreciate anyone having any ideas ..i cant even get medical attention for my diabietes and other conditions my dr said they wont come out unless i have a heart attack or something severe first...i live in fall river mass...thanks ...donna
Dory1961
on 2/22/06 10:16 pm - Byesville, OH
Topic: Project Patty
Project Patty!!!! Original Post by Loraine May at 9:11 AM EST on 02/23/2006 Byesville, OH - RNY (05/06/2005) - Dean J. Mikami, M.D. I want to thank all of you who have requested my address to send clothes and personal care items for my dear friend Patty and her brother Leonard. They have no idea the suprises ahead of them. Since we had the holiday this week and mail is moving a little slow we are delaying the Ambush Makeover/Cleaning team move in until Next Saturday. We have more people available and this will give me more time to gather donations. I am working on a large wheelchair now, and some volunteers to make a ramp. I want her to be able to get out of the house and get some sunshine this summer and not be stuck in a hot apartment and have some fresh air.. Again, Thank you for the compassion you have shown for my friend and her brother. Your kindness will come back to you many times over. Again we are in need of size 6 x Womens clothing and underwear, socks and personal grooming aids. ( baby wipes, facial cleansing clothes, deoderant, toothpaste etc) And for Leonard Size 55 jeans, belts, Tighty whitey size 54, 3 x White t shirts, and 3 x shirts and socks. Also Gently used bath towels, wash clothes, dish towels and rags.. If you have none of these items and still would like to help in some way I have a few ideas that can brighten her days. She LOVES country music. Especially Keith Urban, Conway Twitty, Rascal Flatts, Bluegrass and pretty much anything country. If you would have the ability to burn cd's that would be a great idea.. And she loves to read, so any leftover magazines, paperback novels etc would be wonderful. Cards of encouragement are most welcome as well. I would love to be able to hand her a stack of cards from people all over the country that let her know that there is a whole community of people who have been where she is, and we are here to help. If anyone is interested in being a pen pal with her please indicate that as well. I am just trying to think of any way possible that everyone can help in some small way to remind her that she is important and that there is a real world outside the living room.. I Love you all and thank you so very much for all the kindness you have shown to my dear sweet Patty. I have seen her several times this week and I am about ready to burst trying to keep this Big Secret and not spill the beans. Thank you again, Hugs from Laura in Ohio Contact me for mailing address for clothing etc.. This site powered by ObesityHelp
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